hello okie ... i live in okc.

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ranngolden1
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 1/28/2009 7:49 AM (GMT -7)   
i have a question for you guys and it might sound stupid. but here goes . i have been waiting for several years before telling my doctor my symptom because most dr's look at you like your crazy or seeking. i work in the respiratory field at ou trauma so i know how it goes . well any ways here is my question, do you guys have problems passing simple essay(ana) tests i got several exposures at work and i always have to have a western blot because i have so many antigens or markers. i have been writing a journal on symtons for the last five years this all started with raynauds on all finger toes and tip of nose.then very dry eyes and other parts of bodily parts that lost the need moisture to work well. my thumbs and neck are the only place that hurt a lot sometimes i cant open anything because my thumbs dont want to work this does not happen all the time. i get so sleepy that i just want to pull the covers over my head and hide . i really thought i had mono . i just chalked it up to working to hard. untill i would lose my sight for short periods of time its not that i cant see i can but there is no depth or perception so if i am on the pc charting when this happens i have to fake charting and wait it out sometime it take 45 mines to pass and i can get a small headaches after this this only happens at work and i am terrified that some one will notice . i usually just sit in front of the pc and pretend to chart waiting for the spell to blow over .i was diagnoised with hypothyroidism(i weight 125 lbs go figure) and was put on synthroid 125 mg . i thought that was the cure to my problems . but wrong..i bruise easy i have periods from h*ll i lose 5 plbs after my monthley i have sharp muscle pains and muscle fatigue i get vasculitis . i dont get your standard malor rash but i do get a rash when i get stressed or overworked across my chheks and nose. oh i got mrsa and i took me ayear to get rid of it i was so sick i hope to never get those sores again . one other thing i get cold sore when i get my period or when i stress and canker sore. i am sorry this is so long i hate sound like a whinner
im just going crazy i am going to the rummy this month and i hope that he can make me sane again. what test should i ask for.....i wish this would all go away but i think this is just the tip of the problem any help would be very welcome. oh by the by if anything is spelled wrong forgive me this is my third night working at nigh i work 12 hrs shifts at night but i love you read your posts they calm me down when i feel like crying.....
thank you for your time renee walker

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 1/28/2009 12:33 PM (GMT -7)   

Hi Rann, I'm feeling really poorly right now so I am going to make this quick. First welcome to the group. Also thank you for choosing your profession. As one who as had close relationships with RT's I truely appreciate it.

I'm assuming that you were saying something in medical terms about your ANA because from the way I keep reading it it sounds like you stay up nights and study for it so I figure I'm reading it wrong. It sounds like you should have plenty of info for a rheumy if you have been keeping records for so long. I do a lot of pulling the covers over my head too. Somtimes this stuff really stinks. I can't really help you out but I can say I have never had much of a rash and many people never get one. If you find a rheumy that makes you sane please give me their name. Usually they tend to make me crazy.

anyway I'm sorry I can't offer you info but I'm sure others will come along that can give you some great advice. My brain fog is getting the best of me today.

take care

carol


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/28/2009 4:36 PM (GMT -7)   
Hi renee, welcome to the forum.
 
I think brain fog and the ability to do simple things is really hard on us. I wish I had a magic pill to take it away. I know my lupus and fibro is quiet when I can do puzzles and stuff quickly and easily.  If i'm struggling I know one of my "diseases" is active.  I've sort of learned to live with it.  That's all I can do!
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


ranngolden1
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 1/29/2009 7:14 AM (GMT -7)   
you guys are so nice until a few years ago i thought i was a very healthy person i didnt even know what was causing my fingers to go white . now it is like things are coming out of the wood work. i dont mind most of it and i have learned to stay fit and warm . it is very nice to have people to understand some of this stuff i just know enough to be dangerous . so that means i am learning i just want to be able to go to the docs and not sound stupid. and not get the run around. i am so afraid that i will have a attack on my vision one day when i am driving i don't want anyone to know at work that i have these spells they don't come often a few times a year. my eye doc said i needed to go to a nuro doc? do you guys get any sight problems? oh and okie what i meant about the test is that i cant give blood i can pass any of their screening all the test come back positive. well i better go god im so tiered trauma kicks my butt some time. if you every need help with you copd let me know that at least is something that i ex cell in and would be glad to assist you. i hope i don't sound to crazy in the mornings but i work the 7p to 7a shift.
thanks renee'
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