Hi Donna, is there any way you can get someone else to walk the dog? or have a fenced in yard or something? I mean I love my animals but not enough to fall down for them. Maybe you should call the dog whisperer. Shoot that would be a great story for him. You could promote Lupus too. . What can I say my mind is weird. Oh the fog is so embarrassing. It actually scares me. Here I have all these other issues but losing my ability to remember makes me feel so totally out of control. There are things I can remember every detail that happened years ago. Than there are things I can't remember that happened yesterday. When I forget important things that involve my loved ones that really hurts. I don't know what they think. Imagine someone pours out their heart to me and I forget it ever happened.
You mentioned one thing that I am not sure I know what it is "SEX" I think I heard that word once or twice several years ago but it's all kind of fuzzy now. I guess that is the up side to be alone. I don't feel quilty. I'm glad you have a good man but you two deserve to have a great sex life. You shouldn't settle for less. Maybe you could see a counselor/therapist. I'm not thinking that he would leave or anything I'm just thinking that I beleive there has to be some way to have an intimate relationship with your partner. It would probably help in lots of ways.
Ok this coming from somone who hasn't had any since the dead sea was just sick.
I hope you arn't down and too bruised up for long. Love ya!
Hi Guys. It's so good to be pampered by you. Fran, thanks for reminding me that I'm a great woman. I needed to hear that. Ginny I love your comment about ignoring the 10 hottest men. I would look at them and think, "That one has great shoulders, or a great butt, or nice eyes" and that's as far as my thoughts would go. I know I should want to think of more, but nothing happens. Stacie I hate to say this, but it's good to hear another lupie has had record diarrhea, running the great race. ((Carol)) you're so funny. I know the minute Ceasar met us he would say that my BF was clearly the pack leader. Then he would try to train me to have that "sshh" serious voice. As for the fog, I really, really hate it. I seem to have no short term memory and I too forget extremely important things. Last week I forgot my daughter's graduation from Le Cordon Bleu. Man I'm really trying not to beat myself up because I'm doing all I can to help remember, but it's so awful to forget to look at the calendar. Lastly, I know that I should make more of an effort to be intimate. I'll write it down! I love you all. Butterflake
Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(15 6mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
"Life is far too important to be taken seriously." –Oscar Wilde, 1982
HI Butterflake, I can relate to every one of your issues today. I used to have a great libido also but it changed with prozac. I asked my doctor at the Mayo Clinic about it and I got a small lecture about my age yes I did! (57). I'm now on effexor which makes the O possible again but still not much in the libido (desire) dept. but that doesn't mean you can't enjoy great big O sex. Sat. night is 'my' night and several other nights are 'his' nights. (Well he enjoys 'my' night also). I might be too tired, in too much pain but we always do it and it is wonderful. I take more pain meds beforehand and usually a nap during the day. My lower half goes numb if there is pressure on it (like when getting a back massage and he's sitting on my legs) so we are careful about that. I don't want this post to be deleted but I'll just say, don't be afraid of using 'aids' (that plug in). I don't post much but I love this forum. This is such an important part of a relationship and I hope it improves for you. Blessings, Deb
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Hi! Butterflake and Everyone,
Yep, no argument here, lupus sucks! I am so glad you brought the "sex" word up, (I will whisper the next few lines). Sex, or lack thereof, is a big part of relationships. May I tactfully suggest that a partner might benefit from verbal, and/or non-verbal "encouragement" to meet their own sexual needs? Trying to get past the learned stigma of "self directed satisfaction" if you get my meaning, where too many of us learned at a toddler age that "touching yourself" is wrong, and the teenage years where "shame and guilt" often accompanied a cold shower. Where is Dr. Ruth when we need her? Sleep or Sex?...... too often it isn't even a choice. I am sometimes near tears with exhaustion, that goes way beyond mere tired, and I literally fall in bed. My husband moved into our spare bedroom for me. It was going to be just for one really bad night, now it's been two years and I miss him, but do sleep better. I am also grateful for our "chats" here, too.
ps. I just got one of those thick magic foam mattress toppers, and it really helped my hip pain.
PCP pretty convinced- Lupus , Taking plaquenil,Propranolol, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab. Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.