I don't know if I can do this

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Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 1/31/2009 8:06 PM (GMT -6)   
Oh Man, I'm trying to think possitive about these tests but I have been fighting off being sick all week. Now tomorrow I leave for OKC and a few hours ago I started getting a deep cough. One so bad I don't even want to cough. It's making my throat vibrate. down into my chest. I feel like I just wanna die. I can't imagine the tests they are gonna put me through. I can't walk 6 mins. They do have a wheel chair for me so I don't have to get worn out going from one place to another. You know the cough that makes every muscle hurt? cry Some times it's hard to be possitive. shakehead . I won't be back around until next week somtimes. I'm really not sure when.
keeping you in my throughts and prayers
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
Bear ye one another's burdens
Galatians 6:2 KJV


Regular Member

Date Joined May 2007
Total Posts : 475
   Posted 1/31/2009 8:49 PM (GMT -6)   

Please know that I will be saying prayers for you. When all this is over, you will feel so much better, I am sorry you have to endure all of this to get to the good part! Stay strong and be positive!
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 1/31/2009 9:05 PM (GMT -6)   
(((( Carol )))) I know you must be nervous about all the test and the procedure itself, hang in there though and don't let it get you down. It's all going to be ok. You have been and continue to be in my thoughts and prayers. love ya
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 334
   Posted 1/31/2009 9:21 PM (GMT -6)   
I know it must be hard to remain positive, especially now that you are feeling bad with this cough and all! Please know that we are all pulling for you and praying that you have the energy to make it through all these tests! You can do this girl! You deserve the opportunity for the transplant and this is the only way they can find out if you are qualified, so please be positive just a little bit longer!
Hang in there, get as much rest as possible and give'm hell on Monday, I know you have it in you!
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 1/31/2009 10:56 PM (GMT -6)   
(((((((((((( Carol ))))))))))))))

I hope they are able to complete all your testing. Are these tests for the transplant list? or for your treatment plan?

Prayers and blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Post Edited (AlwaysRosie) : 1/31/2009 8:59:16 PM (GMT-7)

Veteran Member

Date Joined Jun 2008
Total Posts : 669
   Posted 2/1/2009 12:19 AM (GMT -6)   

I'm sorry it feels so hard right now.  Someone offered the analogy of a being on a bridge not long ago, that I thought was just great.  Just keep putting one foot in front of the other, hold on to the rail, and remember that the bridge will get you where you want to go.  I know it's so much easier said than done, but you can do it.  So many prayers are with you - mine, too. 



diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 2/1/2009 7:59 AM (GMT -6)   
Carol, you can do this. Look at what you've already had the strength to endure. After all the results are in, the transplant team is going to be convinced that you need this transplant, and while the process will be difficult, the end result will be so worth it.

Don't forget that you have your HW support group cheering you on. We'll be here for you. By the 10th we'll both be over this bronchitis and we can have our slumber party then. I think you need to have some fun.

Have a good trip tomorrow.

SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 2/1/2009 9:28 AM (GMT -6)   
(((((Carol)))) Hang in there. I know this is a rotten time for you to be getting sick, especially with all the tests you have to go through. Like Pat said, we are here for you and cheering you on - just imagine that we are all there with you. My thoughts and prayers are with you today.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 2/1/2009 10:20 AM (GMT -6)   
I wish you weren't sick on top of everything else going on.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

Forum Moderator

Date Joined Jun 2006
Total Posts : 1534
   Posted 2/1/2009 10:54 AM (GMT -6)   
Hi Carol. Please keep in mind that these medical professional are used to seeing folks in exactly your situation. These are folks trained to care for pulmonary patients- coughs, sputum and all. And yep, we are all cheering and praying for you! Love ya, Donna

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

New Member

Date Joined Jan 2009
Total Posts : 3
   Posted 2/2/2009 5:26 AM (GMT -6)   
Hi carol,
Carol don't be nervous it's just medical check up.Think postive. And also i pray for your better health. cheers......

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 2/2/2009 11:49 AM (GMT -6)   
Carol, how are you doing today?  I've been thinking about you a lot.  Touch base when you can. I hope you're doing better, hon.
Love ya,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Moderator for the Lupus and Fibromyalgia forums

Veteran Member

Date Joined Mar 2006
Total Posts : 2570
   Posted 2/2/2009 4:19 PM (GMT -6)   

I hope that by now you have finished with all your tests and are headed home. I'm anxious to hear how you day went and am glad this part is over.

SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 2/3/2009 11:45 AM (GMT -6)   

Hey Carol,

looking at the posts.  I am sorry that I have not responded in a long time.  been in the hospital again. 

I do not wish anything bad to happen to you at all.  but sometimes when a nother person hurts and need us I can chase away on my own needs, and direct myself to the others.

I am so sorry that things are not going so well for you.  the other person talked about a bridge and holding on til you cross the bridge.  this is a good

I will pray for you every day Okie. 
Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

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