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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/1/2009 8:28 AM (GMT -7)   
I am very afraid I am going to end up dropping out of school. I am in a bad way. I am on 20mg of prednisone and sleeping 15 hours or more each day. I am so tried after 20 minutes up it isn't funny. I want to finish my degree. I also want to give my son everything he needs. What is wrong with me? Why am I so tired? The neurological stuff has calmed down and seems to be well controlled now. Why do I still feel like this? Before the wean on prednisone I felt great at 20mg and 200mg Imuran. I am afraid of what is happening to me. I feel so fragile lately, like the slightest pressure and I will shatter and never be able to put myself back together again. sad I am not depressed, actually aside from the physical I have been relatively happy. I just don't know what is wrong with me. shakehead
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 2/1/2009 9:00 AM (GMT -7)   
(Redrose) you certainly sound afraid. Can you take fewer classes? I took a few classes each year until I finished my degree 16 years later. Your health is more important. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/1/2009 10:16 AM (GMT -7)   
Could the fatigue be from your Fibro? When my lupus is well controlled, or almost totally quiet and I feel fatigued and "off" it's always my Fibro acting up.
 
Maybe you need to go back on your 20mg prednisone dose too? 
 
Donna is right. Your health and family is the most important thing. Taking fewer classes is a good idea.
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/1/2009 5:39 PM (GMT -7)   
I am on the 20mg of prednisone again, since the 19th I have been. I have no idea if the fibro is acting up or not I never really had a flare of it before it has always been mildly active and never really a big deal. I have to finish my degree by spring semester next year due to a fellowship I received. I really only need 6 classes and am in 3 this semester. I already know I will be dropping 1 later on. I am considering taking 2 important classes a semester and 1 I can leave if need be.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/1/2009 7:35 PM (GMT -7)   
(((( Redrose ))) I am sorry you are feeling so poorly, I wish there was something I could do for you. Maybe it wouldn't hurt to put a call into your doctor and let them know about the overwhelming fatigue. I pray you feel better soon! Take care
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/1/2009 9:30 PM (GMT -7)   
I saw my doctor the 19th and she knew then about the fatigue. She said I will have to ride it out because there isn't much left to try especially with me on provigil.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

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