I'm home/completely wiped out/update

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/3/2009 6:27 AM (GMT -7)   
Thank you all for your thoughts and prayers. I survived yesterday but I'm feeling pretty rough today. I'll give you shout later.
love ya


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 

Post Edited (okie) : 2/4/2009 8:46:21 AM (GMT-7)


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/3/2009 8:10 AM (GMT -7)   
Carol, I've been thinking about you and wondering how things went. Get lots of rest and give us an update when you are up to it. (((((((hugs))))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/3/2009 8:28 AM (GMT -7)   
Carol, (((HUGS))),

Been saying lots of extra prayers. So happy to hear that you are home and resting. Take it easy - remember, one step at a time.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR.
Daily Supplements: Calcium, B-100 Complex.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Darvocet, Prednisone.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/3/2009 9:20 AM (GMT -7)   
Carol, you get some good rest today and take it easy.  Glad you're home!
 
Love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/3/2009 9:40 AM (GMT -7)   
Carol, I'm sorry yesterday was so hard on you. Please get lots of rest and let the rest of the family take care of you! I hope a couple of days in bed help you get back on your feet. I'm glad yesterday is behind you and I'm anxious to hear how it went.

(((((Hugs)))))

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 2/3/2009 10:56 AM (GMT -7)   
Hi Carol,

You have been in my thoughts and I was wondering how things went. Our prayers have been answered thus far, I knew you could do it! Like the others said, get some much needed rest and when you are upto it let us know how it went.

(((((HUGS))))

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/3/2009 4:39 PM (GMT -7)   
(((( Carol )))) I am glad you are home, take it easy and get plenty of rest! Love ya
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2009 9:15 AM (GMT -7)   

Hi all, well now that it's been 48 hours I feel a little bit better. I hate to complain but it is a very hard ordeal to go through. And that's just the work up. I think there were like 4 ct scans ulltra sound kidney liver tummy, and the coridid arteries in my neck. They made me drink so much of the chalk stuff I thought I'd hurl. They took 27 viles of blood plus 3 blood gas tubes. They stuck an iv in my arm and put me in a machine that was in nuclear medicine. I laid down and it was so close to my face that I felt like I was in a coffin. That was just one days worth of stuff. oh they gave me a pill to swollow for my esophogus while they watched it through an xray. it was caught in my throat for awhile. which with the CREST has always been an issue. I just left a message for my dr. in town that I need to set up a pap smear, colonoscopy,mamogram,and a heart catheter. Than I have to see a dentist. I got a letter last night saying someone in my family has to be there for my appt on the 10th. I called the hospital yesterday with questions about the spots on my lungs and about lupus. I have been told by my other drs I would have to have a biopsy done and if it is an autoimmune disease I won't be eligible for the transplant. So of course the nurse that told me if I had any questions I should call her couldn't give me any answers. I hate that I'm having all these tests done and putting my body through stuff that I can barely get through and than be told I don't qualify. She said I would have to discuss it with the surgeon. But surgeon appt is the last person i see after all the tests.

 

God bless


 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 

Post Edited (okie) : 2/4/2009 10:23:11 AM (GMT-7)


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/4/2009 10:38 AM (GMT -7)   
Oh Carol! I am so sorry. Sounds like you have had a very very ruff week! Vent all you want...thats what we are here for. If I went though everything you are going through I can guaruntee you thats what I would be doing. Please make sure you get lots and lots of rest. You have lots of prayers being offered up for you. Let us know if we can do anything for you! God Bless
Aimsgirl16
Systemic Lupus,lupus nephritis, Raynaud's Phenomenon, Carpal Tunnel
Voltaren, Ultram, Prednisone, Cell-Cept, Imuran, Ambien,Furosemide, Flexeril, Darvocet, Iron pills
 
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." (Revelations 21:4)
 
I Can do all things through Christ who gives me strenth! (Philippians 4:13) 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/4/2009 11:54 AM (GMT -7)   
Carol, I hope that things calm down for you and that all the testing goes well.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/7/2009 3:17 PM (GMT -7)   
Carol,

I've been concerned about you since we talked and since you last posted. How are you feeling? You've been so down and I hate to see anyone feeling as hopeless as you do. I'm sorry you can't spend the night this week so we could really get in some trouble. I hope that after your appointments on Tuesday you'll feel a lot better. I'd sure like to go with you.

((((Hugs))))

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/7/2009 6:11 PM (GMT -7)   
Carol, I'm glad you're feeling better, but boy oh boy, don't ever apologize to us for "complaining"!  You never complain!  You just tell us like it is.  Sounds like you were put through the ringer.  27 viles of blood? Wow. I haven't even had all that.  Just take it easy this weekend and know that we are all saying prayers for you. You'll have this transplant. I just know it.
 
Love ya!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/9/2009 9:32 PM (GMT -7)   
Carol,

I hope tomorrow won't be as rough a day for you as last Monday was.

I need to let you know that I've been in the bathroom all evening with what must be the stomach flu. Maybe it's just a fluke and I'll be fine in the morning so I can meet you at the hospital. Give me a call when you're on your way.

Get a good night's sleep.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin

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