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aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/3/2009 6:33 PM (GMT -7)   
Had 3000 mg of Solo-Medrol about 3 weeks ago and now taking 80 mg of prednisone. I have a major major major moon face...Does anyone know how long this will last? Will it go completly away? Also, the weight gain...will that go down when the prednisone comes down?
Aimsgirl16
Systemic Lupus,lupus nephritis, Raynaud's Phenomenon, Carpal Tunnel
Voltaren, Ultram, Prednisone, Cell-Cept, Imuran, Ambien,Furosemide, Flexeril, Darvocet, Iron pills
 
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." (Revelations 21:4)
 
I Can do all things through Christ who gives me strenth! (Philippians 4:13) 
 
 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 2/3/2009 8:30 PM (GMT -7)   
Moon face is a temporary condition that will go away by itself as you taper prednisone.  80mg is a major dosage and you will probably have to be below 20-30mg before it diminishes but everyone is different.  It is a redeposition of fat that causes it...prednisone belly and camel back are the same problem from prednisone.
 
You do NOT have to gain weight from prednisone.  If you are ill and less active then you need to adjust your calories...eat less and stay away from simple carbs.  Prednisone does change your metabolish but is does not cause you to gain massive amounts of weight if you adjust your diet.  I lost 40lbs of muscle mass from polymyositis so I had far fewer cells to burn calories.  Also have lupus.  Due to the muscle loss I did allow myself to gain weight but I never went above my beginning weight which was the same as my weight at 16...and I am now 66. 
 
This takes some discipline but it is better than facing weight gains and the pain of losing it later on.  Fighting lupus is more than enough of a challenge.
 
Take control of what you can and don't believe all the negative talk about both lupus and taking prednisone.  Prednisone is both a miracle drug and a curse for some but none of us know which it will be until we take it for a while.  The worst side effect I had other than moon face/pred belly was hypertension.  Is imuran the long term controlling med your doctors want to try?  What dose are you on?
 
Bill

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/3/2009 8:59 PM (GMT -7)   
I agree. The prednisone is an amazing drug. I have gained about 60 pds in the last 3-4 months...but I do think that also might be from the Acute Kidney failure I had and the drugs they used to treat it. I do know that I have about 40 pounds of fluid on my body and they have me taking 80-100 mg of water pills for it. But for some reason...it isnt working that great. I am staying away from salt and things that cause you to reatain fluid. Drinking a lot of cranberry juice, lemon juices, and lemon teas.  As far as the Imuran...I have been on it for about 6 months now and they have me taking 150 mg. Before my Kidney problems my rhuemy had talked about taking me off of it and putting me on methotrexate but then when the blood work came back she called and told not to take it because it would cause even more damage. I believe they are wanting to keep me on cellcept and keep increasing the dose of that and bringing the prednisone down slowly. I have been on 80 mg of prednisone for a month now. Before that I had been on 10-20 mg of it for the past year. If the cell-cept doesnt work for my kidney's I do know that the next route will be cytoxan. My renal doctor doesnt want me to go that route unless absolutly necessary because of my age and all the side effects it causes. So we are crossing our fingers and hoping cell cept works!!!


Aimsgirl16
Systemic Lupus,lupus nephritis, Raynaud's Phenomenon, Carpal Tunnel
Voltaren, Ultram, Prednisone, Cell-Cept, Imuran, Ambien,Furosemide, Flexeril, Darvocet, Iron pills
 
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away." (Revelations 21:4)
 
I Can do all things through Christ who gives me strenth! (Philippians 4:13) 
 
 

Post Edited (aimsgirl16) : 2/3/2009 9:02:16 PM (GMT-7)


Honeybee_100
New Member


Date Joined Feb 2009
Total Posts : 4
   Posted 2/3/2009 9:56 PM (GMT -7)   
The effects are temporary - but they can be minimized even on a high dose.
 
The other posters are correct - you don't need to gain weight on predisone.  I was on 60mg for several months, and then tapered.  No actual weight gained.  You just have to realize that you may be really hungry, and stock up the fridge with water, calorie free drinks, and low calorie veggies to go to town with when the munchies hit.  For your 'real' food, just make sure that you are eating as clean as possible, and really watch your calories.
 
The moon face can be minimized if you don't gain weight - and almost all side effects of prednisone go away once you are under 10 mg.
 
I found that eating potassium suppliments when on prednisone almost eliminated water retention.
 
If the prednisione gives you more energy (I was fortuante enough that it did) - use that to add to the time you spend working out.  That will help mitigate any weight gain.  The buffalo hump is a redistribution of fat.  If you don't gain weight - or if you lose some when on prednisone, it probably won't hit you.  But even that will disappear once you are tapered or off for a while.
 
Prednisone does have side effects, but it is a wonder drug.  Just watch your diet, exercise as much as you are able, and enjoy the process of getting better.  Chubby cheeks is a small price to pay for improved quality of life ;-)

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/3/2009 10:12 PM (GMT -7)   
Prednisone is a good medication. I'm in the proccess of being tapered down. I was at 80mg now down to 20mg. I never had the "moon face." But I have had those dang cramps and muscle spasms and muscle locks. I have had hotflashes, even though I'm 28. I've had and still have those "bruised stretch marks". I have gained 20lbs. All from this medication. I definately wont foreget my doctors response to the hotflashed, the idiot (sorry but men can be idiots) said to me "yes you are correct and are having hotflashes. consider it a preview of what is to come later for you." I felt like smacking him! The nerve of men sometimes....but now its funny. He's in for a surprise when his wife goes in hotflashes...he will find its a two way street, we drive the men nuts during them hotflashes! Dont know how many times I got yelled at for having the back door open in dead winter saying I was really hot lol
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1548
   Posted 2/4/2009 6:02 AM (GMT -7)   
Hi Aimsgirl. It's good to hear from you. While on 60mg of pred my moon face was so bad that my eyes were just slits. My BF asked my doctor if my face was going to explode. (No, it will not) I'm down to 5 mg of pred now and still tapering. It's taken 8 months to taper. I still had some moonface at 7 mg, but I have a small face. As for the weight gain, I'm the person you should not copy. I am 5' tall and weigh 202. I'm finally on a diet. The fatigue makes me want to eat things quick to fix and I eat the wrong things. Our forum member Bill is a very smart man. Try to take his advice as much as you can and fight the cravings now.  BTW Cellcept has been great helping me reduce my prdnisone. I'm praying your kidneys improve and I'm sending you lots of positive energy. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


USAFVET
New Member


Date Joined Feb 2009
Total Posts : 3
   Posted 2/9/2009 2:32 AM (GMT -7)   
HI I hate to say it can take a while and some times after prolonged use it doesnt go away I have heard of some women going through plastic surgery to reverse the effect of prolonged steroid use. I get moon face and actually have some grooves in my face from the meds. Stay hopeful and you will be in my prayers Be Blessed

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/9/2009 8:58 AM (GMT -7)   
Hi aimsgirl,
 
I had a fairly substantial moon face when I was on 40mg. I didn't see it disappear until I got to about 8mg.  Like the others have said, it does take time, even on the lower doses for the moon face to go away or get better.  I'm on 7.5mg right now and I've noticed a huge difference in how I look. I"m also at a dose that is letting me lose some weight.  I'm down 15 pounds!
 
This is a hard time and it's not fun to go through. But if you stick it out and do a very slow taper, your body will appreciate it, and with any luck you won't need those high doses again!
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums

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