question about hair and skin changes

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lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 2/4/2009 12:05 PM (GMT -7)   
I've lost a lot of hair since late summer.  It's stopped falling out so dramatically, but it isn't growing back, either.  The texture is different as well, but some of that may be due to the fact that I stopped coloring it several months ago.  I only colored it for a year - and when I couldn't get out of flare, decided if it was contributing to that at all, it just wasn't worth it.  The hair around my forehead along the hairline is really wacky, like the hairs have broken off and regrown so many times they are "fringe" hairs.  Oh, it's hard to explain. 
 
Then there is the skin on my face.  I've always had dryer skin, and the rest of my body is doing the normal thing - especially in winter.  But my face just seems so coarse (the texture is like sandpaper sometimes) and so dry it peels a bit - and even though I put a ton of lotion on it it never seems to really absorb it.  And some days it is more exaggerated than others - for no reason I can come up with.  My thyroid has been checked and double checked.  It's fine.  Does this sound familiar to anyone?  I'm 54, but this has been a very recent change - in fact, it's all started along with some nasty flaring this summer and fall.  I started Plaquenil in Dec. - not sure if that has helped slow the hair loss or not.  I'm not extremely vain, but I do't like what I'm seeing in the mirror!  Any thoughts?
 
Lucy
 
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/4/2009 3:18 PM (GMT -7)   
Lucy it could be a variety of things.  Lupus itself will cause hair loss for some people, so will meds. Dry skin can be attributed to both as well.  I drink a lot of water to combat the dryness in my hair and skin.  I live in a very dry climate though.
 
Once the plaquenil kicks in if you continue to have hair loss, definitely tell your doctor.  If the hair loss stops, then you could probably attribute it to the disease process as the plaquenil would be doing its job.
 
I hope this helps.  I had hair loss last year and it was awful. For me it was a trauma that led to my body losing all its hair.  It grew back.  I hope yours does too!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 2/4/2009 4:58 PM (GMT -7)   
Thanks, Ginny.  I guess I'll just have to wait and see what happens.  I'm glad yours grew back...that's encouraging.  What's funny is that in 2007 we made a household move and had a wedding for our daughter all within 6 wks of each other.  DD was living out of state, but getting married in our hometown.  That left me handling all the details including creating the escort cards, menu cards, addressing invitations w/ calligraphy, handling photographer, florist,etc. etc.  I don't know what we would have done without cell phones or email.  The new house required a great deal of work before we moved in, (We are DIYers) and selling our house and organizing and packing up 14 yrs. worth of accumulation was a real chore.....I don't know what we were thinking!  I guess the right house came up and we jumped.  Anyway....my daughter complained of her hair falling out.  We all told her it was just wedding stress....which it was....it stopped after all the hoopla.  Mine DID NOT fall out AT ALL during that stressful period!  Of course - I wasn't in flare then, (just pretty much ever since) but still......
Oh boy - just foggy and rambling.  Thanks for your response!
Lucy
diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 2/5/2009 8:31 PM (GMT -7)   
Dear lucysgd,
I'm losing hair by the handfulls right now. I'm going through some flare....fibro and maybe the lupus. I have Sjogrens also. I take Plaquinil also but have not noticed hairloss as a side effect from that. It is humbling to look in the mirror and notice the really thin areas of hair. I've let mine grow out longer so I can pull it up and cover some of the areas. I'm really sick of doctors dismissing our concerns, whatever they may be. Right now my hands are so sore I can barely move them which is something new. I was diag. with Lupus in 2004 at the Mayo Clinic and the labs from the new rheumy I just saw came back neg. This is very strange to me. I see the rheumy next week and am anxious to see what her thoughts are. I hope you are feeling better today. Good luck with the hair.....I know it can be disturbing.
nurse2

lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 2/5/2009 9:00 PM (GMT -7)   

Hi Nurse - it really is surprisingly disturbing, isn't it?  My rheumy said "Well, I'm losing my hair too.... when I told her about it (the old "you're making too much of it" routine) arghhh!  The labs drive me crazy.  But I thought it was common for them to change (get better) after treatment, especially with Plaquenil.  I think the Plaquenil actually helped stop some of my hair loss.....at least the slow down began after I'd been on it for a few weeks.  I'll be anxious to see what my ANA is at after 6 mos. on Plaq.  Did you ever have hair loss before now?  I hope your hands feel better.  I have that problem intermittently.  Sometimes in the morning I can't make a fist and they are all puffy and clumsy.  It gets better as the day wears on.  Can't hold the phone without getting pins and needles, though.  Good luck w/ your appt. next week - I hope you can get some help!

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 

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