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Regular Member

Date Joined Jun 2005
Total Posts : 119
   Posted 2/5/2009 5:15 PM (GMT -6)   
I have been having alot of pain and light sensitivity in my right eye for the last four days as well as it's getting red.  I went to emerg yesterday because my family doctor is away and the doctor there said that it sounds like I could have Iritis, but because I'm on Plaquenil he called my eye specialist to see about getting me looked at the in next day or so.  I didn't realized until I started reading about Iritis that it can be related to autoimmune diseases and Lupus being one of them.  I guess my two uncles and my grandfather have had this before and all three of them have arthritis and my one uncle has ulcerative colitis.  I'm hoping that my eye problem isn't related to the plaquenil because I really don't want to have to go off of it because it has helped me so much.  I was wondering if many people on here have had a problem like this before. 

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 2/5/2009 6:42 PM (GMT -6)   
HI Kara,
I wanted to let you know your post has been seen!  I don't have any experience with this though.  I'm sure some of our other members will be able to share their experiences with you. 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Moderator for the Lupus and Fibromyalgia forums

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 333
   Posted 2/5/2009 9:05 PM (GMT -6)   
Hi Kara,

I have experienced this a few years ago in my right eye. The opthomologist said it had nothing to do with the plaquenil, but attibrutited it inflammation that comes with lupus. Needless to say I could not work for over a week while I being treated and waiting for my eye to clear up, main reason, my eyes were so sensitive I couldn't even look at the computer screen. My eye would burn, turn red, water and swell up to where I could barely see.

I can understand your pain, truly, it is not something I ever want to have again. I hope you are on the mend soon!


Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

Post Edited (Melissa D.) : 2/5/2009 7:11:47 PM (GMT-7)

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 2/6/2009 11:12 AM (GMT -6)   
Hi Kara, I don't have experience with this but wanted to pass my well wishes along. I pray you feel better soon!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Aug 2008
Total Posts : 431
   Posted 2/6/2009 11:21 AM (GMT -6)   

Hey Kara,

I have not had this problem myself.  My mother got pink eye often.  she was diabetic, and totally paralyzed on her right side.  do not know if she really had pink eye, or something like you have had.  I was not educated enough to give her the best care maybe.  I didn't have internet either though, so I accepted what the doctor called it.

I have the opposite eye problems.  Too dry.  I have to take restacin every day twice a day due to Sjogren's.  Sjogren's dried everything up.  at least it has done this with me.

I did have light sensitivity however, when I first started taking plaquenil, but it was a side effect of the meds, and it went away.

Hope your day will be good to you



Lupus diagnosed 1996, Fibromyalgia diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008, Stroke 11-4-08
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

Regular Member

Date Joined Nov 2006
Total Posts : 27
   Posted 2/8/2009 1:45 AM (GMT -6)   
Hi Kara,  Had this for the first time about a month ago, in right eye...I have been Dx'd with Lupus for 8 years now also have Sjogs.  I also have Diab II and take Plaquenil.  Dr. Rx'd an antibiotic/steroid drop and was gone 3 days after starting meds.  It is alarming, eye pained when I moved eye back and forth, looked like a pink eye but was assured by my gp and opt. dr. that it was not.  From beginning to end it took 10 days.  Hope you are feeling better.  Were you given any medication?

Regular Member

Date Joined Jun 2005
Total Posts : 119
   Posted 2/8/2009 1:21 PM (GMT -6)   
I went to the eye specialist on Friday and he said that I do have Iritis and I have it in both of my eyes. My left eye is a very mild case, but my right eye is a little worse. I have to take prednisone drops in both my eyes 4 times a day and another drop twice a day in just my right eye to dialiate my pupil in that eye so that I'm not experiencing as much pain. I have been working all weekend and I've been walking around half blind because my right eye is so blurry. I have noticed that I don't have as much pain, but I'm still getting some headaches probably because I'm straining to see all the time. The eye specialist told me that this is definitely from having an autoimmune disease and is nothing to do with the plaquenil. I have to keep the treatments up until I see the eye specialist in two weeks. Thanks for all your feedback everyone!

Regular Member

Date Joined Oct 2007
Total Posts : 184
   Posted 2/8/2009 8:00 PM (GMT -6)   
I had this terrible eye infection two times... It was called infection of the sclara... It was so painful and my eye drooped... It lasted 13 days and I had to take steroid drops... Hot rags was very helpful... over the eye.. Oh and I never missed a day of work... and I was cutting hair.....
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