update from Ireland

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Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 2/10/2009 4:11 PM (GMT -7)   
New Van so I am now Ann with the Van!! with purple and pink flowers on! Flower power rules OK!
Bloods back, took a few months to come back CK is 358, the prof. who I have now left sent me the results saying this CK elevation could be due to a fall or a bruise, but considering its a muscle enzyme and I am in flippin agony I think he is wrong here.
My ANA is 1:400. He considers that normal. I DON'T. not feeling so very very ill indeed and in so much pain etc.
+1 protein in urine. NOthing to worry about.
Great innit!?
You are too ill to do anything, the pain is off the richter scale, and they pass off these bloods as normal when most see how unwell I am and how the struggle is so great.
Muscle biopsy back but it was a slightly unsatisfactory body piece anyway and taken from my biceps when my muscle wasting has started in the lower limbs at the extremities not at the trunk end.
New Rhuemy on Thurs. Not expecting much from him. Havent a clue who he is but we are VERY short of rheumies here in Ireland, just have to keep fingers crossed that he is reasonable, especially in manner.
Had a DAT scan last week.
bye for now,
Sorry not up to much, can't be overly funny tonight, am I ever here? But people say I am very positive here in Dublin, if only they saw me when on my own.
How can I prepare for the rheumy folks. Am scared.
Ann
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/10/2009 11:19 PM (GMT -7)   
make a list of symptoms and when they started. take pictures of rashes. have copies of blood work. be calm. remember he works for you. have a list of questions. there is a topic in the resources area I think with great advice. I hope all goes well. I am stuck on prednisone for a few years thanks to the last flare and how my progress is going. it is great to hear from you. I haven't been online much but had wondered.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 2/11/2009 4:13 AM (GMT -7)   
thank you for that advice my friend. I came in from a very difficult walk to a letter from the neuro who referred me to a psychiatrist on our first meeting. I had been in the psych system for FAR far too long and I have a pathological hatred of psychiatrists
He is 'disappointed' that I would not go. But I had got two independent reviews to say I was 'normal' in a psychiatric sense.
he says he knows I present with neuro stuff but this guy knows that stress can play a part and this guy deals with pain management.
huh
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/11/2009 9:45 AM (GMT -7)   
HI Ann,
 
I LOVE your van by the way. I think it is the sweetest, most delightful van I've ever seen!
 
Redrose gave you great ideas on how to prepare for your rheumy visit. Try not to be scared about it. It'll go great (we hope!)
 
Let us know how you make out okay?
 
Love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Moderator for the Lupus and Fibromyalgia forums


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/11/2009 9:59 AM (GMT -7)   
the Van!! with purple and pink flowers on! Flower power rules OK!


sounds grand! have fun

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 6mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex

Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions

"Life is far too important to be taken seriously." –Oscar Wilde, 1982

 


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 2/11/2009 12:05 PM (GMT -7)   
HI,oh Redrose, I have your email eh? Must send you pics of my dinky little van too!! She is called 'Mrs Obama!' the 'Driving force' behind Ann.
Now Redrose and GINNY here is my GOOD news, I have sprung the most juicy, delightful painful hive!!!! on the back of my thigh. WHAT a TIME to Spring a spot, day before a rheumy. WE have evidence!!!!
Well, a hive, Ann comm'on, take it easy, tis a hive, chuck a hive.
But it is A HIVE!
See what despair and desperation does, yep, Ann is esthatic.
Well, not only that but found two lovely wee books in a second hand shop on patio design and thats cheered me no end.
I am ok away from docs I tell you.
xx for now,
shall email you some of my mrs o redrose.
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 2/11/2009 12:30 PM (GMT -7)   
hey, redrose, please contact by email, forgive me but I cannot find yours at present. Everything was set to 'send' but couldnt find your email to send it to.
Sorreeee.
xann k
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/11/2009 1:20 PM (GMT -7)   
Ann, I cannot find your email either. I feel like a ditz but half my address book is gone, vanished and I have no idea why. perhaps gremlins?

well, hubby told me how to recover it and found your email addy. sent a short email.


Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar

Post Edited (redrose77) : 2/11/2009 1:34:39 PM (GMT-7)

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