In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
My husband was diganosed last year with Tumid Lupus. Yes, a man has Tumid Lupus.This is very rare for a man to get this disease, but it has happened. We are going to Duke in May to find out what else can be done to help him. He has muscle pain, fatigue, and many other symptoms. We have partnered with our local Lupus Foundation and are getting great support. Do you have a chapter in your area? This is a life changing disease, but for many things can be done. Just keep the faith and do not let this get you down. Good luck to you
My husband also has Tumid Lupus, we just recently went to Duke Lupus Clinic and saw Dr. Lisa Crisione. When she looked at my husbands rash, she said she had never seen anything like it before and sent us upstairs to see 3 Dermotoligists. They did two biopsys and sent them off also drew 7 tubes of blood and a urine sample. Still waiting on other results, we are not giving up until we find all answers! Keep going to your Dr's and keep getting tested there are answers out there some where and they will be found. Get involved with your local Lupus Foundation they are wonderful people and they can help.
We did get some results back, his white blood cell count is high and protein in urine. Waiting for Dr. to call to tell us what that means. Good Luck to you and all that have Lupus. Keep fighting there will be a cure one day.