Thinkin Help please

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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/14/2009 11:58 PM (GMT -7)   
Ok, so far since our medications are the same... I need ideas of what I can ask the doctor for me to take.
 
Methotrexate-Cant take due to liver
Imuran-Tried, was tooken off due to severe vomiting and gi bleeding
CellCept-Devoloped hives (and that was just this last weeks attempt!)
 
So....pls name drugs that I can possible take I'll make a list and check it twice (with the doctor, not Santa LOL)
 
Running out of options, and I so dont want to do radiation. What is radiation like? I heard wicked stories, dont know if its true.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/15/2009 2:35 PM (GMT -7)   
Hi Smurfy,

I won't be able to help with your meds .. . but you need to post the symptoms/issues you are trying to treat. That might help the others think of suggestions. I know you have your symptoms posted in another topic, but it makes it easier if its right here.

I hope you get some good responses!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/15/2009 6:09 PM (GMT -7)   
Rosie, Aparentely our diseases are treated the same. I need new ideas to ask my doctor about meds I can take. The imuran made me have severe vomiting, gi bleeding. I can not take methotrexate due to my liver tests. I tried taking cellcept last week, I devoloped hives (feeled clammy, part of me heating up, other part cold, headache, and tingling in hand. When looked in mirror I was beet red).
With the prednisone I get hotflashes, wierd stretch makes all over my body, muscle cramps & spasms. Those are symptoms from my medications.

My Body symptoms-- Upset stomach, headaches from severe eye pain, necrotizing gramultous inflamation in my left eye (a rare inflamation disease caused by the auto immune disease), tumors in my left eye, double vision in some ables, triple vision in other angles, single vision looking down and very close to my body.

If I understood right, my doctor wants me to take a medication to put me in remission. However, I either get too sick or break in hives. Hence, why I asked the group what else could be available. Afterall we are treated with the same meds..... And I also said the doctor would check the list twice.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


thickchic
New Member


Date Joined Jun 2008
Total Posts : 15
   Posted 2/15/2009 9:13 PM (GMT -7)   
I take Plaquenil, Prednisone, folic acid, meloxicam, methotrexate,
 
These meds work well for me and for my lupus..other than the metho...maybe u can try one of these.......

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 2/16/2009 5:36 PM (GMT -7)   
I only take one drug and it is nebumatone.......
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