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tntstables
New Member


Date Joined Feb 2009
Total Posts : 5
   Posted 2/16/2009 1:53 PM (GMT -7)   
Hello I am new here and would love to meet other people who are living with lupus. I am 41 and have been diagnosised with lupus since I was 23. The last couple years have been the worse and seems like I am unable to get out of a flare. I have tried methotrexate and plaqunil , steroids and etc thru the years. Some worked for awhile and some cuased severe reactions. I am so very tired and I guess would love to know how many people have gotten thru this.
Thanks Tishka
Today is a new day...and I will live it to the best of my ability!


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/16/2009 7:09 PM (GMT -7)   
Hi Tishka,

Welcome to the forum!! I like your signature.

One thing a lot of us have found helpful . . . is to make sure we aren't pushing to hard. We call it pacing. We pace (alternate) activity with rest. If you are flaring, you might have to rest most of the day. It might be that you can only be active for 5 minutes out of each hour w/o making things worse.

I am very careful to find that balance and I make sure that I am using that 5 minutes wisely if that's all I can manage . . . but I don't push myself to do more until I am tolerating that 5 minutes. (The 5 minutes is just a number, for you it might be 20 minutes or 1 minute). Anyway . . . when I start tolerating the 5 minutes easily, then I'll try being active for 5 minutes every 45 minutes. When that goes well, then I up my activity to 5 minutes every half hour. If at any point, you feel like your flare is getting worse, then you back off a little and wait to increase your activity.

I have had really good results rebuilding my strength this way. Right now, I can't be active for most of the day, but I make sure to take periodic rests. I hope the others have some good ideas for you.

What meds are you using right now? Are you working with a rheumatologist and explaining how much or how little activity you can tolerate?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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