Pulmonalogist Appt

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Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 2/17/2009 11:01 AM (GMT -7)   
Hello Everyone,
 
Well, it's been a long time coming, but my appointment with the pulmonalogist is tomorrow. I have long awaited this day and now that it's here I don't know what to think. The doctors office called this morning to tell me I need to go have another chest x-ray and remind me about the appointment tomorrow.
 
I don't know why I'm writing this, I guess to just to get it off my mind. I'm sure many of you know how it is. I am glad to finally be going to find out what's going on as I struggle everyday with my breathing and burning in my chest, but I'm scared as to what the doc's going to say!
 
I've been having terrible anxiety for the last month or so this coming up is not helping that any either! Yikes...this darn disease, it just doesn't make anything easy does it?
 
Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 2/17/2009 1:57 PM (GMT -7)   
Hey Melissa! I will definatly be keeping you in my thoughts tomorrow! I hope everything goes well and let us know what you find out!

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08


Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


I Can do all things through Christ who gives me strenth! (Philippians 4:13)


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/18/2009 1:00 AM (GMT -7)   
We are here for you hon. Honestly a pulmonologist is nothing. Just blow on a few things lol...try not to break machines like I do :P Let us knwo how it went.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/18/2009 8:02 PM (GMT -7)   
((( Melissa ))) How did your appt go? We always get nervous when we have to specialist because we know what lupus is capable of. Hang in there and let us know how the appt went you can. Hugs
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 2/19/2009 12:08 AM (GMT -7)   
Hello All,

Well, my appt is over, it went well I think. I really liked the doctor, he is very energtic, knowledgable and I felt confident with the way he handled things. I had the breathing tests and all that in December, that went fine, exhausting, I survived, but this is the first time I met with the doctor himself. He compared the chest x-ray from Aug, Dec and then the one from today and said there are remarkable differences. He also stated I have more nodules that have appeared, which is not good, but he was trying to keep a positive note on things and told me it could be as simple as benign arthritic nodules that are common with lupus patients.

The shortness of breath however is not that simple, the heart echo I had back in Dec showed a couple of valves that are leaky and the pulmonary pressure that they gauge is high. So, he is leaning towards pulmonary hypertension! He hasn't totally diagnosed that, but is thinking that I'm in the early stages of that. I will be going for another CT of my lungs next week, then back to see him in month. Depending on how the CT looks then we will go from there. If the CT is good then I will have a follow up heart echo in June to see if the pressures have increased or remained steady, then move from there. If the pressures are on the rise, then they begin to take aggressive action at that time. Augh!

I am not going to get all worked up until I have a firm diagnosis. There is just no sense in stressing myself out at this point, it will only make things worse with this and with my overall lupus. I truly have remained calm thus far and am praying everyday for the strength to continue because I know it's in my best interest.

Thank you all for your support! I truly appreciate each and everyone of you! It's such a relief to have a group of folks I can come and share this with that can relate to what I am going through and won't judge me for venting now and then!

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/21/2009 4:29 AM (GMT -7)   
Hi melissa, I'm sorry I havn't been there for ya. I stink as a friend these days.! I'm glad you got some of you questions answered. I have spots on my lungs but they tested for cancer and said he didn't think so. How was your heart rate? I was just asking because mine is fast with my lung problems and is causing some stiffing in the right side of my lung. So they put me on propanol(sp). and it slows my heart from 90-120 down to between 60 and 75.BPM. I wonder if that would benefit you. I had an echo last week. I don't know what it showed other than my heart is still there. They even listened for it in my belly. I thought maybe it slipped or somthing lol. Keep us informed
love and prayers
carol
 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 

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