You're right, I am on Hydroxyquine 200 mg 2/day which I started in Dec, when I was first told the DX. I am also on Celebrex 200 mg/day and Tramacet 2 q4h prn (sorry Pharmacy talk is normal for me)
DR first thought is was RArthritis, but ordered blood work, and my #s weren't good at all. But I trust in Him and will take this one step at a time with His help...
Thank you for your encouragement, and I will check out the links that you recommended. Red
Sorry to hear about your lupus with the problems being kidney and joints. What type of kidney disease do you have. There are different classifications and usually with lupus nephritis, immunosuppressive medications are needed in the treatment.
Prednison, cytoxan, and Cell Cept are the most common for Class III and IV kidney disease. Have you had a kidney biopsy? What is the results of your 24 hour urine for protein and creatinine clearance?
I have had kidney disease from lupus for 20 years. I have diffuse kidney involvement and in the past had been treated with high dose prednisone initially. I had a blood clot and was unable to get a biopsy so they went with prednisone alone. Later I had the biopsy and the treatment changed to Cytoxan/prednisone...NIH protocol. After several years of being okay, my kidneys flared again. I did my own research and I went to Germany for a more aggressive treatment with Cytoxan which put me in remission for the 10 years but my kidneys have flared again recently.
I am now on Cell Cept and my rheumatologist is closely monitoring my blood work. I am hesitant to do prednisone again and am hoping that the Cell cept will control the inflammation. I am getting weekly blood tests/urine tests.
Your kidneys are not something to mess around with. We do have alot of extra kidney available so thats the good thing for us. Without treatment the outcome is not so favorable. Don't be afraid to ask your doctor questions, do your own research as well.
If I can be of further assistance please don't hesitate to ask.