Results... new problems!

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New Member

Date Joined Feb 2009
Total Posts : 3
   Posted 2/19/2009 1:01 AM (GMT -6)   
I posted about having horrible stomach problems and you all were so wonderful in your replies. Thank you!

I got blood work done on Monday and my doctor (it was my first time visiting her and she is fantastic!) called me the next day with results.

She still has no idea what's wrong with my stomach, but (in perfect Kirsten style...) she found different problems!

Since my last Doctor visit last summer, I have become severely anemic ( which is no fun when alone or mixed with Lupus!) She said anything under '50' is anemic, and I am a '12.' That is with taking a multivitamin daily. So I stocked up on iron and hopefully I will get some energy back.

She also informed me I have something called a double stranded DNA, which signals bad news for my kidneys. She was shocked that no doctor had ever informed me of this before. She said that I will have to be monitored closely from now on to catch early indicators of kidney problems. Has anyone had any experience with this and Lupus? I'm not sure how they're connected or interact with each other. I googled it but only came across jargon-laden research studies that I could not comprehend!

Any help would be AWESOME! Thanks.

P.S. I plan on regularly seeing my new doctor. No more risky skipping of appointments. :)

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 2/19/2009 5:24 AM (GMT -6)   
Sounds like you got a keeper for a doctor, and actually paying attention to the patients. Keep her! hehe. I have no clue in all honestly, but its great that you got such a great doctor. I can say, however, besides iron supplements you can also eat foods with iron like Clams, Pork Liver, oysters, Chicken Liver,
Mussels, Beef Liver, Beef, Shrimp, Sardines, Turkey
Enriched breakfast cereals, Cooked beans and lentils, Pumpkin seeds, Blackstrap Molasses, Canned beans,Baked potato with skin, Enriched pasta, Canned asparagus, please, I'm getting tired I have to continue? just least I knew a little of somethim
Smurfy Shadow
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D

Forum Moderator

Date Joined Jun 2008
Total Posts : 1469
   Posted 2/19/2009 7:16 AM (GMT -6)   
Good Morning! I have the same problem. I do have kidney involvment now and I am anemic. The Doc has me taking loads of Iron to. I wish you luck and serioulsy make sure you get your Kidney funtion checked regulary. Mine was perfect in the first part of December and by January 15th I was in the hospital with acute kindey failure...Watch for signs of kidney failing. The only ones I had was I was getting up about 5-6 times a night to p and there was signifacnt amount of blood in my urine and my urine was also very foaming...meaning lots or protein in it. Keep up updated and you are in my thoughts

Thanks Smurfy Shadow for the list of foods...I have been having trouble finding some good foods with Iron in them. I was never one of those kids that could stay awake in health class...Now i regret that more than anything!! OH well.

I hope everyone has a good day and a good physical day filled with lots of strenth and happiness!!

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C

I Can do all things through Christ who gives me strenth! (Philippians 4:13)

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 2/19/2009 7:34 AM (GMT -6)   
Hi kirsten,

Thanks for the update. Its great that your new doctor is on top of things. When I was severely anemic, I found that I did better taking an iron supplement called "Slow Fe". It releases slowly in your system so it doesn't cause as much stomach distress or constipation issues. I was taking three iron pills a day and it was rough until I found these little helpers. That's when my iron finally started coming back up too.

There is a a "Search Site" window at the top of the page too. You can try searching this website for posts. There are several members here with kidney issues.


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Member

Date Joined Feb 2009
Total Posts : 8
   Posted 2/19/2009 7:49 PM (GMT -6)   


Double stranded DNA is a blood test that makes a definite lupus diagnosis.  This along with low complement levels, specifically C3 and C4 often correlate to kidney involvement.

There are many test results that can give the doctor information on ones kidneys...urinalysis looking for protein, blood, and cast cells. When this is present there may be active kidney inflammation going on.  The only way to know for sure what is going on is by a kidney biopsy. 

One's hemoglobin, total protein, serum albumin can also be low when there is active inflammation in the kidneys.  Your serum creatinine may increase above normal range...although this does not always need to occur.

Your doctor will order a 24 hour urine if she want more specific information on the overall functioning of the kidneys.  You do not feel kidney inflammation which is why the doctors have various blood/urine tests that they order.

If I can be of any further help, please don't hesitate to ask.  I have kidney disease from lupus.  Best of Luck!

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