21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08
Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C
Awwww, thank you Stacie! I will take all the prayers I can get. I wish it were true about the attitude though. It swings back and forth so much it makes me dizzy.
Hey Carol - just wanted to add my prayers and positive thoughts for this next stage. Your attitude is admirable! My husband and I flew out to AZ to help my mother get ready for her move to a retirement home. My body doesn't like traveling much ( I love it - too bad I can't just leave my body at home LOL) I caught a cold/sinus infection - probably from someone on the airplane - then went into a flare for 2 days after being outside in the sunshine for about 20 min. at noon - no sunscreen. Someone just told me Plaquenil makes you more sun - sensitive. Live and learn. Feeling better tonight - but Lord - my attitude was deplorable!
I also just wanted to tell you I had a heart cath a couple years ago and it was a breeze. I worried and fretted for nothing. Blessings to you - keeping you in my thoughts and prayers (and trying to complain less )
Hi Lucy, so was the weather nice in phoenix? I imagine it was. I didn't even own a coat until I moved to oklahoma. Yes that traveling can be tough on ya. I have been so fortunate that I don't get bad in the sun. I have a slight rash on my face that looks like red freckles it never goes away. Plus I got those spider like veins all over my neck and back so I keep them covered. But no flares from the sun thank goodness because I love it so much.
Thank you for sharing about the heart cath. Just looking at it on the website scared me. . Also thank you for the prayers I think that is the only thing that has kept me going for this long. I have been on oxygen since 2003 I just pray I can get off of it some day soon. I hope you get over the infection soon. It is so easy to get sick around people. They have a kids night at church on wednesdays so I will make something or buy something to contribute but there is no way I can get around 20 or 30 kids that have drippy noses and stuff. I miss out on a lot that way.
thanks again for responding
Hey Okie - yes the weather is sublime here. This extreme sun sensitivity is new to me. I'm fair and have always sunburned quickly, but feeling so poorly after being out in it is a new twist. It will convert me to being a dedicated sunscreen user for sure - just hope that will do the trick. Will have to get myself a hat as well.
I hope being on oxygen will soon become a thing of the past for you. You've worked really hard to get to this point - just keep on truckin'! Prayers are powerful - I sure will keep you in mine!
Sometimes we feel our flame of life flickering and growing dim then someone acknowledges who we are and what we can be and rekindles our life with hope and love
Bless her heart! Thank you for updating us! I know Carol has a lot of people praying for her right now!
If "HE" brings you to it, He will bring you through it!!!! This is one of my favorite quotes and feel so strongly for it.
I just want to make this quick. First thank you Pat and Barb for updating everyone and for you phone calls. I would love to thank everyone personelly for your thoughts and prayers but I just can't right now. My lungs do feel a bit better bu I woke up with herpies on my face and glands so bad I can't touch my neck without pain pills. I've only taken to pain pills since thursday because it's not the best for respitory problems. I am out of anti-b and afraid my lungs will get worse again. Someone is coming over hopfully later to see if I should go back to the hospital. It won't be the same one though.
ok I'm out of energy
love you all thank you all