Reflux and Irritable Bowel Syndrome

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smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 2/21/2009 8:16 PM (GMT -7)   
I finally got my test results back and found out I have two more things to add to my collection of health problems. Reflux and possible Irritable Bowel Syndrome. I am on a medication for the Reflux and right now my doctor is trying a natural remedie for the Irritable Bowel syndrome to see if it makes a difference.
 
My family doctor claims that the Reflux can cause all kinds of pains, including breathing problems, pain in my chest, back, dizziness, upset stomach, etc. I am going to start researching Reflux and IBS and collect as much informaton as possible.
 
Is anyone else dealing with these along with Lupus?
 
Hope eveyrone is having a good weekend.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 2/21/2009 9:16 PM (GMT -7)   
Connie,
 
Acid reflux is fairly common with some AI diseases.  I have mctd which includes lupus, scleroderma and polymyositis.  It is common with myositis diseases and I have an advanced stage of it called Barretts esophagus.  Acid reflux can progress into GERDs and then Barretts.  I had no problems before getting sick.
 
Treatment is a PPI like aciphex and doctors will usually want to do an edoscopy if they feel it might be more than acid reflux.  Some patients experience all sorts of symptoms and pains but the real danger is if you do not treat it and it progresses into Barretts or worse...lower esophagheal cancer.  Fortunately treatment is usually effective and making changes in diet also help.
 
Bill

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/21/2009 11:25 PM (GMT -7)   
I live on a tripple cocktail for acid reflux in addition to Rolaids and Pepcid AC every day :S. Sleeping elevated helps too. When you feel your acid reflux, note the food you had ate that day and try to find out whats acidy for you. I react to potatoes, tomatoes, v8 juice, pizza, orange juice, oranges, etc. Kim chi fired me up tonight lolol.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 2/22/2009 3:43 PM (GMT -7)   
Thanks BIll and SmurfyShadow.
 
I am going to start keeping track of the foods I eat and how it affects me, what I drink and how it affects me, etc. My doctor told me to stay away from caffeine and pop etc, which is hard for me. I am addicted to Pepsi and although I can still drink Pepsi, I am not to drink it after 4:00 in the afternoon, which is tough for me.
 
I didn't realize that there are so many foods and drinks that can affect Acid Reflux.
 
Bill I am sorry you are having so many problems with your's. I have no idea how long I have had it for, at least 6 months that I have been having symptoms, but I can't remember if it was longer then that.  I hope that mine was caught in time before any real damage was done.
 
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 2/22/2009 4:05 PM (GMT -7)   
Connie,
 
My Barretts is no big deal unless I get cancer.  It just means meds for life and occasional endoscopy exams which are not that bad.  This is just one of the things that was caused by polymyositis and I have to cope. 
 
Everyone should keep in mind that acid reflux is not always caused by your diet.  If diet is what is causing the problems then you should clinically look at it and adjust.  If you absolutely cannot give up certain foods and beverages then limit them and don't ingest them late in the day.  Drink caffeine free Pepsi and drink decaf coffee.  I love coffee and grind my own beans but most of what I drink is decaf and is very good.  No buzz but I never drank it for the buzz anyway.  Meds help and even some OTC ones are efective for milder cases.  If your condition is chronic spot treatment with antacids is not very effective.  Taking PPI meds lowers acid production and reduces the problem.  Sleeping in a slightly elevated position helps as well.
 
I had no symptoms and did not know anything was wrong until the docs told me.
 
It does not pay to worry or think "why me?"  This is just a speed bump compared to what I had to deal just 3 years ago.
 
Bill

elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 2/23/2009 11:37 AM (GMT -7)   

I have severe reflux and IBS (don't know if they're actually related or not).  My reflux has continued to progressively worse over the years.  I've been on PPIs for about 7 years now.  I supplement with 300 mg of zantac every night.  I also have to elevate my bed before lying down.  I get an upper endoscopy done every couple of years to look for Barrett's, but so far I've not had any signs.  I do, however, always have erosive gastritis and erosive esophagitis, which causes Barrett's. 

As someone already pointed out, reflux is commonly associated with certain AI diseases (e.g., SSc, MCTD).  I currently have dx RA, but my sx are leading towards either MCTD or SSc.

My GI doctor told me once that diet has little to do with reflux.  Your stomach produces acid in response to any type of food or liquid (even water).  That being said, I do tend to avoid very spicy things (although I love mexican food), and I do not eat anything heavy in the evening prior to going to bed.  In fact, I try not to eat anything for at least 3 hours before bedtime.

I sympathize with your pain, though.  Acid can be incredibly painful, and even when I'm on the PPIs, and acid is greatly reduced, the reflux continues (without the acid) and is almost as uncomfortable as the acid.   I know that my mother also had this problem and she eventually got to the point where she could not lay down to sleep at night.  She had to sleep in a chair sitting upright. 

I hope that some simply lifestyle changes can help you, and you feel better soon.

 

El


Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 2/23/2009 7:27 PM (GMT -7)   
El.
Wow it sounds like you have it tough with this, I am sorry about that. Now that I know what it is going on with me and what is causing the pain, it should be a bit easier to deal with  I think. At least I know what I am dealing with now.
Last night was a rough night, I sleep with two pillows and have always had to sleep like that, my head has to be up. I can't lay flat. It is very painful.
Thanks for answering and I'll keep you posted as to how I feel.
Connie

 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 2/25/2009 1:07 PM (GMT -7)   
Hi I had acid reflux and have IBS and now diverticulosis throughout the colon, they said was from straining from unmanaged IBS. I'm glad you are getting the IBS treated to prevent permanent damage like I have. I take Bentyl, which works well. I too sleep with head elevated and am very picky about what I eat. I eat one liquid smoothy meal a day and eat a lot of the same foods alot, things that don't bother me. Drinks do seem to be the most problematic, my midday smoothies help and also help me get adequate vitamins and protein and cool my throat.

I am afraid of GERD because my grandma died from it as a complication of severe advanced liver disease she didn't even know she had. Her blood vessels ruptured and she drown. So I'm terrified of it. It is a common result of liver damage, she had portal hypertension, where the blood couldn't get through the liver well and was sort of trapped in the top half of her body, causing those blood vessels in her throat to swell, and the swelling led to erosion of the esophagus. She also was around bleach in the end, which may have really burnt her throat and caused the problem.
They had her bathing a stubborn wound in bleach.

So cleaning products I suspect could irritate it as well.

I'm sorry you have the "terror at both ends" and trust you will find a way to manage it without too many sacrifices. Prilosec works great for me along with those super pepcid tabs that have like everything in them. I have no erosion, knock on wood, and very few episodes of any reflux unless my liver is high due to meds or not watching my diabetes and I can usually get through them with a soft diet for a while and meds if too bad.

I hope you feel better soon!
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 2/25/2009 6:34 PM (GMT -7)   
Marji, I am so sorry to hear about your Grandma. Lupus certainly is a scary disease and seems to carry with it lots of scary complications. I am hoping that I can get things under control fairly quickly. Now that I know what is going on with me, I am using Gaviscon when I have Heart burn and it helps quite quickly. I am having a hard time cutting back on Pepsi,lol, but I am doing it because I know how it makes me feel. It ticks me off that I have to cut back on it,lol. That sounds funny, after all it is only a soft drink, but it is my only vice, I don't drink, smoke, go out and party or anything. I enjoy drinking my pepsi and I am going to miss not drinking it like I did,lol.
 
Thanks for letting me vent here and I hope you have some relief from your problems too.
 
Have a good night,
Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 2/25/2009 7:50 PM (GMT -7)   
Hey connie, I have switched to ice tea, I like the Crystal LIght White Tea with Blueberry and added Antioxidants. It comes in the little pouches you add to a bottle of water, though I make up a small pitcher. My doc wants me to have lots of antioxidants for the liver, since the liver can't always produce enough. The ice cold tea is yummy yummy and soothes my sore throat. I guess technically ice tea is not the perfect solution, but it beats just always drinking water and drinking carbonated drinks. Now I don't miss the carbonation. Making my own ice tea from scratch the Southern way is really good too. Tannins used to be the old wound healing thing way back in the old days. I don't know how docs feel about it now, but like you, I dont drink, smoke, and eat a restricted diet, so this little pleasure seems relatively harmless in moderation.

My poor grandma got called an alcoholic and never ever drank because back then they didn't know anthing about fatty liver and assumed anyone who died of cirrhosis and it complications was an alcoholic. The family knew and it is a hereditarycondition in my family that skips no one. The GERD comes with it and its a bummer.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 3/4/2009 6:22 AM (GMT -7)   
Hi Marj. I have started drinking chocolate milk and it seems to be ok. I am going to keep track of how different things make me feel but that is a real pain in the butt.

The ice tea sounds good. I have some here that I could make up, I may just try that.


Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.

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