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hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 2/23/2009 7:33 PM (GMT -7)   
I posted this on the chronic pain page as well. I have been battling pelvic pain for year. I have had many test procedures, and surgeries. Well the latest is this rash that I have. I have had it several times over the past several year. It is round, about a quarter in size, red and lighter in the midde. Like I said it comes and goes. I still have extreme pelvic pain. i am going to start a journal to see if the pain is worse when I have the rash. Dr. Said it was from pain meds. I take 3 - 4 a day. I also noticed that my urine has a very strong smell lately and is very cloudy. Can this be symptoms of Lupus. Any help would be appreciated. My doctors must think I am nuts. My file is very thick. But all the test, procedures have not helped. I am at my wits end.
Thank You
Diagnosed Chrons Disease 07, herniated discs severe siatica,
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds, lyrica, trazodone, vicodine, amrix
 


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 2/23/2009 7:37 PM (GMT -7)   
Sorry , I have had pelvic pain for over 3 yeas, not a year. I have the rash right now. I am having plastic surger to cancer from my face. Will they not do the surgery if I have the rash, can it be dangerous if it is lupus?
Diagnosed Chrons Disease 07, herniated discs severe siatica,
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds, lyrica, trazodone, vicodine, amrix
 


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 2/23/2009 7:59 PM (GMT -7)   

hydrangea,

when i first started having rash issues, they told me it was actinic keratoses. Did the whole cryosurgery thing to remove it since AKs are pre-cancerous. Froze multiple spots on my face and arms . . . which did nothing except irritate my skin further. Instead of it taking 2 weeks for the cryo to heal, it took about 4 months for the scabbing to go away and, lo and behold, my skin problems were still there and not improved at all. It is very possible they will go ahead with surgery, even if you have a rash - especially if you are having it done as an outpatient at your dermies office.

Pelvic pain with cloudy urine? Some sort of urinary tract infection, maybe . . . I would have it checked out. Really, truly . .  .


AlienWife
There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
Albert Einstein
Dx: SCLE, Sjogren's, Reynaud's, Peripheral Neuropathy


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/24/2009 5:32 AM (GMT -7)   
Hello Hydrangea,
 
Your chron's will cause a lot of symptoms very similar or exactly like Lupus.  It's because both diseases are autoimmune.
 
I agree with Alienwife, get your urine checked asap.  Is the pelvic pain in your bladder?  Do you have pain on the flanks of your mid back?  Just thinking about your kidneys....
 
Keep in touch and let us know how you make out,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 2/25/2009 6:15 PM (GMT -7)   

Thank you for the responses. I had my surgery for skin cancer yesterday, it went well. It was in the O.R. and took about 2 hours. I have about 50 sutures.  Anyway, the nurse did notice the rash on my chest, after surgery. She suggested that I get it checked out.  I will be having my Sed rate checked tomorrow. All these symptoms just seem always to be pointing to Lupus. I know that I am not a doctor, but would like to get to thebottom of this. I will also be having my urine tested.  I dought that it is a UTI, not painful when I urinate, just very strong smell and cloudy. Any way, I will let you know what test turns up. I realize that crohns is also a autoimmune, so it does make sense to me.  DOes anyone else have vhronic pelvic pain assosiated with lupus?

Thank you


Diagnosed Chrons Disease 07, herniated discs severe siatica,
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds, lyrica, trazodone, vicodine, amrix
 

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