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Regular Member

Date Joined Feb 2009
Total Posts : 21
   Posted 2/23/2009 11:48 PM (GMT -6)   
Hi, this is my first post, and I am hoping to gather some information. For 10 years now I have been diagnosed with hypothyroidism. My MD put me on synthroid at a very low dosage. Throughout the years, I felt as though my medication was not working. As I followed up with my MD, he would perform labs regarding my thyroid and increase my medication accordingly. I am now up to 224mcg perday. Two weeks ago I followed up with my MD again because still, I feel no differently. My symptoms are, joint pain (hips, knees, shoulders, neck and hands.) My hips being severe at times. I also have hair loss, numb feelings in my hands and feet. Pins and needles in my hands and feet. Severe fatigue. No matter how much rest, I can never get enough. Low grade fevers. Night sweats. And finally. my entire body itches. It is an unrelievable itch. When I was pregnant, I had cholestasis...this made my body itch. I am not pregnant, but I have the same itch. All this time, my doctor has been telling me that these symptoms are due to my thyroid. I don't think so. He finally ran some different lab work. My results: ANA=homogenous pattern 1:320. My CRP was normal. I don't know if I have lupus, my mother had arthritis and Rheumatoid arthritis, and my sister has Lupus herself. Any suggestions? I will finally see a Rheumatologist on March 19th. Any advice would be greatly appreciated.

Forum Moderator

Date Joined May 2005
Total Posts : 6942
   Posted 2/24/2009 1:08 AM (GMT -6)   
Welcome to Healing Well!

The next step is definitely to see a rheumy, so you're on the right track!

One of the permanent threads on the Lupus Forum, titled "Lupus Resources" includes a collection of hints for seeing a rheumy for the first time -- what kinds of symptoms to put on a list for the dr, etc. They should take a fairly detailed medical history (usually about an hour) before you see the dr. Lots of other info there and at the other links below in my signature.

Please feel free to come back & ask if you have more specific questions.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 2/24/2009 7:27 AM (GMT -6)   
Hello Momof5!
Another welcome!  Like Lynnwood said, you're on the right track by seeing a rheumatologist.  You have quite a strong genetic link with autoimmune diseases.  Your ANA is definitely in a range that will make your doctors "perk up". 
Keep a diary of all your symptoms. Take pictures of any rashes you get.  Have a detailed family history ready for your rheumy.  Most of all, if you don't get the right treatment from this rheumatologist, drop him/her like a stone and move on to a different one. Don't stick it out with a specialist that blows you off!
Keep in touch and ask more questions if you need to!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 2/24/2009 8:03 PM (GMT -6)   
Hi Momof5, welcome! WOW 224 mcg of thyroid med!!!! Your symptoms and positive ANA could indicate lupus so it's good that you are following up with a rheumy and the appt is not far off! The others have given you great advise and I have nothing to add, just wanted to welcome you and tell you to feel free to ask more questions.
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Feb 2009
Total Posts : 21
   Posted 2/25/2009 11:51 AM (GMT -6)   
Thank you all for your welcome and suggestions. I have been feeling as though I am going out of my mind with all of my symptoms and my doc telling me it is just my thyroid. March 19th can't get here soon enough. I am so glad I came across this forum. Bless you all ~Diana
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