Hi Lulalann! I'm new here too but have had SLE for 15 years. I remember my first rheumatologist well- if I ever see him again, I'll sue him. He told me I was working too hard and maybe depressed and should see a psychiatrist! This was with a +ANA, false positive VDRL and about 11 of the symtoms on the old SLE list. But I found a second one that was wonderful and got me through a difficult pregnancy and my lupus flaring very badly.
To me, it sounds like you have a lot of symptoms of lupus. Everyone is different- some people aren't sensitive to the sun, but I'm very,very sensitive to the sun and fluorescent lights. Labs come back positive, then negative. But you do have a lot of symptoms to deal with, so be sure to write them down and write down any questions you might have. Best of luck and post again after your appt.