Experiences...comments for red skin etc?

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Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/24/2009 2:20 PM (GMT -7)   
Hi there. Not dx yet but have been trying since sept to get answers. Im just wondering if anyone experiences a red rash..flat similar to sunburn from fluorescent lighting on their body? Mine happens on my face, arms and chest really whatever is exposed which is normally those areas. I also had an episode a few nights ago. My bf and I were sharing an intimate moment to put it nicely and all of a sudden I broke out into a sweat and felt "off" like something was wrong. Seconds after my heart was racing, I was breathing heavy and hard, I was sweating profusely and couldn't control my body...it was shaking and I was getting chills. At first my bf said I felt hot but I quickly turned cold and clammy feeling. The only other experience similar to this was a week before when I was sick with I guess a stomach bug and was feeling nauseas. I got dizzy standing up and started blacking out. When I hit the floor I broke out into a sweat similar to the one mentioned earlier but it wasn't as bad and quickly subsided when the dizziness went away. I didn't feel any dizziness with the other experience but I was out of it some. I have a fasting glucose of 72 so my dr said mine can drop into the 50s and 60s sometimes. We checked my sugar anyway and it was 98. Anybody know what this could have been? I just chalked it up to hormones in lupus? Thanks and take care. :) -Brit
*Wifey & Mommy*


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 2/25/2009 8:17 PM (GMT -7)   
I don't know but as someone with hypo and hyper glycemia (high and low sugar) I would question him. I am very sensitive to small changes in my sugar for some reason. Below 80 and I feel horrible, above 120 and I sweat and get anxious and feel bad high sugar and my bp goes up.

I am using a progesterone cream and have had similar issuesi in the beginning with it. Almost stroke like problems and severe dizziness and doublevision. Some women are very sensitive to change in hormones too and I would talk to your hormone specialist about adjustments. My sugar was 120, high for me, and I was freezing. I only feel realy good when my sugar is 100-110

For example today I was freezing, my feet were horribly cold, I had horrible chills and blankets weren't helping. It came time for me to take my vitamins and put on my progesterone, afterwards I was changin out ofmy flannels and my temp was normal.

You might get a bloodpressure cff and take it when these episodes happen. My blood pressure is tiedto my sugar, if the sugar is low my bp is low and I can getdizzy and black out. If my sugar is high, it goes up, I get hot, anxious, don't feel well, feel nauseaus, and have to exercise to bring my sugar down. If your sugar is dropping low and causing problems, they might look into meds to stabilize it. On glucophage, my sugar is dead normal all the time, no more bouncing around. You might ask about that. Low sugar is really unpleasant and eating sugar can cause it to spike high in me which is equally unpleasant.

Did they say you have "metabolic syndrome X" or "prediabetes"? There are meds for these conditions to prevent progression to diabetes, though many docs aren't hip to them.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 2/26/2009 6:36 AM (GMT -7)   
Hello and thanks for the comment. All my dr said was my fasting glucose was 72 which is a little low and that I could have blood sugars ranging in the 50s or 60s if I didn't eat. I will have to look into that though. I went to see my neurologist yesterday. Everything went exactly how I thought it would. He said my pulses in my feet were fine so instead of it being a circulation problem its probably vessel constriction which happens with raynauds. Because of my other symptoms its probably something that causes raynauds such as lupus which he mentioned or autoimmune. So hes doing a full blood workup and a few tests Ive never had before.. a protein electrophoresis, CPK and a few others. Hes also testing for lupus, ra, lyme and hiv. I am also getting a back xray to rule out an injury and a nerve test done on my legs march 11th at his office which I hear is somewhat painful..joy lol An MMG test I think its called. I see my new primary doctor tomorrow so well see what happens there as well because the neuro said the rash which I had at the office was a little out of his field. Just thought Id give yall a heads up and thanks for your support Take care. -Brit
__________________
*Wifey & Mommy*


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 2/26/2009 7:21 PM (GMT -7)   
Metabolic syndrome x also known as prediabetes or hyperinsulinemia or insulin resistance is when your cells, from diet or hereditary or other reasons become resistant to insulin. So when you eat carbs or sugars your pancreas (actually islets of langerhons) have to produce much much more insulin to metabolize the carbs and sugar. Because I produce so much insulin, when I don't eat, I get hypoglycemic, so my fasting sugar is low like yours, and when I do eat, my sugar goes up some but doesn't skyrocket like someone with full blown diabetes who no longer can make insuiln at all. A glucose tolerance test showed my sugar go up to 180 and higher after glucose administration, but I had hyperinsulinemia and hypoglycemia long before I had high sugar.

I did not show up as diabetic on the hb1 or whatever that test is for diabetes and never do, but my very smart hepatologist ordered a simple test of blood insulin. Its a cheap test and any primary care doc can order it.

Since hyperinsulinemia can be corrected with diet and meds, and since it can lead to diabetes, fatty liver leading to liver transplant,and a host of other problems, I wish pc docs would have included it in any middle aged person's regular labs at least once in their life. I think awareness of diabetes and fatty liver (NASH and NAFLD) will come to the forefront because the cost of liver transplants and diabetes and all the problems it creates is expensive. Its sad I had to go to a reknown hepatologist to get the simple test run and he seemed very frustrated that all my medical team could not run this one very simple but important test.

The good news is that now I'm on medication, and since I do go hypoglycemic, steroids have been less a problem. So I guess there is a silver lining.

I really really feel for you on the EMG muscle /nerve test because mine at Mayo took two hours on one shoulder and lots of pain and once one doc did it a second came in and did it all over again. They went really deap too and it hurt. I have also had the one that shocks the bottom of the feet, nerve conduction studies, which hurt really bad on me and they don't know why, now they claim fibro, but that doesn't explain why I can't walk after. Most people dont have any trouble with that test.

I had a serum electrophosphoresis and I think its the same because they look at the proteins. It was just part of bloodwork for me. I've had it twice since I have polyglandular dysfunction it puts me at risk.

Sounds like you have a good doc. I hope you don't get too worn out and that they figure out what is wrong.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 3/2/2009 12:52 PM (GMT -7)   
Hi there and thanks so much for all that info! I often wondered about the sugar problems myself. I will def have to tell my bf because it really scared him that night. I am getting a A1c test I think that is the one for diabetes he is testing me for. I haven't gotten the bloodwork done yet because my nerve test isn't until march 11th and I wanted to get everything back together, plus, Im not flaring so I dont want my levels to be negative or "false negative" just because Im not flaring and the problems aren't apparent. Any suggestions? I was also wondering how long it takes to get the results of the nerve test. I had heard the test was painful so Im hoping my bf can take off work that day to be with me through it because I dont want to do it alone. One more question, what did you mean the steroids are less of a problem now that you are on hypo. meds? I am just so ready for a diagnosis and dont understand how this could be anything else but lupus. I have researched and tried to disprove it so much but even now with my neuro its coming up. Im so frustrated and so tired and just so ready to be told "You have lupus here's your steroids." lol Ill be glad when this is over. Thankfully I feel good now although Ive had some spotting the past 2 days just once each day but my monthly was over 2 days ago so Im not sure if its from the blood in my urine or not. Its brown in color not bright red like usual. Not sure what to think but anyway, im rambling now lol Thanks again and take care! Hope you are feeling well. -Brit
*Wifey & Mommy*

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