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conorsmom
Regular Member


Date Joined Feb 2009
Total Posts : 20
   Posted 2/27/2009 10:34 AM (GMT -7)   
Well, I heard from my friend that a co-worker has acupuncture and feels like crap the next day but then feels great. It's been 2 days since I had it and I'm still feeling like crap. That woman doesn't have lupus or fibromyalgia for that matter. I think y'all were right about acupuncture and fibro- they just don't mix well. I'm cancelling next weeks sessions. I'll do water therapy because I know that works really great for me. I had to cancel my nephrologist's appt this morning because of my fibro pain and a migraine headache.  But I am going to go into the city to get my labs drawn and then to my internist to get my script for water PT. I still don't feel great but at least my headache is almost gone. Have a great day!
Diagnosed with SLE 1994,Fibromyalgia 1994,Interstitial Cystitis 2000,lupus pneumonitis 2002,peripheral neuropathy 2002,cerebral anoxia 2007,
 
I can do all things through Christ who strenghthens me. (Phil 3:13)
 
 
Go Gators!


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 2/27/2009 7:51 PM (GMT -7)   
You're feeling unwell because your body is now in detox mode

You need to move the toxins through your liver so you can feel better.
Drink lots of real lemon water. Take Milk Thistle and if you can, sweat.

I'm a really strong believer in natural healing. I say. give it another shot, but try to detox well before the appoint.
My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


conorsmom
Regular Member


Date Joined Feb 2009
Total Posts : 20
   Posted 2/27/2009 8:18 PM (GMT -7)   
Thanks for the advice- my husband is mixing lemon water right now, but I've never taken Milk Thistle,so we'll have to go the herbal store tomorrow.  Is Milk Thistle available at Wal-Mart? I know they carry a lot of herbal meds, and we have to go there tomorrow so I'll look there first. Thanks again- it makes sense! Sandy:)

Diagnosed with SLE 1994,Fibromyalgia 1994,Interstitial Cystitis 2000,lupus pneumonitis 2002,peripheral neuropathy 2002,cerebral anoxia 2007,
 
I can do all things through Christ who strenghthens me. (Phil 3:13)
 
 
Go Gators!


lucysgd
Veteran Member


Date Joined Jun 2008
Total Posts : 669
   Posted 2/27/2009 10:12 PM (GMT -7)   

I have to agree about the de-toxing.  I've had the same experience with both neuromuscular massage and acupuncture.  In the very beginning, it does seem to trigger a worsening of symptoms.  But try to realize it's the beginning of the process, and just like beginning an exercise regimen or a healthy diet - it doesn't feel so good at first, but eventually your body begins to feel the improvement in a variety of ways.  It took me 4-5 sessions of acupuncture for my back before it finally began to really reduce my pain and make me feel better.  It's so frustrating because it's so often self pay and not cheap.  You wonder why you're paying to put yourself through this.....but for me, it was worth persisting.  Even most medications don't work overnight - and the ones that do usually have a not so good impact elsewhere in your body.  Not everything works the same for everybody, to be sure....and we all need to listen to our own bodies.  Just posting because I almost quit the acupuncture as well until someone who'd had it told me it took a few sessions to get to the good results.  That was my experience also.

Lucy


diagnoses:  mono 1972; postviral CFS 1997; fibro 1998;  UCTD (dx limbo) 2007
meds: Plaquenil 400 mg, occasional low dose xanax for sleep aid, artificial tears w/ ointment at night, Advil/aspirin prn
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 2/28/2009 6:13 AM (GMT -7)   
Hi Sandy. I just saw your acupuncture post. I have SLE and fibro and love acupuncture. Last spring I was in such terrible pain and not even my Celebrex or Tylenol Arthritis helped, so I tried acupuncture. The key is that you have to go for at least 3 visits in one week before you get full benefit. It takes time to get things aligned. I'm not a new ager per se and I have a BS in medical technology, but this worked for me. I went 3 visits per week for 3 weeks, then 2/wk for 3 weeks. Now I go prn and when I do, it's 3 for 3 weeks. I don't care if it's psychological. It just works.  Just thought I'd add my experience. I hope you find relief soon. Love, Butterflake  

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 2/28/2009 11:17 AM (GMT -7)   
Yes, they sell Milk Thistle at wal mart or any good grocery store.

Take it only once a day, I find 3 x a day too much.

Just keep detoxing and keep a clean diet. You will feel good in no time
My beautiful inspiration
 
The world breaks every one and afterward many are strong in the broken places


 


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/28/2009 10:37 PM (GMT -7)   
Keep the appointments, if you dont want to do the accupuncture ask for ACCUBEADS. Its a pressure point technique where they put beads with medical tape in your ears on nerves. A person has over 9 nerves in each ear. I do both accupuncture and accubeads. It does not hurt a bit. Remove the beads after 3 days. And I do believe you are detoxing.

 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D

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