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Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 3/1/2009 11:24 AM (GMT -7)   
Hello Everyone,
 
This is a topic I am hoping I am not alone on and one I never in my life thought I would be writing on, anxiety! I have been in this flare or condition whatever you want to call it since June and been on STD since the end of September, my mental state was fine in the beginning other than lupus CNS. That said as time went on I began having anxiety at night when I would try to go to sleep, to the point that I would literally end up staying up all night and watch tv or read whatever, I just could  not go to sleep. Everytime I would try I would get that horrible feeling that something bad was going to happen, you know that feeling like you just got on a roller coaster and have gone down the first big hill and not sure what is up ahead of you? That feeling in my chest and stomach. During the day I would feel fine. I have a prescription for xanex and I am to the point where I have to take two 0.5 pills to get to sleep at night! I got this approved through my rheumy, he told me to double up and we would discuss the situation at my next appointment (which is tomorrow).
 
Well, here within the last two weeks I have started having anxiety during the day as well. It is horrible and I am almost to the point of tears and don't want to go anywhere because I don't want to be caught in that situation while in front of anyone. Well, now I am having to take xanex during the day, because I find myself with that roller coaster feeling in my chest and stomach and feelings of something really bad going to happen when!
 
Does anyone know why this happens? Is it because I have too much time on my hands? I know my mom got anxiety really, really bad with her COPD, I felt so bad for her, but I never really understood what she was going through, perhaps this is payback...LOL! Seriously though, I can't get my head around it literally! I hate the fact that I have to take this medicine to feel comfortable in my own skin. sigh. Thanks for listening.
 
Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 3/1/2009 2:04 PM (GMT -7)   
I was told that anxiety is a part of lupus -- I too have times when I am too anxious to sleep, and xanax is what helps. It is a tangled & hateful situation -- looking forward to seeing what your rheumy says next.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 3/1/2009 3:37 PM (GMT -7)   
Hi Melissa,
 
I know the anxiety issues all too well.  They are part of Fibro as well.  Too much cortisol in our systems (Fibro causes that).  Then you add prednisone on top of it.... Bad combo. We're set up to have anxiety.
 
My anxiety is almost totally health related.  I used to have horrible anxiety attacks, PTSD, depression.  The whole gamut.  My doctor put me on Zoloft and Neurontin.  HUGE improvements. I don't have anxiety anymore, and the Neurontin has really helped with my Fibro pain as well has helping me to taper off of the Benzodiazapine I was taking.  Have you ever tried Neurontin (Gabapentin)? GABA is the natural, feel good chemical in the brain.  So if we add a little via a pill, it really helps. We Fibromites tend to be a bit short on GABA.
 
You're definitely not alone in the anxiety category. I know how horrible the feelings are. Let your rheumy know about your troubles and ask them about the Neurontin if you're curious.
 
Long, deep breaths Melissa.  Hugs to you!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 3/1/2009 3:48 PM (GMT -7)   

Thanks for your reply ladies. I too will be interested to see what my rheumy has to say. I looked up neurontin, I was surprised to see it is a antiseisure medicine. I guess that makes some sense, as I have been prescribed lyrica for my fibro before, it to is a antiseisure med. I guess I'm confused on how that would help with anxiety, but hey if it helps I'm all for it. I will inquire tomorrow at my appt.

Melissa


Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 3/2/2009 9:02 AM (GMT -7)   
Hi Melissa. I hope your rheumy appt goes well. I've been seeing a shrink for 'bout 6 years. I wouldn't be here without his team of great psychiatric nurses. I have occasionally seen a psychologist, but I must have anti-depressants. Even with all the drugs, I have an interesting anxiety problem though. I clench my jaw and push my tongue up against my teeth. I thought my tongue was swollen, but found I developed "scalloped tongue" from the pressure. I now have to think "teeth open, teeth open" to keep my tongue from getting ridges. I've been wanting to learn meditation. I'll let you know if I do. Let us know how you're doing. ((hugs)) Love, Butterflake 

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 3/2/2009 9:12 AM (GMT -7)   
HI Melissa,
 
Yeah, it's funny how certain drugs will help for situations they don't seem to go with!  Your rheumy can explain how they work much better than I can try to explain it.  But the main thing about Neurontin (Gabapentin), is that the GABA protein in our brains is insufficient in those with Fibromyalgia.  GABA is the natural feel-good, calming, even-keeled chemical in our brains.  When we don't have enough of that we suffer anxiety.  So adding GABA via a drug will help to calm us down and give us the chemical we need. Neurontin also suppresses the peripheral nervous system.  That is where we get all our Fibro related pain from.  Neurontin has given me an incredible amount of pain relief.  You can go as high as 2700mg per day of it, but I only need 600mg.  I really notice a horrible difference if I miss a dose at night.  The next day I'm a yettie!!!
 
Oh, and Neurontin is cheap!!! Yahoo!
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 3/2/2009 11:59 AM (GMT -7)   
Well, I had the alarm set for 9am to get up for my doctors appt, the phone rang at 8:30am, it was the receptionist at my doctors office from rheumy's office, she tells me my doc is snowed in somewhere and they are going to have to move my appt to the 23rd! Dang it....and that's not really what I want to say! So, now I have two more weeks to wait before I can get some kind of answers, not what I wanted to hear.

Melissa
Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis

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