This is me again.....and mind you - I was only seeing him for the polycythemia rule-out. He asked all the questions.....brought up all the fibromyalgia/rheumatology stuff, wanted to know how it started, who said what, what my symptoms were yada yada. I simply answered his questions. Geesh - I think I'll go eat some chocolate!
it's all in your head . . . that's why you gained 20 pounds in a week
it's all in your head . . . that's why your liver is showing signs of shutting down
it's all in your head . . . that's why your kidneys are functioning at about 30%
it's all in your head . . . that's why you have chronic rashes that won't go away
it's all in your head . . . it's all in your head
it's all in your head . . . go outside . . . get more sunshine . . . get more exercise . . . eat less
By the way . . . how was the chocolate? Need more? I have a Belgian mother in law who sends chocolate on a regular basis ;)
Thanks everyone - it helps so much to know that people have the same experience and understand how it made me feel. I should use the present tense because I'm still steaming about it. I will talk to my pcp when I see him next about this. The hemo had a medical student observing with him and I have wondered if it was all for his benefit. It makes me cringe to think this was supposed to be a "teaching" moment. Blechh!
Alien - Well put! Sounds like you've been subjected to an even more profound cladderhead. And I never turn down chocolate....lucky you to have such a rich source!
Ginny - I don't think I've been tested for APS - will ask the rheumie when I see her in a couple mos. Good luck with your eye/vision issues. The hemo asked me what my biggest fear was. I said losing my vision - and never feeling any better than I do right now. Silly, crazy, me.
Marji - you are so right. I hope you get some answers and that everything will be AOK.
Thanks all for the encouragment!
Lucy, how insulting to be treated like that by anyone, much less someone that you went to for help. If it's any consolation, many of us have been accused for it "being in our heads" for various ailments, but especially for AI disease. My mother had MCTD and was told for years that her symptoms were in her head. She died of interstitial lung disease as a complication of MCTD in 2000. By the time her doctors took her seriously, her disease was very nicely progressing.
If you're still concerned about the blood issue, please go seek another opinion with another hemotologist. My sister has low WBC and platelet issues, and her first hematologist was a kook. She was tempted to just give up and let it go, but I talked her into getting a 2nd opinion; she finally found one that she respects, and is doing quite nicely on a medication that helps her blood counts.
check out this t-shirt:
I think that about sums it up for me! I'm so blessed to have a great rheumatologist who listens to me is not patronizing or condescending.
it really is insulting! Especially since this was merely a hematology consult for a condition that can be genetic (2 yrs ago they developed a gene marker blood test for it) that my mother has been dealing with for over 10 yrs. My rheumie and pcp thought I should be checked (thus the referral) since my HCT & RBC's have been elevated (mildly but consistently). A no brainer! Why he felt he had the need or the right to ask so many unrelated questions is beyond me. I mean, he spent more time on the "social history" ("Do you like your son-in-law?") than anything related to polycythemia. I believe the only question regarding that he asked me was whether I itched after I got out of the shower. The answer was no. He did a full exam, starting with looking at my hands, smiled patronizingly and said, well if you have polycythemia, then I have it worse, indicating the color of his hands. I wanted to scream, for the love of pearl, I never said I had red hands OR polycythemia.....I'm freaking here to make sure I don't!!!
Oh boy - can you tell I'm still carrying this jerk around with me!? I should have asked him if he recommended xanax to all his patients. Grrrr.....well, anyway - I''m glad I stopped him from doing testing - I want nothing further to do with him. We'll watch the HCT and if it continues to climb - I'll get help elsewhere.
Thanks for your post. I won't forget about it - and I will talk to my pcp about this experience. I'm sorry about your mom. And I'm glad your sister is doing well. It just sucks that you all had to deal not only with the AI stuff, but with incompetent doctors as well. Just shouldn't be that way. Glad you have a good rheumie. I LOVE the t-shirt! Sorry about the long post ----- I guess I'm still working on getting this out from under my skin!!!