The last 5 weeks have been horrible to say the least. My Rheumy told me at my last visit that he needed off my prednisone plaquenil and celebrex to get an unmasked look at my condition. I have been slowly coming off everything with the pain, stiffness, fatigue and now brain fog coming on stronger. I’ve been off everything for 5 days now and it’s at its worst. I’m just glad I’m in to see the rheumy on Tuesday. Every joint hurts the muscle pain is horrible and my hands feet and nose are freezing. I sound like a bowl of Rice Krispies with every joint cracking and popping.
Does anyone else get the brain fog feeling with MCTD, Lupus or UCTD? I had never thought of it as a symptom before but I realized I haven’t had it since I was on prednisone and now I have it when I’m off it. I used to get it all the time and never thought much about it.
Sounds awful, Bryan - so sorry you're having to go through it. I don't really understand the reasons - but it sounds like others do. Hang in there - hope you get some relief very soon.