Cushing Syndrome

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aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 3/9/2009 5:54 PM (GMT -7)   
I have been feeling weird over the last week and stupidly googled some of my symptoms. The first thing that came up was Cushing Syndrome. Has anyone been diagnosed with it? If so, can you give me some information on it. Is it a serious condition? This is a list of the symptoms I have been having... sry but its rather long.
Moon face, weight gain (50 pds in 2 months), buffalo hump, stretch marks on stomach,under arms,back of knees, upper thighs. most of the stretch marks are extremly wide, especaially under my arms,acne, profuse sweating, night sweating, dry skin, easy brusing, swollen ankles and fingers, muscle weakness, throbbing/stabbing lower back pain, sometimes blurry eye sight, facial hair (grr), high blood pressure, weird feeling in chest...kind of like a burning sensation, difficutly concentrating, shot term memory loss, extreme mood swings, I will be happy and the next moment I will be in tears and have no reason why and then i will be ticked off at the world for no reason, trouble sleeping, nauseusness, 2 missed periods.
I know a lot of this can be prednisone side effects...What do you all think?

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


Barbara Lee
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Date Joined Sep 2003
Total Posts : 2889
   Posted 3/9/2009 6:53 PM (GMT -7)   
Hi Amy:

I have Cushing Syndrome and it has been caused from all the prednisone I've taken to treat my lupus. I've been on high doses prednisone over the past eight years. All the symptoms you've listed are a part of the condition and the number one way to get the condition is from taking steroids. The only way to get rid of the condition is to come off the steroids. In my case I'm unable to get below 10mg of prednisone daily.

Normally, I'm on 20mg or higher. I've got a hump on my back, I've got a fat round belly and skinny legs and a butt. I've got the huge deep purple stretch marks you mentioned on my belly, tops of my thighs, around the sides of my breasts and in my arm pits. I have a huge moon face perfectly round, the sweating, dry skin, easy bruising the whole ball of wax. I feel like I look like a freak and there's not a darn thing I can do about it. They can't give me anything to treat the Cushing's if yours is caused by a tumor they could remove it and things would reverse.

However, the stretch marks won't leave, hopefully they'll fade with time. I feel sorry for you as I know what you're going through with this. I'm so sick and tired of this darn disease, and then having the RA, Fibro, and blood cancer on top of it just adds more issues for me. I've got steroid induced myopathy and I have a hard time stepping up the one step into the house, I can't raise my arms over my head to comb my hair long, (thank goodness I've got short hair) and dang it I just feel like a pile of dung.

If I can answer any more questions please don't hesitate to ask. I'm sorry I couldn't say yeah there's a cure for Cushings and you'll be all fixed up. It's just so dang hard having these AI disease. You hang in there and hugs to you.

Take care,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 3/9/2009 7:48 PM (GMT -7)   
Hi Amy,
 
I'm so glad Barb had some great information for you. Adrenal function can be impared when we're on high doses for an extended period of time.  Two months of high doses won't cause Cushings. It takes time and constant high doses for that to occur. But like Barb mentioned, if your symptoms are being caused by an adrenal tumor, that can come on much sooner.  I think your symptoms are totally from the prednisone. I had everything you mentioned when I was on the high doses. 
 
Your blurry vision is something to see your optometrist about right away. You might have prednisone induced cataracts. I had them. It's a temporary issue that will go away when you taper down on the pred.  But it's important for your eye doctor to see you anyway, to rule out anything else. I know it sounds scary, but it's not permanent. I promise!
 
I have those stretch marks too.  I look like a white and purple zebra (white being the insanely transparent skin tone I have).  The marks do become more silver looking over the years though, and aren't quite as noticeable.
 
You have a lot of reasons to see your doctor don't you? (from your other posts!). A blood test or ultrasound will determine if you have an adrenal tumor. Dollars to donuts, your doctor will say, "It's side effects from the Prednisone." 
 
Have a calm evening, and don't worry okay!  Everything you're experiencing is normal and part of having Lupus. You're doing great!
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/10/2009 4:30 AM (GMT -7)   

Thank you Barb and Ginny! I really need to invest in a program that will block google from my computer. I feel crappy so I look up my symptoms and then I get sucked into all the other problems I could have and then it causes worry which leads to stress...i think you guys know where I am going with that. I will be calling my eye doctor today...I just spent 4 grand on my eyes back in June to have Lasik and can't afford for something to go wrong with them especially if it is something I could have prevented by seeing the doctor. Well, this time change has did me in...caused me to oversleep so i gotta finish getting ready before I make myself late to work! Thank you guys so much and yes Barb, I hate AI diseases so much!!!!

Love ya all


Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 3/10/2009 5:54 AM (GMT -7)   

Hi Amy. As Barbra Lee knows, I have also had every cushings symptom you describe and it is all caused from prednisone. The time Barb saw me, my face was so swollen and round that my eyes were just slits. My BF asked my internist if my face would explode. He smiled and said no, but it could swell my eyes shut. Thank God docs lowered my pred before that happened. With this nasty disease it's a balancing act to remain aware of other possible illnesses. As a rule, I always think new symptoms are related to lupus. Just read my quote in my signature line. It's really been amazing how many weird things lupus and the treatments cause. I recently got ingrown fingernails- at the base of my fingers. Go figure. I agree with Barb and Ginny that you should see your doc, but remain calm knowing that lupus sucks. Let us know how the doc visit goes. Love, Butterflake

 


Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Julie Burns
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/11/2009 4:36 PM (GMT -7)   
My dear, I'm afraid you indeed have steroid-induced Cushing Syndrome.  I would bet big bucks on it with all your classic symptoms.  I'm so sorry that you have Lupus and sorry too that you have been given prednisone.
 
Yes, I have had this Cushing Syndrome condition.  I had pulmonary interstitial infiltrates from taking Methotraxate for Rheumatoid Arthritis and, in order to save my life, they gave me very high doses of prednisone--first IV in the hospital, then orally when I was released.  I was maintained on 30-40 mg for months.  Before it was over, I had gained 120 pounds and had the lovely appearance we know about--moon-faced, hump, obesity in the trunk, hair loss on the head and growth where it shouldn't be, etc.  Ghastly.  I woudn't leave the house or even see my friends.  People stared.  People gasped.  Eventually, I tapered with GREAT effort and pain and regained my normal appearance and size of 120 pounds.  You'll go back to normal after you taper off as well. 
 
Now, I'm having more lung problems and my pulmonologist wants to put me back on 40mg a day.  I said no.  I do not wish to go through that again.  I asked him to find an alternative and we're looking into Imuran.  He's angry with me but I don't care.  It's easy to throw people on prednisone.  They like to do it because it gets quick results.  But they don't have to live with the disfigurement or the pain of the withdrawal.  And there is pain on the taper--at least there was for me.   
 
If you have lupus, I encourage you to explore alternatives if you can.  Be sure to TAPER off prednisone with your doctor's supervision.  It is life-threatening to stop suddenly.  Prednisone is a destructive drug--inside and out.  You see the outside but inside it destroys your bones and can cause diabetes and hypertension as well.  It can even cause psychosis. 
 
Get off of it, responsibly, as soon as you can.  Look into the newer alternatives.  You'll probably have to do your own research.  Doctors don't spend much time with each patient so you have to be your own advocate.  I advise you to stand your ground if you make a decision that it's not worth the price you're paying.  But know, first, what the alternatives are and what might happen when you get of the steroids.  It is, after all, you're life.  Inform yourself and they will respect you much more.  And, remember, there are other doctors.   
 
Feel free to ask me anything or vent with me if you'd like.  I've been there, Sista.    
 
Julie     

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/11/2009 5:34 PM (GMT -7)   
Hey Julie! First of all I want to welcome you to the forum! This has been a great place for me to learn more about lupus and more about the conditions that come with it. Every person on here is very helpful and extremly supportive! They boost you up when you seem like there is no way to keep going. I hope you will stick around and give us a chance to get to know you.
 
I probably shouldnt have done this but I am slowly taking myself off the prednisone without consulting my nephrologist. Back in January I was diagnosed with lupus nephritis and my nephrologist did a Kidney Biopsy and then had me on 1000 mg of methelpredniolone or however you spell it 1 time for 3 days through IV. After the 2nd IV I immediatly noticed my moon face. I honestly think it came overnight. After I left the hospital he had me on 80 mg of pred and then a few weeks later down to 60 mg and I stayed there until I have been taking myself off. Ever since then my face has gotten bigger. My cheeks got so big my eyes where also squints like butterflake was saying. Right now I have gotten myself down to 20 mg and will stay on that for another 5 days and then put myself down to 15 and then 10... Since I have come down, my face has gotten a little smaller but all the other side effects are still there. I go see the doc on Tues and will tell him what I am doing and I will show him why I am doing it. The stretch marks under my arms are one and three quaurters on an inch thick. My roommate and I measured them. The ones on my stomach and legs are getting wider everyday. The thing that ticks me off the most is, I haven't been dating because I wanted to get my health under control before i did anything like that and now I don't even want to date anyone. This disease or medication or whatever has caused my body to become so hiddeous has pretty much ruined that for me. I am way to embarresed. People that know me but don't know about my problems are constantly giving me those looks as too why have you let yourself become so fat and some have even asked. i have gotten to the point of being a smart elic and saying i like to freakin eat...what do you think. I went and got blood work and a urinalisis on Monday and my doc called and told me that there is no more protein in my urine but there is still significant amounts of blood in it meaning inflamation. But they are slowing improving so I guess thats good. Anywho...I have noticed I have started rambeling so thats my sign to stop typing. Thanks again everyone for your great information!
 
Amy

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 3/11/2009 8:02 PM (GMT -7)   
Hi Amy,
 
I have to tell you that you're tapering down on the pred WAY too fast.  You'll end up in the hospital if you continue this pace. The most you should be tapering is 2.5mg every 2 weeks. And that's the most you should be doing.  If you do it too quickly, your adrenal glands can't keep up and can cause you to go into what's called Adrenal Failure.  It's life threatening. Please stop your taper, and talk to your nephrologist.  Don't mess with this drug. Always talk to your specialists first before starting a taper. 
 
Not everyone can get off of Prednisone.  For some people, it is a life-long mediction that will keep you alive. Again, go with what your doctors have prescribed for you.  There are reasons why you were put on prednisone to start with.  Perhaps your kidney involvement is one that responds best to steroid treatment. You're very early in the treatment stage.  Give these amazing medications a fighting chance to do their job. Living with a moon face, and the other side effects in the short term, will give you the chance to taper down to a dose where you lose the side effects that are difficult to live with, but also keep your Lupus quiet and give you a better life.  
 
No one can diagnose you with Cushings Disease except for a doctor.  We're not doctors so telling you you have Cushings is not a responsible thing for anyone to do. See your doctors and tell them the symptoms/side effects you're experiencing, and talk to them about your prednisone dose, etc.  Get the right information from them.
 
Care about you girl!!!!
 
XO Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/11/2009 8:46 PM (GMT -7)   
Hi Amy:

I'm sorry that you're feeling embarrassed about your body. The prednisone really can cause some bad side effects, but I'm one of the people Ginny mentioned. I can't live w/o prednisone it is keeping me alive. I can't breath if I don't have it and I'm on oxygen 24/7 too. You'll meet that special someone and he won't care what you look like. You're beautiful the way your are and even more beautiful on the inside.

Ginny also is correct that you're tapering to fast. You need to be very careful stopping your prednisone. I'm sorry if I gave the impression that I was DX'ing you with Cushings I believe I said "all of the symptoms you listed were symptoms of Cushing Syndrome, I did not however, say you had it. The symptoms you listed can be caused by your prednisone too. When do you have your next doctor's appointment? I'd mention the Cushing Syndrome to them and also the blurriness you're having with your eyes.

You hang in there I'm pulling for you Amy. (((hugs))) to you and keep us posted.
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Julie Burns
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/12/2009 11:28 AM (GMT -7)   
No doubt you're right that we're not doctors, Ginny. However, most of us have had Cushings and it's not hard to recognize. There's really nothing else that gives the particular constellation of symptoms that Cushing's Syndrome does. With Amy's dose of steroid's, it would be hard to NOT draw that conclusion and difficult NOT to develop Cushing's Syndrome. I can't think of another reasonable explanation.

To me, the only question is, what to do about it. Maybe it is something that can be controlled at a lower maintenance dose of prednisone. That is something she and her doctor need to discuss between them.

I do agree, Amy, that you should taper ONLY under supervision and that you are going off much too fast. Your adrenal glands can't keep up with what you're doing. With your kidney complication from Lupus, it could lead to dire consequences so I encourage you to call and discuss this with him/her immediately. As much as I hate prednisone and its consequences, I taper only when my doctor gives me the okay and then I'm slow and careful. I tiptoe off.

The times I resist prednisone is re-introducing it once I've tapered off. It is my very, very last resort.

Julie

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 3/12/2009 8:25 PM (GMT -7)   
Hi Amy,

I'm probably oneof the few people here who has cushings BEFORE taking any steroids. In other words, I got it befoe I'd taken any steroids or been diagnosed with ai disease. I also have hashimotos and am workingon adrenal malfunction due to my untreated screwed up pituitary.

I have all Barb's symptoms, but the buffalo hump and hairiness is not that bad on me, my problem is mild and goes up and down. I look like an apple with toothpick legs and arms. I actually lose weight on prednisone and my skin gets not dry and the cushings symptoms improve on prednisone, which freaks the doctors out. I stop retaining water on steroids. I was diagnosed with polyglandular dysfunction in 1992, an autoimmune endocrine disease where the different glands are attacked, but in a certain somewhat predictable order.

I have benefited from the comprehensive testnig of my hormones that my ob/gyn who does bioidentical hormones has done. They have done better for me as a woman than my endos and have done more comprehensive testing. I can't get an endo to do the tests the medical books say they need to do onme routinely, and when they come out abnormal, they don't want to treat me.

I can say that there are some things you can do to help you deal with steroids and that estrogen plays a role in how your thyroid hormones and other hormones work. If you feel you have cushings not caused by the steroids you take, I would pursue that. If you feel its from steroids, then I would check with your doc. I have had huge shots, double shots of hormones, dexamethasone is my favorite, then cortisone, then prednisone. It takes a while for the steroids to cause full blown cushings, but perhaps your tapers couldbe adjusted better perhaps you are sensitive. I know that I improve so so much on pred, I'm not even like myself. Cortisone and dex help too, I have less energy on them, but feel great. Pred gets me going.

Take care and I hope you figure it out.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Julie Burns
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/13/2009 6:24 AM (GMT -7)   
That's interesting, Marji! I have a friend with Addison's and she takes steroids to be normal, too. If not, she has big problems.

I've had thyroid cancer (twice) with a thyroidectomy and am on a big supression dose of thyroid hormone. Perhaps that is why my body reacts so strongly, quickly, and negatively to steroids. In one month, I'm big-time Cushingoid on anything over 7 mg. I know that from less long term bursts of prednisone for the RA. I hadn't thought about that hormone connection and will discuss it with my endocrinologist. And I'm post-menopausal and not on hormone replacement therapy. I was but have gotten off because of the concerns about all that of late. All you've written is enlightening. I'll discuss this with my specialists right away.

As to what is provoking Amy's Cushing-like manifestations: look at her dose. She's on a bunch of prednisone and was on large IV doses in the hospital. I think that level of IV intervention does propel one into Cushingoid's faster. It happened to me in 2000 with my infiltrate treatment and I was more Cushingoid than any photo textbooks or in any article I've ever seen. The huge IV doses over a month in the ICU paved the way. Of course, they were trying to save my life so what can you do? I spent two years getting back to normal. A year to taper, then a year to diet.

This morning, I'm going in for a second opinion on this new pulmonary problem, which they think is something called Bronchiolitis Obiterans. It is my HOPE that this new pulmonologist can find another treatment for it. Having struggled to get off prednisone, I don't want to jump on it at the first sign of trouble.

Amy, how are you doing? You're not still tapering yourself, are you? Please don't.

Julie

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/13/2009 3:17 PM (GMT -7)   
Hey everyone! Thank you again. I have stopped the taper but I am still at 20 mg of pred. I have been feeling better every day and I am finding I have a lot more energy than I have had since I got out of the hospital back in January. People are even commenting on how I am getting my personality back...which they had really been missing. I do go to the doc on Tuesday and will tell him what I have done and talk to him about finding a substitution for pred. I don't even know if there is anything that comes close to it but I will talk to him and see. Some good news is that my moon face is going away so quickly. I still have a lot of swelling under my eyes by I can tell that my "double chin" is almost gone...thank goodness!
 
Marji- that is really interesting about the cushings. I am sorry that you have cushings but I am glad you have something that will help it. I never had problems before I started taking the prednisone so I don't think it would be caused by something other than steriods...meaning no tumor or anything like that. I will talk to the doc about cushings but since the pred is lowered and I am feeling much much much much better, I think Ginny might be right....all side effects of prednisone
 
Thank you Barbara, Ginny, Julie, and Marji for all your words and advice. I have a long list of questions for the doc! I have a feeling I will be in there a long time with all the questions I will be asking him. I hope you all are doing good and feeling as good as you can!
 
Love ya!!!

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/13/2009 7:29 PM (GMT -7)   
I wanted to chime in. I also have been on massive doses of prednisone for 10 years. I have adrenal failure and and cushings. I wanted to comment on the fact that you are on it for lupus nephritis. This is the precise reason i was started on it. I don't want to scare you...BUT...I cannot stress to you the importance of doing your medication protocal exactly as your nephrologist orders it!!!! There are reasons they do it the way they do it even when you become asymptomatic. Please, i strongly encourage you to follow closely what they tell you. Nephritis is nothing to play with . I am now in end stage renal disease and on dialysis. It's not somewhere you want to be. I just spent 30 days in the hospital out of a 6 week span of time related to dialysis complications. Cushings is tough but it don't begin to compare with end stage renal disease and your life revolving around dialysis. Hang in there. I know exactly how you feel, as many here do. You can do this!!! I have learned that what I have inside is so much more important than what people see on the outside. Lupus has stolen alot from me, but it can't take my integrity or deep abiding joy! I'm not trying to diminish what you're going through or sound preachy, just been there, done that! God Bless You, Judy

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 3/13/2009 8:01 PM (GMT -7)   
I agree with Judy, though I don't know about this stuff, if I don't taper right, I get very sick and swollen up all over and have UT problems. There's stuff they can do for moods, anxiety and depression to help, and your docs can help you out with it. I didn't mean to sound lke you should change anything, but just to bring it up and possibly get some more subtle testing to make sure that vitamin deficiencies and other hormones aren't making things worse, and also to get the docs on the same page with you. I'm glad you are doing better. Twenty is my favorite dose, anything less and I feel like an old rag. Your thyroid can cause most of the same symptoms, so it never hurts. And I am able to take a "chill pill" when I get too stressed or sad. So there are things the docs can do to help you through. Also, my vitamins were a mess and B6 and D3 help me, thuogh you need tobe tested for them, but the B6 helped me more than anything for my neuropathy,I just don't metabolize it well, so a multivit doesn't do me well and has iron and other stuf I don't need that are rough on my liver.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 3/13/2009 8:11 PM (GMT -7)   
Julie Burns,

I'm replying to you here as you did not provide an email address.

Welcome to the forum! We hope we can help support everyone to understand and deal with their illnesses.

I wanted to let you know of a couple of suggestions we have --
1) don't use your real or full name here - this is for your own protection - anyone in the world can pick up on your identity if you do, and that can be problematic.
2) While you may be certain someone has a particular issue or illness, we are only here to support and encourage each other. Even if a member is a doctor or specialist, we are here as a group of equal friends only. We don't offer diagnosis or prescribe medications, we do share our experiences as to what has worked or not worked to us as individuals.

thanks for being part of our community!

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


Julie Burns
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/14/2009 10:19 AM (GMT -7)   

Lynwood,

Thanks for the suggestions.  I did not put my full name down; somehow the system must have done it from the questionnaire I filled out.  I had suggested AustinJulie as a screen name.  Perhaps I checked the wrong box.  Having said that, I must say I'm not squeamish about my name on this forum. 

I'm not sure about the implied repremand in your second suggestion but I'll try to sound less certain in the future.

Since I have RA and not lupus perhaps this is not the right forum for me anyway. 

Julie

 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 3/14/2009 9:35 PM (GMT -7)   
Julie, If you want to change your screen name at any time you can choose 'Control Panel' up on the top of the page, toward the left -- and it will lead you to the right page....you are welcome to hang out with us "lupies" if you'd like !

now back to our "regularly scheduled program"...ie our Cushings discussion :-)

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


Julie Burns
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/16/2009 12:21 PM (GMT -7)   
From the look of things, there are a few others using their real names here. You might give them a head's up as well.
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