Best state to live in when you are sun sensitive??????????

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katalexanna
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 3/10/2009 7:53 AM (GMT -7)   
Does anyone have any information on the best state to live in when you are sun sensitive?
We live on the Gulf Coast and our 10yr old was recently diagnosed with Lupus. We have learned that she is sensitive to uv rays and were considering moving to a state that would be alittle more kinder to her.
 
Hoping someone might have some info...
 
Thanks,
Melissa

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 3/10/2009 9:20 AM (GMT -7)   
Hi Melissa,
 
Welcome to the forum.  I'm so sorry your young child has been diagnosed with Lupus.  10 years old.  My goodness. How is she doing?  How are you all doing?  Please visit us and learn more about this disease. We have a wonderful bunch of members here, and we'd love for you and your daughter to join us.
 
As for your question.  I would recommend the Washington State, Oregon. They're quite cloudy most of the time.  I live in Calgary, Alberta, Canada which is very close to Washington.  We get the Seattle local news so we're in tip top shape when it comes to knowing  Seattle's weather forecast!  It's a beautiful region of your country, that's for sure!  And you have the ocean, which is something that is already so familiar for you.
 
You are amazing parents to think that intently about your daughter's well-being. To make a move like that is a big deal. She'll do so much better in a cloudier, cooler environment.  The heat itself is hard on people with Lupus too. We have to treat the sun like we are allergic to it. Those UV rays are very harmful.  So are fluorescent lights. They're like poison. If you have them in your home, switch them back to the old incandescents.  I'm stock piling my supply before we can't buy them anymore.
 
It will be interesting to see what the other members suggest!  Good luck. God bless,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


KarenO
Regular Member


Date Joined Jan 2006
Total Posts : 90
   Posted 3/10/2009 10:57 AM (GMT -7)   
Melissa,

I live in Washington State and I would say that really only the months of June, July, August, and September are the bad months. My Rheumy tells me to always wear sunscreen and be safe out in the sun. My daughter is very sun sensitive and had to try to be out of the sun during peak hours all summer (which is hard for teenagers to do).

The one thing that I would say is it is a hard change for people to move here from a more "sunny climate". The dreary Winters can be hard for people to adjust to.... i have known quite a few people who have moved here from Hawaii and California, only to move back within a years time, but with that said I can say I would not want to live anywhere else!

KarenO

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 3/13/2009 9:20 PM (GMT 0)   
Hi-- I live in Georgia and I can't recommend it unless you live under a bunch of live oaks or in the woods. But having lived on the gulf and then here, the cold weather really does me in and I have relatives that have trouble with the sun, but also have reynauds or arthritis and the cold is horrible to them and they move back. So you may want to consider that. There are areas of Florida further from the coast where you can find very shady houses and yards under large oak trees. I like georgia because of the pines, but the tiny bit of cold we get here is all I can handle. I just stay indoors alot with wood blinds, put tint on the windows, car tint, which is really easy to put on, and that helps so you can open the blinds some. When I lived in my other house under the trees, it was very shady and I could go outside during the day alot as long as I didn't get out ofthe shade. I also screened in my pool, which helped me to swim.

I found certain meds were makin the sun sensitivity worse, Soma really made me much worse. I was able to change from that med to another and try to limit meds that make it worse, and had some significant improvement, though my skin still doesn't like the sun at all, I don't get the bad nausea headaches and aching.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/14/2009 10:39 AM (GMT -7)   
Hi! I live on the Gulf Coast too and the summers here are quite brutal. I have just become real sun sensitive in the last year or two. I use the highest spf sunscreen i can find, use window tint and avoid peak hour sun as much as possible. I know that has to be especially tough for a child, but a move can also be a huge adjustment for them too. I'msorry you and your child are dealing with this at all! God bless you, judy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5844
   Posted 3/14/2009 10:51 PM (GMT -7)   
The state of darkness? :-)

Oh, I guess that wasn't meant to be a trick question! Just playing....

I grew up in Florida and need the sunlight to maintain a decent state of mind...which I achieve in GA with large deep bay windows and appropriate window coverings to avoid direct sun. It's warm enough to keep me limber and seldom cold enough to be too much of a problem. My car windows are tinted, I wear a daily sunscreen on exposed skin, and seldom (if ever) spend much time in a large florescently lighted store or outside.

I think with proper techniques almost anyplace can work out, once you are accustomed to practicing standard precautions. That said, I would suggest the furthest north from the equator as possible, but with the warmest winters you can get. I know some doctors would argue humid climates vs. dry climates, but I think that really depends on what kinds of symptoms your daughter develops. The disease presents very differently in each of us...

I commend you in considering a move as "alternative treatment"... I'm sure the right path/solution will become clear to you in time.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1942
   Posted 3/15/2009 9:19 PM (GMT -7)   
I agree with you, Lynnwood. So many docs recommend a dry climate, but for people like me with sjogrens and endocrine prbolems resulting in really dry skin and dry everything, humid is so much better for my sinuses. Using heat just a little this winter was really rough, it was more dry than I remember. Theres so many aspects to it. Like you, I use window coverings. The big wood blinds, the ones that truly darken. And curtains over top. Tint on the windows of the doors. And plenty of fast growing shade trees planted to get my house under a big huge shadow.

gulf coast, where I used to live before here, did not seem to be any rougher, but I stayed inside alot with good wood blinds. I enjoyed the nightly walks on the beach and the salt water humidity on my skin and sinuses. Red tide wasn't so great though.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


conorsmom
Regular Member


Date Joined Feb 2009
Total Posts : 20
   Posted 3/16/2009 11:24 AM (GMT -7)   
Hi Melissa, well, I can say from experience that South Florida isn't the best place to be with lupus. I was diagnosed shortly after moving there from NJ in 1994.  But, as long as I wore sunblock and limited my beach/pool time, I did fine until I had my son in 1998.  It wasn't the heat as much as the humidity. I lived there for 11 years and hated the summers- I was 7 months pregnant during the summer of 1998! But the cold weather doesn't make a difference in sensitivity to sun- it's how close you live to the equator- the further south, the stronger the sun is.

Diagnosed with SLE 1994,Fibromyalgia 1994,Interstitial Cystitis 2000,lupus pneumonitis 2002,peripheral neuropathy 2002,cerebral anoxia 2007,
 
I can do all things through Christ who strenghthens me. (Phil 3:13)
 
 
Go Gators!


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5844
   Posted 3/16/2009 7:24 PM (GMT -7)   
Altitude also makes a big difference. Higher up the sun is stronger when you are exposed to it.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 3/16/2009 7:53 PM (GMT -7)   
I went to Hong Kong last year during rainy season . . . I felt the best I felt in YEARS!! It was always cloudy because it was raining and the humidity was great for my skin issues . . . plus, the one day it was sunny, i could use an umbrella and not feel left out because that is what they do there! Many Chinese are in the pursuit of paler skin, so they go to whatever measure to keep themselves pale.

NOT that I recommend you move to Hong Kong! But I agree that Washington/Oregon might not be a bad alternative. Usually cloudy and both the winters and the summers are mild . . . along with enough humidity so that any skin issues would not be aggravated
AlienWife
There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
Albert Einstein
Dx: SCLE, Sjogren's, Reynaud's, Peripheral Neuropathy


lmuzic
New Member


Date Joined Jun 2014
Total Posts : 1
   Posted 6/11/2014 9:00 PM (GMT -7)   
Cleveland, OH gets an average of 66 sunny days per year.

SoSt9
Regular Member


Date Joined May 2012
Total Posts : 264
   Posted 6/12/2014 5:18 AM (GMT 0)   
lmuzic said...
Cleveland, OH gets an average of 66 sunny days per year.


Yes, but trust me when I say that you would much rather live on the upper west coast than in Cleveland. The weather is better.
Frequent lurker, Part time poster.

Known Problems: Sjögren's, Hypermobility, UCTD, Arthritis, Hypothyroid, Migraines, Eye Problems, Skin Issues, Depression, PTSD, Anxiety, Autism (high functioning), and Gastric Bypass Surgery (affects what medicines I can take and for how long).

Suspected: Psoriatric Arthritis, Lupus, Fibromyalgia, Epilepsy, Endolymphatic Hydrops, and whatever they decide next
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