This study confirms my personal suspicions

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elcamino
Veteran Member


Date Joined Sep 2005
Total Posts : 1744
   Posted 3/11/2009 11:49 AM (GMT -7)   
 
I was not very surprised to find out that it takes women longer to get dx with SSc; I think these results may generalize to other AI diseases such as SLE, RA, PM, MCTD.....
 
What do you think?
 
Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/11/2009 3:35 PM (GMT -7)   
It is my belief that this is true for many, many medical problems, not just autoimmune diseases. Heart disease in women has only recently begun to be studied to the extent that it has been in men. In the days when the vast majority of physicians were men, women were often dismissed as they were in general society. Studies were often done on men only. As more women have entered the medical field, the tide has started to change. Breast cancer research and the army of women that have gotten behind this cause has really helped focus the lack of research in other areas of women's health too.

For 20 years I complained of bowel issues [mainly diarrhea 10-15 times a day] to be repeatedly dismissed as "overly stressed new mother," "nervous," etc. I finally stopped bringing the subject up. Ten years later when it spiraled out of control, I was daignosed with Crohn's.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 3/12/2009 8:36 PM (GMT -7)   
My friend who's friends with a doctor told me that male doctors and some female doctors hate women patients because "they run to the doctor for every little thing," in their opinion. What it amounts to is that when we do go, everything is trivialized with no testing, we aren't even considered. If a man complains, he must have cancer. It even goes through to readings of MRIs and such. That's why I'm so awful about making sure I get good readings of my imaging. I should have been referred to an oncologist in 2005 when my gallium scan came up with possible lymphoma, but not one doctor on my team would, dimissing my horrible pain as fibro, until I demanded recently. And the reading of the gallium scan neglects a huge spot on my lumbar spine that appears to be a large lesion. I am at risk for myeloma due to my polyglandular problems, along with lymphoma due to sjogrens.

My neighbor, a man, hurt his back bending over to pick up a tv, they saw a tiny spot, which I have a ton of. He got biopsied and is being treated for cancer.

I think a lot of males in the medical field use their position to get even with women, perhaps bitter from a divorce, whatever, but most have real problems with women. And many female docs behave the same to "fit in." Its sad. Its like a nurse told me, "think of the lawsuit you'll have..." the nurses know.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 3/12/2009 8:40 PM (GMT -7)   
And there's a reason fibro affects 90% women, because that's what they use to get rid of you. I recently told a doc that it was a "last case" diagnosis, after every possible test is done. That part seems to be forgotten by most. Many men have similar pain syndromes, not just women, but they are taken seriously and the source of their pain treated.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 3/13/2009 4:35 AM (GMT -7)   
Hi Elcamino. At least we can say that every article published proving men receive better medical treatment can only help women. I know, I'm grasping at air. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 

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