How do I explain this to a doctor/doctor(s)?

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Veteran Member

Date Joined Dec 2005
Total Posts : 1944
   Posted 3/13/2009 10:11 PM (GMT -6)   
My back is really bad and my legs ache so much that I have to wear TED stockings at night and hose during the day to stop the pain. I can't walk well and am not standing up straight. My lower back kills me.
The problem is that I have a bright spot on a gallium scan in the area where it hurts. The physical therapy doc knows I have a pinched nerve due to hernation of some discs and I have some mild stenosis. It is on the muscle/nervejunction on the left side that holds the pelveis in place, its hard to explain. Anyway, I also have a vascular problem in that leg, well both but worse there, that another vascular surgeon is going to do a procedure on. I plan on bringing it up with the oncologist next week, but need surgery bad, but if they have to biopsy something, I want them to know to do it. And ifthere is a vascular problem, I needthem to deal with that. Its all at a bad crisis point here.
I don't know whch doc to talk to. I need a better workup on the issues to see if they are interrelated. And I think the biopsy of the spine is important. I don't know enough about how they do this stuff to know. Now I can get referred to a neurosurgeon to fix the nerve, but the vasular problem is as bad, maybe worse. And they wouldn't typically do a biopsy. How do I manage this? Which doc do I go to? I'm totally confused. Any advice here would be appreciated.  My kidney is larger on the left two, but they won't run the tests, and my heart beat irregular due to the left. I can't even get them to test my ammonia. I just don't feel like they did enough of a workup.
Thanks in advance for any help you can give. I'm just confused because no one is taking responsibility for me on this issue.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids

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