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Lollie2005
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/14/2009 4:58 PM (GMT -7)   
Hi! I am new to this board and I have been diagnosed with scleroderma, lupus, raynauds, and sjogrens since 2001.  I was treated in 2005 with cytoxan for lung inflammation and now I have elevated protein levels in my urinalysis.  My rheumy and a kidney specialist have recommended that I undergo a kidney biopsy.  I will be doing this next week and I am a little nervous about it.  I would appreciate any feedback from anyone who has gone through this procedure.  I have read about it on the internet, but I'm hoping to hear more personal stories.  

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/14/2009 6:09 PM (GMT -7)   
Lollie, Welcome to the forum. I have lupus nephritis and have had 4 kidney biopsies. I promise you it's nothing to get yourself worked up about. It sounds much worse than it is. Although you are awake during the procedure, they numb the area and give you meds that totally relax you. I have never had any complications from a biopsy and hear that they are pretty rare. If you take blood thinners you need to notify your doc well ahead of time. I pray that you have a good outcome, sorry for all you are going through. If you have any specific questions or concerns please ask and i'll do my best to help you. God Bless you, Judy

Lollie2005
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/14/2009 6:31 PM (GMT -7)   
Hi Judy,
Thanks so much for your response. I'm really glad to hear that its not as bad as it sounds. I do have a couple specific questions, I know that it is an outpatient procedure, but how long are you usually there for? Is it like an all day thing or are you there for a few hours and is there alot of bleeding and discomfort afterwards? Thanks so much and I appreciate your concern.

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/15/2009 6:15 AM (GMT -7)   
Hey Lollie! Welcome.  I had a kidney Biopsy in January and it was nothing to worry about. Pretty much how they did mine was had me lay on my stomach, and they used a ultrasound machine to tell where my kidneys where, had me breath in and hold my breath and then my nephrologist stuck a long needle through a spot on my back and got sample pieces of my kidney. It didnt hurt, but I could feel pressure! It took about 15 minutes. I hear that it can be longer that but that is how long mine was. After the doc's finished I made the mistake of asking to see the samples he took....very gross looking. I will never do that again. LOL! But then I was taken back up to my room and had to lay flat on my back for 6 hours. Couldnt get up to use the bathroom or anything...they also kept samples of my urine everytime I p'd until morning. They kept me in overnight to observe me and then I was send home the next day. I promise it is nothing to get too worried about! The bleeding was only in my urine, which they say is normal for a few hours after the procedure. There is a small chance of interanally bleeding but that is very rare, and that is why they kept me overnight, because my blood levels had started to drop. But during the middle of the night, they leveled out and started going back up.  The pain, I don't remember any pain at all, but I do have a very high pain tolerance. The worst part for me was the 2 weeks after because I went to Disney with my family and was unable to ride any of the rides or lift up my niece and nephew because I wasnt aloud to lift anything over 25 pds. But it all worked out great! If you have any more questions...feel free to ask! Hope everything works out for you
 
Amy

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/15/2009 8:51 AM (GMT -7)   
Lollie,

Good luck with your biopsy. Let us know the results. Hang in there.

Pat
SLE, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis, gluten intolerance.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, imitrex (for rare migraines), cymbalta, tricor, acifex, multivitamin, calcium w vit D, fish oil, aspirin


Lollie2005
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/15/2009 11:39 AM (GMT -7)   
Thanks so much for the encouragement Amy and Pat. It has settled my nerves a bit so I can be prepared and relaxed for Thursday.

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/17/2009 9:23 AM (GMT -7)   
As amy said it only takes about 15 minutes and they usually observe you for about 6 hours. There shouldnt be alot of bleeding, thats why they observe you. I have had to stay over night a couple of times for nausea from anesthesia (my usual reaction). Let us know how you do! judy

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 3/21/2009 7:52 AM (GMT -7)   

Hi!

I feel better now, too, knowing what to expect. I spilled protein and catecholamines before I was diagnosed, and refused a kidney biopsy then because the levels went to normal. I did agree I would have a spinal tap and kidney biopsy the next time I got sick enough to go to the hospital. Last summer I had a scary episode of really, really, foamy bubbling urine, over the course of about a week. I kept delaying calling the dr. because it went away, and I could live with denial. The past 6 wks, every few days, I notice it first thing in the morning. I am going for my rheumy check up in two weeks and I will tell him, but has anyone had any experience like this? Like so many of my symptoms, for so many years, I tried to pretend they were all in my imagination and that I was just tired....

sue


God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis
Meds: Plaquenil, Neurontin, Thyroid, Piroxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily and Paxil, Ambien every night.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/21/2009 10:10 AM (GMT -7)   
I have experienced foamy, bubbly urine when I am spilling protein. Please don't delay in reporting it to your doc. The quicker it is caught, if it is in fact kidney involvement, the better your outcome in the long run. Please keep us posted. Judy

Lollie2005
New Member


Date Joined Mar 2009
Total Posts : 5
   Posted 3/21/2009 12:41 PM (GMT -7)   
I never experienced the foaming in my urine, only many trips to the restroom in the middle of the night. Sue, please stay on top of everything and inform your doc of everything you are experiencing. I know how all of this can be so scary, as I was to hear the words "kidney biopsy". I underwent the biopsy on Thursday and it was just like everyone said, nothing to work yourself up about. I think its more of the unknown that makes us terrified. I just want to thank everyone who gave me the kind words of encouragement and reassurance and for your experiences. I am supposed to find out my results on the 30th, so I'll be sure to keep you posted.
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