PCP pretty convinced- Lupus , Taking plaquenil,Propranolol, Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab. Mom of 2 boys 1 and 6. Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.
Hi! Renee, and everyone,
Please be comforted in knowing that this family problem is common to those of us with invisible diseases. There is even a website <butyoudontlooksick.com> where you can find The Spoon Theory, which is a wonderfully explanatory story about living with lupus. When I was first diagnosed, after living SO SICK FOR SO LONG, my teenaged daughters, who were less than kind and understanding on a good day, and had been snarling at me for years that I would feel better if I got off the couch and just got some exercise, said they found it hard to understand how sick I really was. I vote with Ginny! Life is all about balance, and your marriage, your life right now is horribly skewed out of balance. Please try and separate yourself from the chaos of your move. Get a to do list started, get a few good nights rest... and then in the way you would have to eat an elephant... one bite at a time, leaving his laundry unwashed, his food uncooked, his stuff undusted.... pick a corner of your house in a spot that will be comforting to you, like a window, or kitchen corner, and from your to do list, pick 3 things at a time you can carry, clean, organize. Then do only that, don't get sucked up into a frenzy to get it ALL done....eat something nutritious, take a relaxing bath or shower, go to bed, and eventually the chaos will be managed. Remind yourself that you can do nothing to force your husband to do anything, that has to come from him. Don't waste anymore energy on trying. Pick your battles, You only have control over how you react to things. And we all know, we ain't got enough energy on a good day. Hugs,