anyone familar with lupus erythematosus?

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SmurfyShadow
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Date Joined Dec 2008
Total Posts : 2386
   Posted 3/22/2009 9:18 PM (GMT -7)   
Ever sence I been on prednisone long term I got these wierd marks. The doctors have told me I have an auto immune disease but they arent sure which one. I been doing research on these marks, and it kinda looks like lupus erythematosus. But I'm not sure. They are like wiggly stretch marks in bruising colors like redish pink. Some are long some are short. They are located under my chest, shoulders, armpits and down my sides. Anyone got any ideas or which doctor I should talk to? I got a GI doc, PCP, Pulmonologist, Oncologist, Surgeon, Councelor (Grief Counceling), and a Surgeon.... well besides the dentist lol.  There a way to tell apart marks like this?
 
smurf  
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications:  Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


BumbleBee1
Regular Member


Date Joined Oct 2005
Total Posts : 130
   Posted 3/23/2009 12:28 AM (GMT -7)   
Hello
These could be stretch marks from the Prednisone. They do not sound like anything typically associated with lupus but I am not a doctor. It's a bit surprising to me that your doctors aren't familiar with this effect of Prednisone and also that they haven't suggested you see a dermatologist, the specialist who deals with skin problems.

Lupus is one of more than one hundred autoimmune diseases of various sorts so to talk about having an autoimmune disease isn't all that helpful. I suggest you find out what sort of autoimmune disease they are thinking of and why. Many lupus symptoms resemble those of other diseases and because there are only four specific signs of lupus but not everybody with lupus has them, it often happens that diagnosis is as much by elimination of other possibilities.

Lupus is one of a group of autoimmune connective tissue tissue diseases. Because joint aches and pains are common it is a speciality of rheumatology but it is a multi system disease that can affect almost all body parts and systems. Sometimes people see immunologists sometimes hematologists if the problems are mainly related to blood abnormalities or a urologist or nephrologist if the kidneys are involved.

If your doctors think you might have lupus there are several basic tests they can do to get a better idea of the lupus possibility and they can refer you to a rheumatologist for checking if they are unwilling to do these tests.

BB

PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 3/23/2009 6:38 AM (GMT -7)   
Smurphy, I believe you need to see a rheumatologist.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, tri-est, cymbalta, tricor, acifex


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 3/23/2009 12:25 PM (GMT -7)   
Hi Smurfy. The medical term for the type of lupus most of us on the forum have is Systemic Lupus Erythematosus (SLE). The erythematosus refers to the redness many of us get. The other types of lupus are Drug Induced Lupus and Discoid Lupus. The Discoid kind causes lesions. Like BB said, your marks could be from prednisone. Your PCP should be able to tell what they are, but if you want to see a specialist a dermatologist is a doc who diagnoses and treats all types of skin conditions- including discoid lupus. You certainly don't need any other ailments! Let us know OK? Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


twinkiet
Regular Member


Date Joined Mar 2009
Total Posts : 48
   Posted 3/23/2009 12:37 PM (GMT -7)   
Hi there,

What did they give you predisone for?

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/23/2009 1:59 PM (GMT -7)   
It sounds like purple striae to me which can be secondary to prednisone. Google purple striae and see if that sounds like what you're dealing with. Judy

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 3/24/2009 2:17 AM (GMT -7)   
Thanks for the input all of you. I will make a appointment with my pcp and show him. Always better to air on preccaution. I also start radiation later today, please keep me in thoughts and prayers. I'm nervous.

 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications:  Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/24/2009 9:58 AM (GMT -7)   
Will do smurfy! Judy

sunshine82
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 4/9/2009 3:56 PM (GMT -7)   
Hi! Those sound like Stretch marks, I also have the same marks from Prednisone, I had an autoimmune syndrome and was put on 60mg of pred for 7 months. After the third month these weird marks started to appear on my underarms, chest, stomach and I have a few small ones on my thighs, from my experience, most doctors have no idea this can happen, and lots of people are shocked.

I am now seeing a dermatologist, and I will be having laser therapy to help fade and shrink them.
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