In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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Hi Ginny - I have some idea of what you're going through - I have fibro, too. I think I left the house twice last week, and came limping back in short order. I'm still confused about what's causing what. I'm just about to turn 4 mos. on the Plaquenil. I think it's helped with the fatigue, overall - but the pain issues seem to have worsened - and I can't tell if it's the fibro or what. I keep going thru week long flares, during which I can't seem to do anything that rivals normal life, then slowly come back up with some restored energy and less pain for a couple days, and then get whammed back again with the slightest trigger. I know the back and forth weather isn't helping, but geesh. I had a low grade fever with the onset of last week's flare - which I don't think is fibro. Do you get those?
Don't worry about responding - just rest - it seems to be the only thing that eventually gets me out of the hole - complete surrender. I need to figure out a better way to balance activity and rest on the good days. Years ago with just fibro I seemed to be able to do that. Mabye I'm just getting old (it sure feels that way).
REST your body, relax your mind, moist heat, plenty of fluids, careful diet. Have you tried neuromuscular massage? I hope your flare lifts soon - sending good thoughts and prayers for comfort.
Oh Ginny!!!! I am so sorry you are in such a bad flare. I pray that it will end soon. I agree 100% with what Judy said. I know you have been such a blessing to me while I am trying to adjust to this new life that has decided to stick around with me. You have taught me so much with answers from posts I have made and from other people's posts. Thank you for all you do on here!
21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08