Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, PrilosecLinks: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions
Life is far too important to be taken seriously. –Oscar Wilde, 1882
Interesting. I've been seeing the same massage therapist for over 3 years. Over time she has learned how much is too much for me (there were a few painful episodes while we were sorting this out) and I decided that generally an hour is too long for me - and we stick with 30 min. sessions. I began seeing her for a bad back (herniated disc) and fibro. I've gotten a lot of help from her, but for the last couple mos. it seems I flare after seeing her. We talked about this on Monday - she used very light touch - and I'm waiting to see what tomorrow brings. But I had never thought about Lupus being something that massage could flare up.....I've been blaming the fibro - hmmmm....
Bill - I think something else is going on, too. But none of my labs other than my ANA has been significantly abnormal to date. That is, other than when I'm in a severe flare w/ fever. Then my white cells are low, CRP is through the roof, and liver enzymes are elevated. Everything returns to normal within about a month - except for the ANA.
I used to work out at a fitness center 3 x weekly, doing cardio and weights. I usually walked as well, 2 miles most nights. I felt the exercise helped the fibro immensely. A herniated disc (twice) in 2004 put a huge crimp in that routine, and I've not been able to return to it. The ANA turned on sometime between 2005 and 2007. My rheumie insists there is something autoimmune going on - but can't decide which connective tissue disease has landed. I've also been to an infectious disease doc, who determined that my immune system is hyperactive, also indicative of an autoimmune dysfunction.
I feel like I'm in an ongoing flare - so maybe it isn't right to say that a little bit of exercise/stretching triggers a flare - it's more like it just worsens and deepens the level of flare back to a point of fatigue and pain and malaise and inactivity. I think this is the difference that Lynwood was referring to, between weakness vs. illness/disease/easy to flare....
I totally respect what you have overcome - it's amazing!