More issues: hematuria

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Fiesta
New Member


Date Joined Mar 2009
Total Posts : 14
   Posted 3/26/2009 1:57 PM (GMT -7)   
Hi, all:
 
Well, life is becoming ever more interesting.  Now, in addition to my 1:1280 ANA and ongoing treatment for anemia, hematuria showed up at my annual physical (and not due to infection).  That's definitely a first.  I have to go back and redo the test on Monday (and on Tuesday as well for a different physical).  Has anyone been diagnosed with nephritis from day one?  I'm hoping this was just a fluke, but thought I would ask.  I haven't been diagnosed with SLE, but I know my primary is thinking about it....
 
If it's not a fluke, any other kidney biopsy stories?  I suppose they don't use sedation for this, not in my small town, anyway....
 
Thanks.
 
Fiesta

aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/26/2009 4:46 PM (GMT -7)   
Welcome to HW Fiesta! Do you know if you are spilling any protein in your urine? I was not diagnosed with nephritis from day 1...it happened to me about a year and half later. Hopefully this is a fluke, there are a number of reasons you could have blood cells in your urine.
But a little info about the biopsy, which hopefully you won't need. It takes about 15-30 min, you lay on your stomach and they will give you a couple of shots to numb the area where they will be sticking the biopsy needle in. The worst pain you will feel is the numbing stuff. when they are getting samples of your kidney, you will feel pressure but no pain. The doc will look at the ultra sound to see where your kidneys are and will have you hold your breath while he takes the sample of kidney tissue. This is so your kidney doesnt move and he can make sure that it is a big enough sample. Usually they will get 3-4 samples. It is nothing to worry about. After the biopsy you will have to lay on your back for 6-8 hrs to help prevent bleeding. If you scroll down the previous post, I believe there is one titled Kidny Biopsy and it will have more information on it. Let us know what the results are when you find out!!!

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/26/2009 7:00 PM (GMT -7)   
Fiesta,
I was diagnosed with nephritis from day 1. It was my first 'event' with lupus. I was spilling massive amounts of blood and protein and my kidney function went from 100% to 25% in less than 24 hours. Having said that, it is not the norm! Some people have hematuria for no apparent reason that comes and goes without symptoms. I understand your concern, but try not to panic.

I have had 4 biopsys and was given light sedation for all of them. (versed and fentanyl) It sounds alot worse than it is. Have they suggested doing a biopsy to you? Amy summed it up nicely. Please keep us informed! Judy

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 3/27/2009 4:20 AM (GMT -7)   
Hi Fiesta. I know this is stating the obvious, but are you on your period? Just wanted to make sure docs were not overlooking this. I hope everything works out well. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Fiesta
New Member


Date Joined Mar 2009
Total Posts : 14
   Posted 3/30/2009 4:30 PM (GMT -7)   
Dear Amy, Judy, and Donna:

Many thanks for responding and for your advice, sharing of information, and suggestions. I redid the test this morning and will again tomorrow morning. Perhaps tomorrow the doctor can at least let me know the dipstick results before I leave. It took a week to have the final results last time....

I have done this test annually for years (diabetes in the family) and have never had an abnormal result... until a week ago. With the elevated ANA, even if the microhematuria is not repeated, I suspect that my primary will want at least some sort of investigation. (And yes, I was careful to schedule my appointments around my hormonal schedule, but thanks for the reminder, Donna. <: )
 
Judy, I think I read somewhere that microhematuria can be commonly transient in SLE and may not need treatment, at least not initially.  Thanks for sharing your story.  I don't know about proteinuria; it was not mentioned when the doctor's office called and asked me to schedule a repeat analysis.  Perhaps no mention of it is good news; I'll assume so for now.

And thank you, Amy, for the great description of kidney biopsies. If that test ever becomes necessary, as you said, I have also heard that some people can have sedation such as Versed, which I know works great for me, and which I would request if possible. I am definitely feeling less stressed now, so many thanks to all of you for the support.

Warm wishes for a feeling-well week full of great weather.

Take care,

Fiesta

Post Edited (Fiesta) : 3/30/2009 5:40:11 PM (GMT-6)


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/30/2009 5:11 PM (GMT -7)   
Proteinuria can also be transient to a point, depending on how much you are spilling, however, it is of particular concern for lupus pts because of the tpe of kidney disease we usually get, in which the glomeruli are affected. But, as you said, no news is probably good news. Keep us posted. Judy

Fiesta
New Member


Date Joined Mar 2009
Total Posts : 14
   Posted 3/31/2009 9:33 AM (GMT -7)   
Great news! Dipstick this morning was normal. <: My primary is out of town until the end of this week, but if I was normal today, it's reasonable to assume that I was normal yesterday.....

If anything changes, I will let you know. Again, thanks for the support!

Fiesta

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/31/2009 9:52 AM (GMT -7)   
That is awesome news!!!! I'm so happy for you! Judy

Fiesta
New Member


Date Joined Mar 2009
Total Posts : 14
   Posted 4/1/2009 7:10 AM (GMT -7)   
I just called my primary's office this morning to see if they could give me the results from Monday's test. The receptionist took my info, confirmed the test date, and then, instead of giving me the results, said that she could have one of the other doctors call me (my primary is out of town). I immediately decided that I would rather hear the news from my primary and told her that I would wait for his return (we would need to talk anyway), but am I correct in thinking, under the circumstances, that something wasn't nomal in that test? Why would a doctor need to tell me? (Per the previous test, my primary asked his lab to call me to reschedule, and the tech told me what was wrong.) She didn't say up front that she couldn't tell me, it seemed like business as usual until she looked up the results. What do you think? It might be Monday before I hear anything....

Thanks. Just wondering....

Fiesta

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 4/1/2009 8:21 AM (GMT -7)   
I've found recently that a lot of doctors do not allow their office staff, nor nurses, to give out labs results until they have reviewed them personally and indicated they are ok to be released to the patient.

So I doubt it means there is something wrong, more likely just means the dr hasn't had a chance to complete his review of them.

Hope that helps,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882

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