sudden urges to urinate

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aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 3/29/2009 5:11 PM (GMT -7)   
Hey Everyone! Well, I thought this had decided to stop but now it is starting to come back and it is happening more and more. It actually stoped after I had my Kidney Biopsy and had the treatment. I don't think its anything to do with my kidneys because it was happening about a year before I was diagnosed. I am not too worried about it, its just a nusence and wandering if anyone has any advice on it? The problem...well when I get the urge to go to the bathroom, i better find one quickly or I will wet my pants. Does this happen with a lot of people that have lupus or am i an odd ball? There is absolutly no choice of waiting. The only thing that is odd to me is I can sleep the whole night and not even wake up once to use the restroom! It's weird I know! Do you think it is something I should ask my nephrologist or Rhuemy? I have been going everyweek to do a urinalysis and blood work and my kideys have been funtioning great.
Thanks in advance :)

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 3/29/2009 6:48 PM (GMT -7)   
I don't know anything about it, but have to admit that sounds like something that could really intrude on your life!!! UGH.

Could it be a bladder infection? I think I was like that right before being dx with a bladder infection.
Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


SmurfyShadow
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Date Joined Dec 2008
Total Posts : 2386
   Posted 3/29/2009 11:20 PM (GMT -7)   
Ask your doctor for a complete full panel blood work, especially Hemo AC1. It can be things like bladder infections, uri's, diabetes, etc. Best to find out than miss something like diabetes or a disease like that!
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications:  Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 3/30/2009 8:35 AM (GMT -7)   
It definitely sounds like a bladder and not a kidney issue. I recently had a severe uti and the only symptom I had was urinary frequency! And I had to be quick about it too! Wouldn't hurt to mention it to the doc. Judy

NanciLee
Regular Member


Date Joined Nov 2006
Total Posts : 47
   Posted 3/30/2009 4:30 PM (GMT -7)   
If you were over 50 I would say join the club. I can't laugh, sneeze, cough or jump without the fear of an accident but since you are 21, I would said you could have all the above but also a falling/ tilted uterus.

Tell you doctor.

And stay dry!
 


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 3/30/2009 4:51 PM (GMT -7)   
Hey everyone! Thanks for responding back. I don't know about the uti unless it can be a chronic condition? (can it??) Because before January, it lasted almost a full year. Today I kept track of how much I used the restroom and I only went 3 times all day, including first thing this morning. I drink plenty of water but I also have a lot of fluid in my legs and ankles (was told side effects of prednisone...suprise suprise) the last time i went to the nephrologist he went ahead and gave me my paper to take to the lab to show what blood work he wants run. I go on Wednesday and the things he had x'd where the Comprehensive Metabolic Panel and CBC & diff. Is that a complete full panel blood work? Is there any other blood work I should request?
NanciLee...your post made me laugh! A lot of times I have the same fears...it really does suck but what can you do?

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 4/1/2009 6:17 PM (GMT -7)   
Yes, Amy, I have the same problem and it my not so good urologist dxed it as "trigonitis", a diagnosis that has largely been replaced by the term interstitial cystitis. He did not give me the IC dx because my bladder was holding too much urine that day for the dx, but he saidit just may have been a "good day". There is another similar condition called chronic bladder pain, all the pain and no way to really fix it so much. IC is an autoimmune condition they think. It is triggered heavily by diet and there are a number of sites for IC that give a good list of foods to avoid. Soy is a big one, as it diet drinks and sweeteners. Diet coke and coke one are definite no-nos and a local man here was told his bladder cancer was entirely triggered by the use of sweeteners and especially diet coke, whch he switched to after a diabetes diagnosis. I'm sure diabetes doesn't help, as it seems to change the way you blood is, how thick and thin, and also is tied with vascular problems.

I actually had angioecstasias in the floor of my bladder--the trigone--and lots of urethral polyps, which were never even mentioned by the first urologist who scoped me. I believe that liver and kidney diseases increase the blood pressure on small blood vessels, which rupture. Angioecstasias onthe face are the familiar spider veins. I would guess if you get them on your face, you may get them elsewhere like in the intestine and bladder. I also have them in my small intestine.

Angio ecstasias in the intestine are a common finding in the elderly, but not so with younger people, but are often not mentioned unless you have a complaint--I was really nauseaus with mine and had bladder infection symptoms all the time and it was maddening.

Diet resolved my bladder problems about 90% though the ultram probably masks some of the pain. Also, ultram and pain meds can make you not be able to pee, quitting for a while helped me. I try hard to remain hydrated, not drink too much or too little water and to keep gatorade on hand for the electrolytes (I like distilled water--which has no electrolytes).

I would try to find a female urologist or a good urologist and have them scope your bladder--they do it in the office-- and tell you what they find. They can burn off polyps and test you for IC, and at least have an eye outfor it.

The diet is the one thing that helped me. Followng a liver friendly diet, replacing lunch with my liver friendly smoothie full of fiber and whey,not soy, really helped. Soy is not very good for people from a liver and bladder diet standpoint, and full of cancer feeding phytoestrogens, very high sodium too. Hope this helps and tha you feel better.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 4/2/2009 4:07 PM (GMT -7)   
Wow Marji! Thank you for all the great information. Why do you think that it stopped after I had the kidney biopsy? Was it the IV's of prednisone and then taking pred orally? I think I am gonna try changing my diet before going to a urologist. See if that helps. It won't hurt my extra weight gain to change it a lot. I will probably start weight watchers again. The last time I did it, I lost 20 pds and was at my perfect weight and then a few months later....all I have to say is prednisone!!!I do have an apt tomorrow with my kidney doctor and will tell him about it. See what he thinks. Maybe something will show up in all the blood work I had done yesterday! Thank you again! This will help a ton :-)

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C

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