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bigsanfer
Regular Member


Date Joined May 2008
Total Posts : 57
   Posted 3/31/2009 2:37 PM (GMT -7)   
Hey Everyone. I have recently been experiencing heart pain and It got pretty servere the other day. So my mom called my rhuemy and she told me to go the the hospital right away.. So we did and then they ran a echo on my heart, blood tests, x-ray and an EKG (I think that is what it was called.) but all of the tests came back normal. The pain was getting worst and I was now having trouble breathing so they decided to put me on morphine. It took 45 minutes and 8 needles to try and put the morphine in through an iv.. and once they did I was alergic. So They just gave me a high dose of Prednisone and the pain is gone today but not completly and usually when this happens the pain gets worse as the day goes on. I can still feel it when I breath deep. Has anyone experienced this?
Medications: Prednisone 5mg. Plaquenil 300mg. Methotrexate 12.5mg. Naproxen (for pain). Multivitamin. Calcium. Fish Oil. Vitamin D. Flaxseed oil. Folic Acid.
15 years old. Lupus, and Raynauds.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/31/2009 3:39 PM (GMT -7)   
hey bigsanfer,

So sorry you are having such pain. That must be really scary. It actually sound like it might be your lungs????? I'm glad you had it checked out. But, I hope it disappears completely for you. Keep us posted.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 3/31/2009 4:19 PM (GMT -7)   
Hi Bigsanfer. It's good to hear from you, but it sure sounds like you had a bad scare. I hope the pain stops quickly. You did the right thing goin to ER. Maybe the next step is to see your primary care doc. My rheumy is great, but he sends me to my primary for any tests besides the lupus bloodwork and pee. Your primary will look more thoroughly than the ER. Let us know how it goes. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


bigsanfer
Regular Member


Date Joined May 2008
Total Posts : 57
   Posted 3/31/2009 5:58 PM (GMT -7)   
Thanks for the reply ! The pain is a lot better now but my family and I just want to make sure. I have an appointment comming up and the ER doctor kept in touch with my doctor while I was there. I was actually suppose to have an appointment that day.
Medications: Prednisone 5mg. Plaquenil 300mg. Methotrexate 12.5mg. Naproxen (for pain). Multivitamin. Calcium. Fish Oil. Vitamin D. Flaxseed oil. Folic Acid.
15 years old. Lupus, and Raynauds.


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/22/2009 4:44 AM (GMT -7)   
Hi bigsanfer, I'm a little late in getting this out to you. I'm new and just learning how to get on the various sites or what ever they are called blush . I  was diagnosed three years ago with Lupus and my reoccuring inflamation is mostly in my heart area. They are calling it pericarditis which is inflamation around the lining of my heart. However, the inflamation gets so bad sometimes, that it seems to take my breath away. Sometimes it travels in through my back and I feel like a 400 pound person is sitting on my chest while someone else has their knee in between my shoulder blades. Sorry to be so graphic, but in truth, I have felt very alone in this pain until I met the wonderful folks in HW. I'm sorry you are in pain and I hope you can discover a way to deal with it. I am on meds presently and recently was put on lyrica to deal with the pain in my nerve caused my muscle spasams from a long flair. Sometimes people get inflation in their lungs. I never experienced pluracy. I pray I never do. God bless Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis,


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/22/2009 7:40 AM (GMT -7)   
Bigsanfer,

I did see this post either. You must have been scared out of your mind. I'm relieved that you're feeling better and that your doctors are watching you closely. Let us know how your appointment goes.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/23/2009 9:11 AM (GMT -7)   
hey there Tammy. I am in the process of getting a lupus diagnosis. I had a positive ana twice and one was high and symptoms such as photosensitive rash, burning pain in legs, joint pain and puffiness, headaches, etc. I also have a mitral valve prolapse and the last rheumy was trying to say that that and being double jointed was causing my symptoms because the more specific autoimmune tests were negative. Do you know or have you heard anything about this?

Bigsanfer, I am sorry you are feeling so bad. I have chest pain too. Sometimes sharp and sometimes pressure that comes in like a sharp pain. It comes real quick then goes and sometimes it stays for a few minutes then alleviates. I noticed it happened 2 nights ago when I was laying in bed watching a movie and it was the pressure feeling. I immediately broke out in a sweat and had pulsating in my ears. I often feel my heart doesn't beat right especially when i'm anxious or exercising(which I dont do anymore because it aggrivates it to where it hurts) Just wondering anyones take on this and wanting you to know you aren't alone :) I go to Johns Hopkins in Baltimore Maryland May 21st so hopefully they will figure something out! I hope you all are well. Take care. -Brittanee
*Wifey & Mommy*


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/23/2009 10:18 AM (GMT -7)   
Thanks for your encouragenment. I don't know much about the ANA thing. I need to learn more. It is comforting to know we are not alone in this heart pain. I can hardly believe the intensity of the pain at times. Before I was diagnosed with Lupus, I was sure I had my mom's lousy coronary heart disease. But, I was clean as a whistle. Now when the pain comes, I tell myself it will be okay. I then try to figure out what I did that made a flair come. I am really glad I read the Spoon theory. Now I watch a little closer, the number of spoons i am giving. Yesterday, I drove 150 miles in the sunshine and by 4PM I was spent.I had to give up on church dinner and take a two hour nap instead.Today I am pooped and so I used up one of yesterday's spoons I guess shakehead . God bless Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/23/2009 10:41 AM (GMT -7)   
I am always reading trying to learn something new about lupus. You can never know enough and it seems like it's always evolving and teaching us something new. My grandmother has heart disease, tacchycardia. Mine is not always a rapid heartbeat though just pounds and hurts and sometimes gets really slow. It was 47 at rest one time I think. It makes me tired and short of breath. A friend of mine who has lupus has the tacchycardia like my grandmother but hers is from her lupus. Her heart rate goes sky high like up to 196. It's crazy. I know how that can be with the naps. The last flare lasted a month and I never felt rested. It's awful. Im just starting to feel a little better and have energy back. I hope you get some rest and keep me posted! take care. -Britt
*Wifey & Mommy*


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/23/2009 12:32 PM (GMT -7)   
Hi Mommyof121. Thanks for your encouragement. Tacchycardia happens to me. and I just blamed it on the mitrol valve prolapse. I am going to start a new thread and ask how many have that. My head pounds when it happens. Thanks Tammy

I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/23/2009 1:09 PM (GMT -7)   
Hey Tammy. Yeah my head pounded like a pulsating sound in my ears when it made me sweat the other night. When it skips a beat or i try to exercise it gets real fast. Im wondering if it is a worsening of the normal harmless mitral valve prolapse or if lupus is causing something else... well id love to be a part of the thread if you would like :) I hope you get some answers! -Britt
*Wifey & Mommy*

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