Can Prednisone intensify symtoms of a flare?

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purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/1/2009 5:06 PM (GMT -7)   
Hi everyone,
 
I have been in a terrible flare for the last 2 weeks and it just seems to keep getting worse.Every joint in my body is inflammed and hurting and I was starting to feel the pluerisy coming back. So my Rheumy gave me a prednisone dose pack. I have been taking it for 24 hours now and I feel even worse. All my symptoms seem to be intensifying. When I am in a flare my face and chest always look like I have a sunburn but today I look like a lobster....my face, neck, chest and arms are bright red. But I am freezing all the time. Its 75 degrees here in AZ and I am all bundled up. Also I have an ocular migrane. Yesterday I was at my pcp office for a couple hours for and appt for me and my kids. In her exam room the hole ceiling is flourescent lights and the migrane started then. But I just felt the longer I sat there the lights were draining all my energy. So I am just not sure if my symptoms worsening is from the lights of possibly from the prednisone. I have take dose packs before with no problems. Does anyone have any ideas?

Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/1/2009 5:46 PM (GMT -7)   
Hi Renee,

I wonder if you have a lupus flare PLUS a fibro flare. The prednisone 'can' intensify or cause your fibro to flare up. So sorry. I bet Ginny will be able to comment on this.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Piffle
New Member


Date Joined Jan 2009
Total Posts : 10
   Posted 4/1/2009 6:05 PM (GMT -7)   
Sorry you are feeling so miserable. Maybe you are in a fibro flare and not a lupus flare or you are fighting a virus. I was at my rheumy today and asked her if prednisone can intensify a fibro flare. She said there is not research to support this that she knows of. She did say that prednisone is not really an effective treatment for fibro like it is for lupus. Maybe you should call your rheumy back and ask him/her your questions.
Wishing you well
Piffle

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/1/2009 9:21 PM (GMT -7)   
Rosie said exactly what I was thinking (You read my mind Rosie!!).  It sounds like it might be a Fibro flare you're in and not a Lupus flare.  Fibro and Prednisone are like oil and water.  They don't get along at all.  Whenever I'm on too much pred, my fibro goes absolutely insane. Pain everywhere, and I feel wretched.  So I drop the pred back down and I'm better again.  It's so hard to know which disease is flaring isn't it. 
 
Talk to your rheumy about this as soon as you can okay?
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/1/2009 9:32 PM (GMT -7)   
My Rheumy and I talked about whether it was fibro or lupus but we were pretty sure because of all the joint inflammation and the pleurisy kicking in again. But I think both are flaring and now the predisone is making the fibro worse. I just don''t know what to do anymore. I can't afford my cortisone shot anymore bc my Rheumy doesn't take my insurance. I will call my Rheumy in the morning. I wish I could just stay in bed with the covers over my head and my bed buddy for a week....:( It just doesn't seem like anything I take is going to help right now....:( Thanks guys for the help. I don't know what I would do without all of you.
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/2/2009 4:50 AM (GMT -7)   
Hi Everyone. I am new to this site and so thankful I found you. Renee I have been in rough shape for about 5 weeks and pednisone did not help. I also am wondering why at 40 mgs I not only did not get better, I lost 8 pounds from nausea. The chills made me shake for hours at nightime and sleep was rough. I have all kinds of worries like, "How will I keep my job? How can I keep my house up?" Is there any other drug that I can take? I am on mobic, plaquenil,colchicine,etc.,etc.plus herbs.  Peace to you, Tammy

purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/2/2009 7:48 AM (GMT -7)   
Hi Tammy, welcome and you are at the right place. Sometimes just having some place to go to vent and get ideas from people who are going through what you are is better then medicine.....:)Reading all the posts have taught me so much, just to hear what others are going through and how they deal with it. How long have you been dx? Try to take care of yourself....:)
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 4/2/2009 4:23 PM (GMT -7)   
Hi Renee,

I too here live in AZ, outside of Phoenix and I am having horrid migraines right now. I am also one of the most photosensitive patients my Rheumy has ever seen, and that Mayo Clinic ever saw. (my Rheumy is in St. Louis and I fly back to see him every 3 1/2 months, he is that good and my primary) I have been living here in Phoenix for 15 months now and have discovered with help of friends a few things here about the migraines plus the sun along with my photosensitivity issues.

I was wondering what meds you are on, as I was never photosensitive then one month April 2004 bam, it surfaced and I could not go out in the sun. It has been that way since my lupus. I now know that my meds make it worst for me too, and the prednisone and steroids are culprits. I was wondering which other meds you are on, as plaquenil can make you also more light sensitive, its rare, but it can. Here I put on sunscreen spf 85, sunglasses, baseball hat and I bought the sunscreen shirts at REI and throw those on over tank tops for doctor visits etc, as they are light weight and not hot for unprotected areas. They also make capris and such that roll down and look nice for when you are out for visits to doctors, etc and are spf 55 with sunscreen on underneath. It really has made a difference.

With the migraines, I know the allergy season is horrid down here now and if on antihistamines they can make you more photosensitive as well. I have had sinus headaches in the back of my head and then the sun intensifies it right now with the flares. Its like you can't catch a break. We literally keep our house dark with shades and stylish curtains, (cheap at Ikea) and this has helped with the migraines and lupus, plus the utility bill.

I don't know if this helps you but check some of your herbs and meds, or if you like post them and I would be happy to help you research them to see if they are making you more light sensitive. I hope you get relief soon.

Leta
sle 01 w/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D def 4/07, Iron def ferritin 8/07, Chronic migraines 01.Meds- baclofen 20 mg, prenatal tabs, potassium, vit D 50,000, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 50mgx3, motrin 600mgx3, famotadine, darvocet 100x2 prn, amitriptyline 25mg, maxalt, topamax 150mg, tigan


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/3/2009 5:57 AM (GMT -7)   
Thanks for the welcome! I am tearful at being able to talk to someone else who has pain and extreme fatigue. I have felt very alone in this. I have been diagnosed for three years and it has been rough. Steroids do very little to calm the reoccuring pericarditis. I've been doing some reading and learned that nsaids are more effective. I called my doc and have not received a call back yet. Has anyone had better luck with nsaids. I am on mobic which helps my joints a lot. However the inflamation around my heart is a real PAIN in returning every couple weeks or months. Now that the sun is shining more, I am really struggling. I feel like I have the flu almost daily. Sheesh! Thanks again for the welcome! I am NOT ALONE!!!

purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/3/2009 7:30 AM (GMT -7)   
Hi Leta,
 
What brought you to Arizona? Sometimes I wonder what I am doing here between the hot sun and the dust storms it really isn'tthe best place for someone like me. I love to swim and I have to wait until the sun goes down everyday in the summer...:( I guess I better invest in some better suncreen. How do you like it here?
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


purplerose652
Regular Member


Date Joined Mar 2006
Total Posts : 124
   Posted 4/3/2009 7:33 AM (GMT -7)   
Hi Lovedbyhim,

No, you are not alone. There is always someone here ready to help! I can't take nsaids but I have been told they work better too. If you can take them its worth a try...:) I hope you start feeling better soon.
Take Care,
 
Renee
 
"Grace by which I stand."
 
Fibromyalgia, IBS,Gerd, Scoliosis, & Costochondritis, Lupus
 
 


Leta
Veteran Member


Date Joined Aug 2005
Total Posts : 590
   Posted 4/3/2009 10:22 AM (GMT -7)   
Hi Renee,

I live here in Mesa, and I am from St. Louis. I honestly love it. I am miss the seasons, it is harder with the sun but honestly, the lack of cold is easier. We are still making adjustments to the house to make it darker, but with shades, and a wonderful supportive boyfriend and new friends, we are adapting. We are making the house have plenty of things for me to do, hence I move in with a bachelor so plenty of organizing and decorating and yard work after sun down to keep me busy LOL. I have fibro too so that keeps me on my toes. I don't have kids, but have a golden retriever who is 6, pit bull puppy who is a hand full and a ferret Loki who is 2. The puppy is keeping me busy. My days are starting earlier in the summer, I try about 5am, go to the gym before sun up and have my time to myself. Get the dogs outside, fed, then spend some doing stuff around the house. Get the boyfriend up and take a break. Back up with a cup of coffee if needed, and breaks as needed to pace myself with chores. Nap around 2-5, then feed the dogs around then. Boyfriend back home then it starts all over. I try really hard to keep a schedule, and the workouts help with the fibro and pain. I do make sure to take the breaks and nap daily or rest regardless. I am usually in bed by 10pm or passed out on the couch. Weekends, I do go out in the afternoons, but cover up completely like I was describing. I do hike, but we do that stuff early or late in the day as it makes it nice to see the sunsets. We have a computer room that he can retreat to for sun when he wants it, but he likes the dark too. We are also going to put up window film on the house that is anti-reflective and you can pull it down when you move.

I am sure with kids it is difficult, but they have to be educated and they adjust, besides, they love their rooms. LOL. I have friends with lupus and their kids educated on it have been overprotective and love to help, and then love their rooms if made comfy for them to retreat too.

Try to hang in there. My email is under my profile if you have questions on the sun sensitivity and what else we have done.

Hugs,
Leta

turn
sle 01 w/autonomic 11/05, photosensitive 04/04, sjogren's 01, ra 01, fibro 8/05, sinus tachycardia 6/04, asthma 96, allergies 6/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06-gone, TIA 5/06, Porphyria 5/06, Vitamin D def 4/07, Iron def ferritin 8/07, Chronic migraines 01.Meds- baclofen 20 mg, prenatal tabs, potassium, vit D 50,000, qvar, xopenex, singulair, plaquenil 400 mg, tramadol 50mgx3, motrin 600mgx3, famotadine, darvocet 100x2 prn, amitriptyline 25mg, maxalt, topamax 150mg, tigan

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