I'm Struggling

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Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/1/2009 6:51 PM (GMT -7)   
Hi All:

I just wanted to ask for some prayers and positive energy. I'm struggling really bad, I'm in the middle of a serious flare. It seems like every 3 to 4 months my counts drop or rise depending on the test and I end up in the hospital. Well my wbc/rbc are really low and my CRP is rising. I also have right flank pain and burning with urination. I've got a telephone consultant for my doctor, buts she's working nights and she's given 72 hours to respond to my request. I just emailed her a note about how I'm feeling.

So please send some good vibes my way. Oh I spoke with Carol and she's going home tomorrow or on Friday. Thanks for being there for me.

Love,
Barbara
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/1/2009 7:43 PM (GMT -7)   
Hi Barbara,
 
Of course we'll pray for you! I'm sorry you're going through another rough spell. I hope your doctor can touch base with you before the weekend.
 
Prayers are on their way Barb.
 
Love
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 4/1/2009 7:48 PM (GMT -7)   
Barb
I was thinking about you. I'm sorry you are haveing a terrible time. Hope she calls you sooner. Positive energy and prayers are comming your way. Take Care. Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/1/2009 7:54 PM (GMT -7)   
((((((((((((( Barbara ))))))))))


Hugs, prayers, tea and . . .

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


alienwife
Regular Member


Date Joined Feb 2009
Total Posts : 108
   Posted 4/1/2009 8:02 PM (GMT -7)   
(((((((((((((((barb)))))))))))))

I'm so sorry you're struggling so badly, Barb . . . My thoughts and prayers are always with you.

Anne
AlienWife
There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as though everything is a miracle.
Albert Einstein
Dx: SCLE, Sjogren's, Reynaud's, Peripheral Neuropathy


Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 342
   Posted 4/1/2009 8:21 PM (GMT -7)   

Hi Barb,

I'm sorry to hear you are feeling badly again. I am sending prayers and positive energy our way! I hope and pray this is just a bump in the road and you will soon be feeling well again. You are in my thoughts and prayers.

Hugs,

Melissa


Lupus - 1997   Fibro - 2001    Sjorens  -  2007   Raynauds  -  2008
Plaquenil, Imuran, Prednisone, Synthroid, Topomax, Effexor, Norco, Prilsec, Xanex, Elidel, Restasis


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/1/2009 8:32 PM (GMT -7)   
Barb,

I've been thinking about you all week and hate to hear that you're even worse than when we spoke. You can bet I'll be sending warm healing vibes your way all through the weekend. I'll be out of town for a few days and will call you when I return. I hope your doctor calls you real soon. Even though she has 72 hours to return a call, I'm betting that she calls you sooner because she knows how ill you are.

Take care of yourself sweetie.

((((Hugs))))

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


mawmaw66
Regular Member


Date Joined Feb 2007
Total Posts : 102
   Posted 4/2/2009 7:06 AM (GMT -7)   
You'll be in my prayer also Barbara.
Hugs from me too Linda
Lupus, RA, OA, Raynard diseases, Hypothyroidism and a Breast cancer survivor.
Meds. Plaquenil,Synthroid,Lexapro,Mobic,Hydrocodon5/500 for sever pain.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 4/2/2009 7:17 AM (GMT -7)   
Barbara,
I will be praying for you. I know you have been through so very much and that can make a body weary! I'm praying that God will renew your strength and give you rest. Love ya, judy

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/2/2009 3:16 PM (GMT -7)   
((((( Barbara )))) I pray you start feeling better soon! Hugs and love to you!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 4/2/2009 3:38 PM (GMT -7)   
I'm praying for you and so sorry you are worse!
Hugs and prayers

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 4/2/2009 5:56 PM (GMT -7)   
I think of you every day, Barbara, even those days when I don't feel up to communicating with anyone! Sorry to be so out of touch.

Hang in there, my friend.

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


babe38
New Member


Date Joined Mar 2009
Total Posts : 4
   Posted 4/2/2009 7:18 PM (GMT -7)   
Confession of Health Prayer

<full text deleted>

Repeat this three times a day

<Edited per Rule 10. No posts of an overtly political or religious nature OR posts promoting advocacy of particular personal, medical, legal, religious, political, or non-profit causes.>

Post Edited By Moderator (Lynnwood) : 4/3/2009 8:11:17 AM (GMT-6)


smokeyswife
Regular Member


Date Joined Oct 2006
Total Posts : 281
   Posted 4/3/2009 5:45 AM (GMT -7)   
Sending Prayers Your Way Barbara!! I hope you are feeling better soon!!!


Connie
 
 
 
 
diagnosed with RSD in March of /03, diagnosed with Lupus in Sept./06.Thyroid Disease ,RA
Taking Methotrexate, Plaquenell, Folic Acid, Synthroid,Prednisone, Pantoloc, Singulair, Tramadol, OxyCodeine and extra Strength tylenol when needed,and Zytram.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 4/3/2009 6:26 AM (GMT -7)   
(((Barb))) I'm so sorry ur struggling. Lynnwood sent a wonderful message about you and me to her friends while telling them about my Team Butterflake Lupus walk. It was very sweet. Anyway, lots of folks are praying for you, as am I. I'll also sending you lots of positive energy to help get you thru this flare. Love, Donna
Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 4/3/2009 8:02 AM (GMT -7)   
Barb,
 
(((hugs))) It saddens me to think that you are feeling so poorly.  You are always in my thoughts and prayers. 
 
Take care,
Julia
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/5/2009 1:34 PM (GMT -7)   
(((((((((((Barbara))))))))),
You know my thoughts and prayers are with you.
Navy
Forum Co-moderator - Crohn's Disease:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/6/2009 12:53 PM (GMT -7)   
Barb,

I've been out of town for a few days so am totally out of touch. Are you feeling any better? I hope???? I see that you haven't posted in a couple of days and I'm afraid that means you're still struggling. Let me know how you're doing as soon as you're up to posting.

Thinking of you,

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 4/7/2009 7:23 PM (GMT -7)   
((((Barb)))) I'm so sorry this is happening and hope the doc gets with you soon. I know you must be totally wiped out, in all ways, but I hope youenlist family to help you be a squeaky wheel on this if you dont get a response soon. I hope that it is something they can quickly knock out. Im praying for you, Barb. It seems like everyone is getting hit right now. Much love and strength to keep em on their toes and taking good care of you.
Love, Marji
Ills--Sjogrens-Lupus cond., AI polygland. dysfunction 2, hyper/hypopigment, scoliosis,kyphosis,stenosis, deg.,O.A.,spine surgeries, salivary/lymphectomies, NASH, COPD, RLS, UT/GI bleeds, hystero, brain/nerve damage,TB
Meds--INH,Plaquenil, Evoxac, Metformin, Synthroid, HCTZ, HRT and Lidocaine patchs, Voltaren gel, Klonopin, Vicodin, Restasis, Albuterol, steroids


jojo711
Regular Member


Date Joined Aug 2008
Total Posts : 46
   Posted 4/7/2009 9:26 PM (GMT -7)   

Barb, i hope ur felling better! let us know. hugs and prayers ur way!

joan


dbab
Veteran Member


Date Joined Jan 2004
Total Posts : 4151
   Posted 4/8/2009 7:06 AM (GMT -7)   
(((Barb))) Been gone for awhile and I hate to come back and see that you aren't doing well. Please know that I am keeping you in my thoughts and prayers.

"Des"
 
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Protonix 40mg, Lodine XL 500mg, Methotrexate 10mg, Prednisone 4mg (weaning), Supplements



PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/8/2009 9:36 AM (GMT -7)   
Barb, I hope our prayers are helping.

Des, it's really good to have you back. How are you doing?
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 4/9/2009 9:50 AM (GMT -7)   
Hi Everyone:

Just a quick note to say I'm no better and I missed my doctor's call, so now I'm waiting to hear from her again. I have an appointment on Monday to see her so I may just wait. I think I need a few days in the hospital. I desperately need to get better, as I have to make a trip home to Minnesota to see my father. I need to be well enough to travel on May 11th. Thanks for all your support and I appreciate all the prayers. Thanks for being there for me.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 4/9/2009 3:57 PM (GMT -7)   
I am so sorry you are feeling so bad! Did your doctor call you back today? I'm keepin you in my prayers
 
Love ya!

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/9/2009 6:58 PM (GMT -7)   
((((((((((((((((((Barb)))))))))))))))))))))).  I hope you can touch base with your doctor tomorrow too.  I'm glad you touched base with us. Prayers are continuing!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums

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