It IS really hard to continue moving forward w/o good support from the doctor end of things. Have you made your "Doctor Cheat Sheet" yet? If not look in Lupus Resources (link at the end of my signature) and search for the post about
preparing notes for your doctor appointments. It really is a great help for me. I seem to get into the doctor's office and fall silent. The list helps me recall quickly and with selected words and brief, well thought out, descript
ions and questions.
You might also consider taking a support person with you. It must be someone who is verbally supportive. It is interesting how much more attention my mom receives at her doctor appointments when I go with her. I was irked at one of her recent doctor appointments because the doctor was SO fast! But mom said that was the most time this doc ever gave her and mom thought it all went really well. She also said that since then the doctor gives is more attentive. HA! She (the doctor) doesn't ME going to every appointment. I had a little too much to say! I can battle for a loved one . . . but not for myself.
Anyway . . . I hope your appointment brings you closer to good treatment. The dx is less important than getting good treatment for your symptoms. So I've learned to push more for "the treatment plan" than a dx. I remain in dx limbo with all my issues too. I've been dx'd with lupus and un-dx'd . .. and last year (colonoscopy with biopsies) was told I have Crohn's . . and now GI doc says no. ????? I really don't care . . . I just want to make sure that my issues are properly treated . . . they can call it whatever they want.
Keep us posted.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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