How long is an average lupus flare-up?

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southerndiva
Regular Member


Date Joined Apr 2009
Total Posts : 122
   Posted 4/6/2009 1:54 PM (GMT -7)   
Hey everyone,
I am a 49-year-old female and just joined the website this weekend and I'm looking for some answers. My rheumy told me that I have lupus based only on the fact that I have joint pain and inflammation and a positive ANA (can't remember the count). Chest x-ray came back clear. Had a Anti-DNA test a year ago that was negative and I don't have any other symptoms but what I listed above. I'm in a major flare-up right now and it has been going on for a month. They started me on methotrexate and plaquenil last week and supplement with folic acid. So far no relief. Also on anti-inflammatories and darvocet for the pain. Have any of you been diagnosed based on only 2 symptoms and I know flare-ups are different for everyone, but can't seem to find any information on how long one can last. I have a strong family history of rheumatoid arthritis but my RA factor came back negative so that is why my dr. thinks it's lupus. Would love to hear your thoughts.

Suffering in the South,
Lynnette

DX - lupus and carpal tunnel syndrome
meds - methotrexate, plaquenil, folic acid, darvocet, naproxen and relafen

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/6/2009 2:59 PM (GMT -7)   
ok who is your dr because i have more criteria than you and am still not diagnosed and i am in a flare too and it has lasted 3 weeks and i cant take much more! im a fulltime mom and student and have final exams the end of this month. I am having so much fatigue and pain and rashes ugh. I need a break and no amount of sleep is helping! :( sorry I kinda needed to vent there for a minute. Honestly if you have fam history of RA then autoimmune runs in the family regardless of which disease. I have no known relatives who have anything of the sort however I dont know my father or his side of the family. Suggestions? I have a laundry list of symptoms and a positive ana as well. 1/160 speckled and the other was 243 which was high and im waiting on the more specific tests for lupus...antiDNA etc. Hope all is well. -Brittanee
*Wifey & Mommy*


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5511
   Posted 4/6/2009 4:44 PM (GMT -7)   
Hi Lynnette,
 
Welcome to the forum!  A flare up is different for every person. Some people will flare for a few weeks, others months, others years.  It all depends on how you respond to your meds, and how you look after yourself (sleep, stress, etc). 
 
Your meds won't fully kick in until you've been on them for about 6 weeks. In the meantime take care of yourself, get lots of rest and manage your stress as best you can.  Then see how your meds start working for you.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


southerndiva
Regular Member


Date Joined Apr 2009
Total Posts : 122
   Posted 4/6/2009 5:09 PM (GMT -7)   
Thanks guys for all the great advise! Not sure I wanted to hear the year long flare time but I guess I'll have to wait and see. I feel for you Brittanee. Thank god my children are old enough to take care of themselves and that I don't work. The stress factor is a huge one though with raising teenagers. It always seems like there is something going on all the time and downtime is something that I would pay for. I actually have seen several doctors throughout the last year and a half and I think that is not always good either because they all have different takes. I cannot tell you how many times my blood has been drawn for sed rates, and arthritis panels. Also had hormone levels checked as well only to come back "in the normal range". I hate that when they tell me I'm in the normal range when all I know is that I feel like crap almost everyday and that is not normal for me. One year ago I would get up early and walk my dog at least 4 mornings a week for about 45 minutes. Now I am lucky if I can get to the kitchen to make a cup of coffee. Then comes the weight gain when you become sedentary and that is also not good for the joints. I do, however, have the best husband ever and he has been my rock! This week was bad though because it was our 20th wedding anniversary on Wednesday and I couldn't even get out of bed to go get him a card and he left me one before he went to work that was the most beautiful card ever. I know he didn't mean to, but in a way, it set me off to a really bad day of crying because I felt so bad that we couldn't even go out to celebrate. Barely got dinner on the table. Anyways, thanks for listening. I'm so glad I found this website. It really has helped alot already to know that I am not alone. I hope they find treatment for you soon Brittanee. Keep us posted.

Suffering in the South,
Lynnette

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/8/2009 12:26 PM (GMT -7)   
Hey there Lynette. Glad to hear we could be of some comfort :) It has been soo hard. This flare has lasted 3 weeks or more and its a bad one. Im always tired and the pain is getting worse. Last night my legs burned so bad and ached. I had sharp pains and felt pressure inside I guess from swelling. My feet went numb and tingly too. Its awful :( I am in school fulltime until the end of this month as well and its so much work Im having a hard time keeping up. I am taking the summer off to go see a Rheumy a few hours away a friend recommended and hopefully start treatment. She and I have almost all the same symptoms and she was diagnosed in october with CNS lupus. I think I will get answers when I go but I hope I dont have to wait to long. Ill keep you in my prayers! God has answered me at least with what I have and has given me support. I hope all is well on your end. Take care. -Britt
*Wifey & Mommy*


southerndiva
Regular Member


Date Joined Apr 2009
Total Posts : 122
   Posted 4/9/2009 2:56 PM (GMT -7)   
Hey Brittanee,
I wish I could say all is well. You probably saw my other post that I feel like I'm dying some days. They are going to start me on some prednisone because I have so much swelling that my knuckles are turning black and blue. Last time I felt this exhausted was when I gave birth to my kids and they are 16 and 18 now. I hope you have luck seeing the rheumy and getting on a treatment plan that works for you. Won't your primary physician help you in any way with some medications until you get to see the rheumy? Nobody with this disease deserves to be in as much pain daily as we go through. I try to keep hanging in there and not always show my family how bad it is, but that is really hard to do. I hope you get some relief soon and pray that I do as well. This thing is beating me up.

Suffering in the South,
Lynnette

Lord_Walters_Lady_Bug<3
Regular Member


Date Joined Oct 2008
Total Posts : 257
   Posted 4/13/2009 12:37 PM (GMT -7)   
Amen to that sister! lol the whole trying to keep it enclosed from the family. It is so hard! I am having depression issues now and realized I am distancing myself from everyone when I flare even my son who will be 2 in june. So on top of all the symptoms I now have this and it took my bf telling me how hurt he was the other day for me to realize it. Im so bummed :/ We talked though and he is willing to take me anywhere we have to go to get me feeling better. I wish you the best and im here if you ever need to talk! mommaof1lilboy@yahoo.com take care lynnette! -Brittanee
*Wifey & Mommy*


Appa1024
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/15/2012 1:09 PM (GMT -7)   
Hello everyone,
 
I'm writing because my younger sister has been diagnosed for Lupus. She 23 and we have no history from either side of our family for Lupus. It seems like everywhere I read, the flares vary from person to person. She was first diagnosed for Lupus at the beginning of April 2012 & was given medication. Before her diagnosis, she was hospitalized (a week before seeing the rheumatologist) due to a kidney infection and severe anemia as well as swollen feet and ankles. With the medication, at least the fevers she used to have every day for the whole day, went down to only once a day. She had been making a great recovery even though it's still very difficult for her to walk. My only concern now is that in the last couple of days, her fevers have gone up to 3 times a day. Is this normal? I'm currently waiting for her rheumatologist to call me back after telling the nurse her current symptoms. Any help and feedback would help. Thanks.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 5844
   Posted 5/15/2012 2:17 PM (GMT -7)   
Lupus really doesn't have a "normal"!!!! It can do so many different things, random fevers are not unusual. Also remember that fevers are one of the ways our bodies tell us there is inflammation present -- and Lupus is an overactive autoimmune system. After over 10 years and with most everything 'quiet', I still have low-grade fevers very often, if not daily.

The most important thing is to keep watch of the symptoms and keep the doctors in the loop, which it sounds like you have already done. And, as with all fevers, get medical help for fevers over 100. Depending on what medications she is taking, they may also be contributing to the fevers.

Best,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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