21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08
Hi Des! Yes, the scarriest time for me is when i am driving. i have a 40 minute drive from work and it happened 2 times on the drive home yesterday. There was horrible weather here and I was too scared to pull over and just wanted to get home and out of the weather. It looked like tornados where gonna be everywhere! Do you think smoking has something to do with it...I might pay extra close attention today and see when the "episodes" happen.
Hey Tammy, I have not had my ears checked. I actually don't think I have ever had them checked. I don't have a runny nose or anything. When I do sneeze or something and then blow my nose, there is always blood in the tissue but I have not had a "runny" bloody nose since Jan or Feb.
I don't post here but your thread touched a nerve. I am so very sorry!! This is a terrible feeling! I don't have any answers and you have gotten some very good advise. I would second the motion on having those ears checked. You may want to google benign positional vertigo.....although this may be way off.
I live with vertigo. I have had if for 3 years now. I just wanted to say that ginger is genius for managing the nausea that comes with that. Ginger will not cure or even lessen the vertigo or dizzy feeling, but it will settle your tummy. You can take it in a variety of ways. You can get some ginger root and put some in hot water or tea...let it steep for ten minutes or so then drink (slice it thin). You can also get ginger candy from lots of health food stores. It really does help the tummy!! I carry it with me where ever I go.
I wish you the best of luck in finding an answer to this symptom. It is an awful thing to live with.
What you describe is exactly how I feel when I am flaring badly, and the usual before I started neurontin and plaquenil. I have CNS lupus, and the ataxia and numbness and tingling is bad enough, but often the severity of my misery was/is connected to scary high blood pressure. I vote with calling your dr. right away.
Not to alarm, but often those drug store b/p machines read wrong. I know what you mean about budget constraints. Do you think you could call your drs. office, share about needing to wait until Friday, and asking if an office nurse could just check your b/p for you if you stopped in? They should certainly do it as a professional courtesy. I spent $40 at Walmart to buy one of those pump them up yourself kind of automatic machines. I checked with my own stethoscope and found it very accurate. Do you know any nurses or medtechs socially? Even EMTs at firehalls would take a b/p for you. I know I wouldn't hesitate to take the b/p of anyone who asked me. I have even had neighbors call me late at night. Stroke is a leading cause of death in the US, and people with lupus are at even greater risk, so I worry that you shouldn't wait. I know how you feel with those cold tingling neuro flushes, too. Take care and keep us "posted"
Good Morning, Amy and all,
Boy, do I love being home on spring break! I am glad to know your B/P is good, but it is important to keep checking it. A stroke is easier to prevent than treat. One of the hardest things about lupus, I think, is dealing with the cognitive impairment, aka "brain fog", I actually participated in a research study about it and went to the MRI scanner and EEG lab several times. There was a whole thread devoted to brain fog here awhile back. Besides falling alot, the cold flushes, (as I explained it to my immunologist, a sense of being on fire and bone chilled cold at the same time), numbness and tingling and crawling out of my skin, with literal panic attacks, were driving me crazy, and the symptoms that forced me to an immunologist and neurologist. I started Neurotin and plaquenil before prednisone, but they all help me immensely. When I first found this site, I was struck by the similarity in the meds many of us have to take. And in the symptoms so many of us have to live with. These 'chats' are a high point in my week,
hugs to everyone,
p.s. forget? forget what?
Well I think I have it figured out...it was a sign my body telling me to rest. Since I didnt listen to it i have been making good friends with the floor and toilet if you get my drift....uggg! I went home from work yesterday early and had to pull over 3 times before I got home to puke. Well, it contiuned for awhile and i thought i was better and tried to go back to work. Nope, my body had other plans. I ended up having to pull over once on the way to work and then was in the bathroom making friends with the gross toilets and floor at work. So my superviser sent me home again. I took a fenergin and ended up throwing that up too! Not quite sure what to do so I guess I am just gonna go to bed and hopefully sleep this off. I have a fever and this is probably the 5th or 6th fever i have ever had. Its 100.2. Thats a pretty good one considering my temp is normal 96.9. Hope everyone is having a good Friday!
Nope....still haven't made it too the pharmacy