Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, PrilosecLinks: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions
Life is far too important to be taken seriously. –Oscar Wilde, 1882
21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08
Hi Red, I hear your heart and in truth can relate very well. I too have always been an upbeat encourager, but certainly dealing with this disease has changed me. There is a grief process I think, when it comes to accept a disease. I also know that when I have inflamation I weep more. I started counseling several months ago, just to balance things out a little. The poor woman is so empathetic, that she gets tears in her eyes . This helps me, because it allows me to grieve what I have lost. I used to be a hard worker and made "Outstanding Woman of the Year" in my community. Now I am just trying to keep my job. I once heard a woman say, "The only wrong way to grieve, is not to grieve at all. " Maybe that's what we have to do to get to acceptance. You're in my thoughts and prayers today.
Hi Red, When I go to the dr and he asked if I was depressed I told him yes. He said what are you depressed about? I said well doc pull up a chair How much time you got? You're right we all get depressed. This crappy disease reminds us all the time that while we may be the same person we used to be we can't always do the same things we enjoyed before. Or just running to the store can be life changing experience. It stinks it's a raw deal. But I figure if it's messing with me it's leaving someone else alone. People with chronic illnesses don't give themself enough credit. You're one tough cookie to be handling this as well as you are and you will learn little tricks along the way on how to get the most out of the good days and then on the bad days look at it this way........If ya can't make supper or wash dishes you get into your emergency list of phone numbers and pick out which pizza place sounds the best.
You know with easter, your b-day, we just got through christmas a few months ago there are alot of folks out there that are feeling pretty crummy and they don't even have lupus.
You know somtimes I think I would feel better living alone. I live with my bro and SIL and when I see them pop out of their chair and take off to who knows where it makes me depressed. We are all pretty much the same age and I couldn't even begin to do what they do. I have to make an appt; with a physchiatrist this month because they are doing a transplant work up and want to know I won't flip out. . I think it willl actually do me some good to talk to them. I expect when we are done the poor guy/woman will need their own dr.
Hun all I can say is if you beleive in God rejoice in the good days and make the most of them and on the bad days remember he will never leave you. Plus you got all of us and we aren't going anywhere. I couldn't get by without all my friends here.
anyway I guess I should let you go. I look forward to getting to know you better