My love/hate with prednisone

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puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 4/17/2009 11:58 AM (GMT -7)   
Well, my doctor put me on a daily dose of pred last week.  We're starting at 15mg a day for a month and then see where we're at.  I must say that I have developed a love/hate relationship with my pred and just thought I'd start a thread and see where it goes.  I definitately feel better on pred.  Sometimes too good.  I also take lortab for the joint pain since NSAID's give me hives.  Everytime I'm on a higher dose of pred 15mg and up, I feel so much better that I start to work around the house.  I've cleaned my carpets, mopped the floors, done all the laundry, given both big dogs a bath, etc.  I way over do it.  Then I suffer for it.  Before, I was only given dose packs of pred, so I when I would over do things it would catch up to me just as the pred was tapering and I would end up in worse shape then when I started.  Well, it's been three days of feeling better and doing more then I should.  I'm tired, but I don't hurt as much.  The combination of pred and pain meds is actually working and I'm taking less pain meds.  The only thing is that sometimes when I need to rest, I feel jumpy, and I'm starving, but I won't let myself have a pred pig-out.  Normally, on pred I get the crazy irratibility, but it's not so bad this time.  It all just leaves me wondering, what happens when I have to taper again?  Will I go back to feeling horrible?  Even the swelling and redness in my hands has gone down, despite the overexertion.  I think about all the side effect of long term pred use, but I think surely it can't be as bad as methotrexate or imuran.  I guess we'll just see how it goes and what my doc says next week.  Loads of positive energy to everyone, God Bless you all.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 4/17/2009 12:24 PM (GMT -7)   
I think you read my mind!! I was just increased on my prednisone. I was trying so hard to make it on a low dose, but I simply can't function any more under 10mg. My adrenal glands are shot! I love the way I feel better on prednisone, but I despise what it is doing to me! Until they come up with a new drug I have no options, tried it all! I know how you feel. Judy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 4/17/2009 2:14 PM (GMT -7)   
I think it's better to go ahead and take however much you need for a good period of time to get things controlled and to learn how to pace yourself. Then when all the inflammation markers in your blood show good improvement, the doctor will start ramping your dosage downward.

My dose was up to 15mg for 3-4 years, and after an 18-mth course of Cellcept helped my lupus calm down, and the inflammation markers came down, we started the slow ramp down. It is very dangerous to do down without a doctor monitoring and guiding the decrease -- bad things can happen like heart stoppage!!!

Below 10mg, you need to go slow to give the adrenal glands time to start working again, if they will. Some of us end up on a maintenance dose of 5mg for years.

I've just spent 3 months on 5 mg, and see the dr next week. I'm looking forward to seeing what my blood has to say and if they'll be any prednisone changes in my near future!

Cheers,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, Seasonal Affective Disorder, Depression, Herpes Simplex 1
Plaquenil, Prednisone(15 5mg), Piroxicam, Xanax, Trazodone, Boniva, Wellbutrin, Valtrex, Vicodin, Prilosec
Links: Diagnosing Lupus (4 of 11), Lupus.org Info, Lupus Resources, Help HealingWell, Drug Interactions

Life is far too important to be taken seriously. –Oscar Wilde, 1882


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 4/17/2009 3:43 PM (GMT -7)   
Isn't it strange the way we all start thinking alike? Must be another lupus symptom. lol I've been so scared about making the step to daily pred, I just couldn't believe I could feel so much better.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 


Tá mé breá
Regular Member


Date Joined Aug 2008
Total Posts : 140
   Posted 4/17/2009 9:43 PM (GMT -7)   
after a particularly bad flair last summer I took prednisone oral for several months, every time I tapered I was back in bed. finally I tapered 1 mg a day. it took forever, but I finally got off of it and felt - okay. a few months later I had 8 cortisone injections for bursitis in my hips. after a week of feeling like I had a coffee IV hooked up! I felt amazing! I mean I felt like I was 17 again. (without the hormones!) I didn't remember that feeling good felt that good. it lasted for a month, one glorious month. then in physical therapy they had me doing too much weight on a machine and my tendons in my thighs got pulled. a week later it all hit me again - fatigue, fog and icky body pain. I was heart broken. I want this $%^& to go away. I don't want to take prednisone, but I can't feel like this all the time. I can tolerate severe pain for short periods of time, but this moderate pain day in and day out is killing me.

pass me the pred!!!

Marie

Post Edited (spinningmawmaw) : 4/17/2009 11:52:06 PM (GMT-6)


puccini914
Regular Member


Date Joined Jun 2008
Total Posts : 363
   Posted 4/19/2009 5:59 PM (GMT -7)   
Well, four days in a row of feeling better. I'm no superwoman, in fact I'm incredibly tired now, but I actually went to church this morning came home, took a short nap and then went to a church BBQ. Of course that always means spending a good portion of that keeping the 2 year old out of trouble, so I am tired. DH thinks he might get lucky, I think he needs to get a clue. Maybe tomorrow nite, if I do nothing all day. lol Trying to think positivly, know this won't last forever but trying to enjoy it as long as it lasts and hoping I don't gain 40 pounds this week. Love to all.

Jennifer

PCP pretty convinced- Lupus , Taking plaquenil,Propranolol,  Flexeril,Claritin, Zantac,Ambien,vitamin B-12, multi- vitamin, Lortab.   Mom of 2 boys 1 and 6.  Symptoms: Fatigue, joint pain, heat/sun sensitivity, mouth and nose sores, malar rash, migranes, awful hives, positive ANA, and RF.

 

 

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