daughter with decreased kidney function

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alysmom
Regular Member


Date Joined Apr 2009
Total Posts : 107
   Posted 4/19/2009 9:59 AM (GMT -7)   
Hi everyone,
 
My daughter's doctor did routine blood work and her kidney function tests are abnormal.  I am worried sick because I fear lupus for her.  We have a family history in me and my mom for autoimmune illness.
 
She has an appointment Monday with a urologist and on Tuesday with a nephrologist.  A little over a year ago she had a rash on her neck and it was biopsied showing possible early, subtle sign of lupus.  Please help.  This has been such a long weekend.  My daughter is 24 and has fibromyalgia and is bipolar. 
 
Georgia

joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 4/19/2009 7:43 PM (GMT -7)   
Georgia, Welcome to the forum. I'm sorry to hear about your daughter, I don't have any organ involvement,but I do have the rash. There are people on hear that could tell you more about the kidney's and fibro. I'm sorry I can't help. Just wishing you the best.
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/20/2009 6:48 AM (GMT -7)   
Georgia,

I can think of nothing worse than learning that my daughter has a chronic disease. A few months ago my 21 year old daughter had a seizure and I went into panic mode for two weeks until we learned that it was an isolated incident.

I'm sorry you and your daughter are going through this. I hope you'll also take her to a rheumatologist who is the one to diagnose an autoimmune condition. Let's cross our fingers and focus on the possibility that the rash on her neck could be an indication of discoid lupus. With kidney involvement that seems unlikely but we can always hope.

Let us know how the appointments go. I hope you'll join our group here because it's such a good support group and it's not limited to people with lupus. We have caregivers, folks in diagnosis limbo, and anyone who needs to vent and get information and support.

What is your family history? Do you have AI disease?

Hang in there and please let us know how she's doing.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 4/20/2009 7:25 AM (GMT -7)   
Hi Georgia,
 
Please keep us posted on how the test results come back. I know this is very difficult.  I was diagnosed at age 26. It sounds like your daughter is in good hands and that her doctors are on top of things. She's welcome to join us too if she has questions or needs support.
 
Talk with you soon,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


alysmom
Regular Member


Date Joined Apr 2009
Total Posts : 107
   Posted 4/20/2009 7:49 AM (GMT -7)   
Thanks to all who responded.  Autoimmune disease is really hell.  Why are scientists not doing anything with it after all this time.
 
I was diagnosed 23 years ago with Graves disease (autoimmune hyperthyroidism) and vitiligo (autoimmune pigment disease).  I have had a strongly positive ANA for 15 years but no signs or symptoms of lupus.  My mom has rheumatoid arthritis.
 
My daughter, Alyson, saw the rheumtologist a year ago and her ANA was negative and her physical findings were negative.  The rash she had went away quickly and has not come back again.  She was diagnosed a number of years ago with fibromyalgia by the rheumatologist. 
 
 
Georgia
 

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/21/2009 6:48 AM (GMT -7)   
Georgia,

Do let us know what you find out about your daughter. I'll be thinking about you.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


alysmom
Regular Member


Date Joined Apr 2009
Total Posts : 107
   Posted 4/21/2009 5:06 PM (GMT -7)   

Well, we saw the urologist yesterday and she had a UA.  There was trace protein, no blood.  He was not too worried and said the nephrologist could answer more questions and we saw him today.  We really liked him.  He was not too alarmed about her creatinine and GFR or trace protein.

He wants her to drink plenty of water for about 7 days and repeat the tests and is hoping that her creatinine comes down.  He said since her blood pressure was very good and she has no edema he did not think she has lupus nephritis.  He also does not want her taking anything for her fibromyalgia except ultram, which he prescribed.  She has been taking Tylenol and using Aspercreme, which he said are not good.  I am having them check his ANA again just to be sure. 

He said that if she did have lupus nephritis that it could be treated, so I am trying to stay positive about it.

 

Thanks to everyone and I will stay on the board.  This autoimmune stuff has been hanging over our heads for such a long time--20+ years. 

 

Georgia.

 

 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/22/2009 7:51 AM (GMT -7)   
Georgia,

That sounds like really good news. Do you feel relieved? It's so hard not to worry about our kids. By the way, that's a reminder to all of us to drink plenty of water.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


alysmom
Regular Member


Date Joined Apr 2009
Total Posts : 107
   Posted 4/22/2009 2:52 PM (GMT -7)   
Hi,
 
I feel better but I am not totally relieved yet.  She has to repeat those tests next week and get an ANA.  When those come back normal, then I will feel better.
 
Do you all with fibromyalgia get a variety of aches and pains, even in the knuckles?  She does sometimes. 
 
I found out today that the kidney specialist was at the Mayo before, so he must be pretty good.
 
Thanks.  Georgia.

alysmom
Regular Member


Date Joined Apr 2009
Total Posts : 107
   Posted 4/29/2009 2:08 PM (GMT -7)   

Hi everyone,

 

I wanted to thank everyone who read my message about my daughter's kidney function.  I just got the results of her tests.  Her kidney functions have returned to normal and her ANA is negative.  Thank God.

As someone with autoimmune disease in the form of thyroid and vitiligo with a positive ANA, the thing I dread most is the possibility of having passed it on to my daughter.  I am sure you all feel the same.  I am hoping that research will speed up and very good treatments or a cure will emerge for those diseases in the near future. 

 

Georgia.

 


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 4/29/2009 2:37 PM (GMT -7)   
Hi alysmom,
That is good news, I know it must be a big relief to you and your daughter. Take Care
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 

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