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New Member

Date Joined Apr 2009
Total Posts : 6
   Posted 4/22/2009 10:15 AM (GMT -6)   
I guess I am not posting properly since there has been no response to my previous posts, so I am re-posting the same message here with additional info.

Let me correct something from my earlier post. My daughter says that although her ANA was positive, the MD says that she does not have lupus. Her positive ANA was due to her autoimmune disorder. she has Hashimoto's, fibromyalgia, has had pericarditis, and she has this weird thing with her eyes being blurry and severe pain in her eyes. The MD says that this is Intraocular iritis also related to her auto immune disorder. She also has arthritis. As you can tell from my post, I am worried about her and would appreciate any and all input. The doctor's are not as concerned with her as I am.

I also have a My Space page set up if anyone wants to assist me with it. I am computer illiterate. It is "unseenwind". That is about all that I know about my page.

We pray for my daughter daily and also would appreciate anyone who would join me in that effort.

Thank you,
unseenwind (Susannne)
In addition, my daughter saw a neurologist today who says thtah she has classic symtoms of MS.  She is to be scheduled for an MRI.

Veteran Member

Date Joined Apr 2006
Total Posts : 1296
   Posted 4/22/2009 10:36 AM (GMT -6)   
You are doing the right thing now by going to other doctors.  Any doctor that is not concerned....well, I won't say what I am thinking.
MS does affect eyesight and that is often the earliest symptom.  A neuro opthamologist can run tests and determine if MS is beginning to surface.  MS runs in my ex wifes family and my son started having problems 2 years ago.  He went to the specialists and they ran the tests and determined that he did not have MS.  He is ever alert as he has a heritage of MS on one side of the family and MCTD (lupus, scleroderma and polymyositis) on mine.
Lupus can be very difficult to diagnose and many patients go years with various symptoms before getting a diagnosis.  Check out the Lupus Foundation of America, Mayo Clinic and another site and look at the list of symptoms.  Click on the links below to navigate to these sites.
Let us know what you find.  I believe there is an MS forum on Healingwell that might have more answers for you if your daughter is diagnosed.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 4/22/2009 8:55 PM (GMT -6)   
HI Susanne, I am sorry I missed your post. I agree with Bill on a doctor that is not concerned needs to be fired (that's the nice version)!! Bill gave you some great advice and information so I really don't have anything to add but I wanted you to know you and your daughter will be in my prayers! It's really nice of you to help her in her journey of being dx, I am sure it means a lot to her (it would to me). Hang in there and keep reading what you can.. knowledge is power. You are a great mom, take care!
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)

Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 4/22/2009 11:56 PM (GMT -6)   
Welcome to the forum I'm sorry about your daughter I hope she gets the right docs to help her get through all this!! I also would be concern, since I have two daughters myself... Praying for both of you.. Take care
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Regular Member

Date Joined Mar 2009
Total Posts : 98
   Posted 4/23/2009 11:29 AM (GMT -6)   
Hi Susanne, I'm sorry to hear about your daughter. I think it is easier to have a disease than it is to have our child have one. God keep you in His peace. If you look at my list of issues and add reoccuring peracarditis, I can tell you it is not easy to deal with. However, I think the worst is when it is not looked upon as a siginificant concern. That is scarry! smhair I am most definately praying for your daughter. May she receive the care she needs and may the treatment bring her relief. God bless Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 

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