New member in Chicago

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tess1206
New Member


Date Joined Apr 2009
Total Posts : 1
   Posted 4/22/2009 4:57 PM (GMT -7)   
Hello to you all,
I was diagnosis with Lupus sjogren's syndrome and raynauds about 2 1/2 years ago, I have been reading many of your comments and advise over the past two years and you have help me get through many days. At this point my health is good, at least in our world that is! I have recently moved from NYC to Chicago, I need to find a primary doctor and rheumatologist if anyone has any advise that would be great. unfortunately my NYC doctors were not able to recommend any doctors in Chicago. I am planning on scheduling a meeting with the director of the LUPUS Foundation in Chicago and I'm sure they may have some suggestion, however if you live in Chicago and could direct me to a LUPUS support group in the area that would be much appreciated. I wish you all good health and thank you for all your words that got me through so many hard times.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 4/22/2009 6:40 PM (GMT -7)   
Hi Tess, it's nice to meet you, glad you introduced yourself to us! It's good to know that there are people out there reading our post and getting help from it when we don't even know it. I hope you find more support here and I am sure you will have a lot to offer others. Good luck on finding a doctor in the Chicago area, in case you haven't found it on www.lupus.org there is a physician's list when you put in your zip code and find your local chapter.

Take care :-) and feel free to ask more questions!
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 4/22/2009 10:25 PM (GMT -7)   
Tess, Welcome this is a great place to be. The people try to find what your looking for, even when you want to vent we all try to help in one way or another. I hope you find your doctor. Touch base with us and let us know how your doing. Take Care
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/23/2009 6:37 AM (GMT -7)   
Hi Tess, I'm new to this wonderful group of people too. I don't live where you need resources and so i can't help you there. I recently switched Rheumeys and feel rather hopeful. I hope you find what you are looking for. These folks have so much to offer and they sure are helping me to grieve and hopefully come to terms with this long haul called LUPUS! God bless, Tammy

I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1299
   Posted 4/23/2009 8:14 AM (GMT -7)   
Tess,
 
I live in suburban Chicago and am active in the Naperville support group.  If you live in Chicago itself there are more than one group there and Paul can help you find the right group.
 
If you live in the city I recommend going to Northwestern Memorial Hospital on the near north side.  Contact Dr. Eric Ruderman.  I used an older associate who unfortunately died in Jan and started to see Dr. Ruderman.  Northwestern has a very good rheumatology department and does world class research particularly on lupus.
 
There are a number of good doctors in the area depending on what is most convenient for you.
 
Here are the 3 support groups in the city itself.
 

Chicago
LaRabida Hospital
East 65th Street-Lake at Michigan
Usually first Thursday of the month: 6:00pm
Contact: LFAI Office: 312-542-0002

Chicago
Trinity United Church of Christ
400 West 95th Street
3rd Saturday of the month: 2:00pm
Leader: Robertha McNeil: 773-488-2520

Chicago-North Side
St. Matthias Rectory
2310 W. Ainslie, Chicago
2nd Thursday of the Month
7:00 pm
Leader: Will Mulchrone:
773-719-7795

 
Bill
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
 
Remain optimistic and you can overcome the odds.


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 4/23/2009 9:21 AM (GMT -7)   
Tess,

I too am happy that you posted here and I hope you'll join us more often. Bill is certainly a good resource! Maybe you'll run into him at one of the support groups some day.

Good luck getting settled in -- Chicago is a wonderful city -- and I hope you find a good rheumy and support group!

Welcome.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, arava, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex

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