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SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 4/26/2009 1:30 PM (GMT -7)   
Please keep me in prayers. I started GI Bleeding and just got the call back from my doctor (I paged). He is sending me to the ER, as it is like a menstration cycle out of my rear. confused   Dont know what is going on, but I knew from my medical training bleeding there is not cool whatsoever. I will tell ya what happened when I get back from ER. Keep me in prayer til then please, I'm scared.
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/26/2009 3:02 PM (GMT -7)   
Oh Desiree,
 
I'll keep you in my prayers for sure. I know this must be very scary. We'll be eager to hear how you're doing, but only touch base when you're feeling up to it okay? 
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 4/26/2009 3:38 PM (GMT -7)   
Hey Des
 
You got the prayers going your way! So sorry!

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril, Imuran, Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Chantex, Aspirin 81 mg, Vitamin C


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 4/26/2009 6:33 PM (GMT -7)   
Desriee

Hope everything goes well for you, I would be scared too. I'll be praying for you.
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 4/26/2009 7:09 PM (GMT -7)   
Ok I'm back. Many things, after having a camera stuck up my tush (I hated that) the doctors found a lot of things. I have hemroids, hematochezia, melena and anal fissures. I am supposed to call my doctor tomarrow and tell him the diagnoses of my tush. Til I'm seen on my ER follow up I am told to rest, rest, and drink a lot.

*tickles everyone* Drink a lot of fluids, not liquar.
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


aimsgirl16
Forum Moderator


Date Joined Jun 2008
Total Posts : 1469
   Posted 4/28/2009 5:05 PM (GMT -7)   
Hey Desiree, Just checking in too see how you are doing??

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 4/28/2009 6:55 PM (GMT -7)   
Hello Desirèe,

Glad they didn't have to keep you at the hospital. I hope you are feeling ok today. Let us know how your doctor appointment goes. Are you having a lot of pain with this???

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


LovedbyHim
Regular Member


Date Joined Mar 2009
Total Posts : 98
   Posted 4/29/2009 5:09 AM (GMT -7)   
I'm sorry to hear this news Desiree! I hope you are being cared for properly and that you recover quickly. You're in my heart and prayers. Tammy
I have SLE, Raynauds, mitrol valve prolapse,Haushimotos thyroiditis.
 
Meds I'm on are Prednisone, Vitamin D, Hydroxchloiquin, amitriptylin, levoxyl, colchcine, mobic, flexeril, and lyrica
 
Rom 8:18-19 "I consider that my present sufferings are not worth comparing with the glory that will be revealed in us." 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/29/2009 9:43 AM (GMT -7)   
Oh my goodness Desiree, no wonder you were in a bad spot there.  That's a lot going on isn't it?  So glad to know you're getting good care for this.  "Drink lots of fluids, not liquor" - that made me laugh!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


Kookla
Regular Member


Date Joined Mar 2005
Total Posts : 401
   Posted 4/29/2009 8:09 PM (GMT -7)   
Ginny?
Diagnosed Lupus 2001, Lupus Nephritis, Anticoagulant
Cellcept, Lisinopril, Coumadin, Cymbalta and seroquil


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 4/29/2009 8:41 PM (GMT -7)   
Hey Steph, did you have a question?
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/2/2009 1:31 AM (GMT -7)   
Yea I have a lot going on. But since I joined this group I finally feel that people understand. Its so nice having to have ppl to talk to that understand. You guys are great here.
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/3/2009 9:23 PM (GMT -7)   
Desiree how are you doing tonight?  Just checking in on ya.  I know what you mean about having people here who really understand and can talk to about this stuff.  This is a good place. blush
 
Take care!
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/4/2009 4:39 AM (GMT -7)   
Hey Ginny! hugs. Im ok tonight. The medication is makeing me have loss of apetite, but hey haha...whos gonna complain of eating less! I just am testing myself more to make sure I dotn get low :) (diabetic) How are you doing Ginny?
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/4/2009 7:52 AM (GMT -7)   
Good morning Desiree.  (((((hugs)))) for you too.  I"m glad you're doing a bit better. What meds are you taking?  LOL, I don't mind when my appetite goes to crap either.  I could stand to lose added pounds! 
 
I'm doing okay. Still grieving over the loss of my cat, Willow. Each day is getting easier though. I just had an appointment with my family doctor and my monthly blood tests look really good. So I'm tapering down another 1/2mg of prednisone. Gotta like that!  My Fibro is kicking my butt though. If it isn't one, it's the other....Overall, I'm doing okay :-) .
 
Take it easy today!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 5/4/2009 12:59 PM (GMT -7)   
Awww Ginny, Im so sorry about Willow. I have a cat named Skittles (maybe we should stop letting the kids name animals LOL). Before Skittles I had Sneakers (actually that is a name us adults picked cuz he was a very sneaky (would play hide and go seek) cat and head butted you when he didnt get enough attention so we named as Sneakers Baby Butthead. Sneakers would litterly run at you and smack his head into your leg if he wanted attention. Anyhow he died a few years ago, we accidently fed him that poisoned cat food. We tried to save him. First signs of illness I took him to the vet. As I used to work in a nursing home, when Sneakers got worse, I started doing extended nursing care. He lost a lot of weight and wanted to eat, but he couldnt walk since it shut down his nervous system. So I did physical therapy and got him the high nutrition cat food from the vet that I syringed (sp) fed him (of course I bathed him too). We did this for months. Then he started seizures. The night before, I knew he was going to die. For some reason he lived to morning. Then he had 3 grand mal seizures in a ten minute window. I gave him 3 hours to pull out of the seizures, he never did. I could tell, as he was the "baby" he was in a coma. He was breathing and had a heart beat, but he was not there, so I rushed him to the vet again. Upon hearing he wouldnt last through the night, I had him put down. As he was like a kid to me, I actually asked the vet if I could sit on the bench outside with him as he died, vet asked why and I quipped "I dont want him dying in some doctor office or hospital." Vet decided to push that he was not a doctors office or hospital and I simply said "You are to the cat." He opened his mouth, couldnt say anything then said go ahead. So I held Sneakers on the bench outside with the birds chirping and the sun shining on him til he died. I'm personally against putting down, but sometimes, on rare cases it is for the better. I thankfully had a friend take to me to the vet. When we got back the police were there and demanding to see Sneakers. A niehgbor decided to yell "animal abuse". I looked at the officer pretty cold and said he just died, and if he needed confirmation to call my vet. He asked for the vet name and number, I told him, and he called them. My vet not only stook up for me and told the officer that I was the best animal lover they have seen in only 20 years but also put it in extensive writing that I was the best they have seen in 20 years and was providing care in such an extensive matter that they were personally shocked to see how much love and compassion I have. Even said how I never missed an appointment, stayed up to date with shots and stuff. I made copies of that and turned one into my landlord as they decided to investagate me. They backed off when they saw the letter and I said I had witnesses. I knew there was a reason why I had a friend take me to the vet each time so I could just hold him as we drove (dang Sneakers was like no other cat I've seen, he liked car rides and being held like a baby). Its hard to get over it, and frankly you never do. When we got Skittles after Sneakers I vowed to never get close to the cat. He sleeps in the bed with me..... Cherish the moments you have hon
 
Smurfy Shadow
 
Desirèe 
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
 
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops
 
PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
 
Undergoing Radiation
 
Taking Lorazepam (Ativan) on Radiation Days

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