Lupus walk & update

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Butterflake
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Date Joined Jun 2006
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   Posted 4/28/2009 3:25 AM (GMT -7)   
Hi Everyone. I did the lupus walk (1 1/2 miles) Saturday with Lynnwood, my BF, my daughter and a friend. Thanks to Lynnwood and my friends, Team Butterflake raised $560 for the GA Chapter of the Lupus Foundation of America. Of course I used my purple rolling walker and my loved ones stayed with me at the back of the pack. As for other issues, I saw a new neurologist 'bout 2 weeks ago and have had a neuropsych exam, EEG and will get 2 MRIs in May. I haven't fallen this month...that's a big achievement, huh? My long term memory is excellent- see trivia smilewinkgrin  but my short term memory has never been worse. If anyone wants to share more funny lupus fog events, please do. I could use the cheering up. During the neuropsych exam I called a pelican a penguin -Ewww that was a trip. Love to all, Butterflake 
Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 4/28/2009 8:13 AM (GMT -7)   
Donna that is great! Congratulations on walking that long distance and raising those funds! Good on ya!
 
Okay, I have a brain fog moment you can enjoy.  This happened last week so it's still very fresh in my head....
 
Hubby and I went for a long walk last Sunday afternoon.  We got back to the house, walked in the front door, and instead of taking off my shoes....... I undid my pants.  Hubby thought he was about to get lucky right there at the door.  Hahahaha! 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
 
Co-Moderator for the Lupus and Fibromyalgia forums


Butterflake
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Date Joined Jun 2006
Total Posts : 1547
   Posted 4/28/2009 9:53 AM (GMT -7)   
LOL Ginny!! Thanks!

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 4/28/2009 12:03 PM (GMT -7)   
LOL. Butterflake and Ginny
Well here is mine, since its been so nice out my hubby and I have walking everyday and taking drives to the mountains so pertty, well anyway I had to get test done today forgot to call in my referrall, and forgot how to get home, which is only 15mins away I kept telling him to turn he said what are going into one of those brain fogs again. lol... I said it must be from to much sun, well I just kept quite. So now I will rest since I tired.

Butterflake congrates to you on the walk...ours is in Oct.
Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 4/28/2009 12:25 PM (GMT -7)   
Butterflake, congrats on raising all that money. I cannot recall my brain fog moments 5 minutes after they happen anymore which I guess indicates I am brain fogging on brain fog. I do know they have happened because hubby looks at me funny every now an then like I said or did something odd.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, exema
Tx: plaquenil, Enbrel, Tramadol, Singulair, Skelaxin, Baby Asprin, Imuran, Prilosec, lasix, Evoxac, Celebrex, Darvocet when things get too bad, prednisone again, various vitamin/mineral supplements, cozar


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 4/28/2009 4:46 PM (GMT -7)   
Wow Donna and Lynwood, that is great. I know you both have to be proud of yourselves. Also congrats on the $560. That is so exciting :-)
 
Ginny, I almost choked to death when I read your brain fog moment. I had just taken a drink and was getting ready to swallow and swalling and trying to laugh is not a good combination.
my brain fog moment...I have so many but I decided this is the best one. A few weeks ago I was driving to work...well I ended up in my high school parking lot wondering why someone was in my parking space. I was so confused adn about 5 min later when I finally realized I had graduated 3 years before and was on my way to work, I couldnt stop laughing. I laughed for the whole 45 min drive and then had to explain to my boss why I was late(laughing the whole time). yeah, I am sure she thought I had taken one too many drugs...

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 4/28/2009 7:07 PM (GMT -7)   
Congrats Donna and Lynn !!! Woooo Hoooo !!!

LOL . . . the brain fog stories are SO funny!!

My most memorable fog was the Purina Chili !! I was making a big pot of chili and hubby's eye about popped out of his head!! I looked down and I was pouring DOG Kibble into the pot of chili!!! Aghhhhh!!!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 4/29/2009 5:27 AM (GMT -7)   
Thanks for the congrats and the great stories Ladies. Amy, I've been retired cause of lupus almost a year and still wake up thinking, #&*@ I have to go to work. For anyone wanting to know what a neuro/psych exam is like, it's 6 hours sitting with a tech who makes you do endless puzzles and questions. Late in the day, the tech asked me what was similar in the words praise and punishment. Umm, they begin with P... She asked, "Can you tell me more?" ....They're a result of something you do..."Can you tell me more?" (I'm getting ticked)...Uh, it's something someone does to you as a result of something you do. "Can you tell me more?" (I'm really ticked)...No, that's all I can think of. So then she asked what's similar in the words hibernation and migration... It's something animals do at certain times of year. She looks at her notes and asks, "Can you tell me more?" .....I wanted to slap her mad
Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 


aimsgirl16
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Date Joined Jun 2008
Total Posts : 1469
   Posted 4/30/2009 6:43 PM (GMT -7)   
Hey Donna...Can you tell me more?
 
 
HAHA!!! Just Kidding. Yeah, I think my reaction would have been worse than yours. Jeepers, 6 hours with tests like that, I don't know how much of it I would have been able to take
.
Purina Chilli...that is hillarious, can't say I will be trying that anytime soon!! LOL

Amy

 

21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 4/30/2009 8:39 PM (GMT -7)   
Hey girlfriend! That is awesome!!!!!! congratulations for the walk and raising the money. That's wonderful:).
OK I was with a friend of mine and told her that I mentioned to the dr. about how frustrating it was that my short term memory was so bad. She said oh really what did he say it was????LOL I couldn't remember! I told her to ask me in a couple months when it wasn't short term anymore.

Actually I did finally remember what it was and he said it was from the xanax and from the sleep apnea which I noticed you have. I just don't use my cpap to much so I'm gonna try and see if it helps. Do you use a cpap?

love ya girl
 CAROL
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, provigil 200mg spirivia,aciphex,lasix ,pot.chlor.,B12 ,iNDEROL
 
Bear ye one another's burdens
Galatians 6:2 KJV

 
 


Butterflake
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Date Joined Jun 2006
Total Posts : 1547
   Posted 5/2/2009 5:27 AM (GMT -7)   
Hi Carol and Amy. Carol I was thinking of u right before I saw ur post. You're so funny. I LOL when u said "ask me in a couple of months when it's not short term anymore" That's a great line!! I used my cpap the first couple of years I had it and just can't get back in the routine. One day I was online at The CPAP Store. My BF walked by, did a double take cause he thought it said CRAP Store. smilewinkgrin Amy, if I don't ever remember anything else, I'll remember "Can you tell me more?" Love, Butterflake
Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 
 

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