protein in urine

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New Member

Date Joined Apr 2009
Total Posts : 1
   Posted 4/29/2009 8:12 PM (GMT -6)   
I'm new to this site and hope I am using it correctly. I have a question- I have protein in my urine and my doc wants to do a kidney biopsy but there have been several other times when I have had protein (generally when I am ill with an unrelated illness such as a cold or stomach bug or when I was pregnant)and then it has gone away as I get better and my stress related lupus flare dies down. Has anyone else had this false alarm happen? And in light of this should i be cautious about jumping into a biopsy when my docs have been trigger happy before for no real reason? Should I wait a week until I am feeling better to do another blood test (i've had constipation and stomach probs for a couple of weeks which I feel brought about the lupus flare)? I don't like to rush into medical procedures and each time when the protein level has gone down with a second test my docs have calmed down and changed their tune. smhair ephiz
lupus 2000, raynaud's
400 mg plaquenil

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 4/29/2009 10:11 PM (GMT -6)   
Hi ephiz,

Welcome to the forum! I'm sorry I can't respond to your question . . . except to suggest a nephrologist. I just wanted to welcome you to the forum. Sorry you are having trouble.


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Psalms 139

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UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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Regular Member

Date Joined Aug 2008
Total Posts : 46
   Posted 4/29/2009 10:31 PM (GMT -6)   

i just had this prob. i had high protein in my urine, and both my pcp and reumy wanted a kidney biopsy, so i was referred to a nephrologist for my kidneys, he ran all his tests and he said my protein in urine was hardly there, so he said i was ok. they r just going to be checkin my urine alot more now to watch for changes. I agree u should see a nephrologist!

hope this helps



Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 4/29/2009 10:46 PM (GMT -6)   
Hi ephiz,
I wanted to extend my welcome to you as well!  I don't have kidney involvement, so I really can't give you any advice that the other ladies have already mentioned.  I always try to live with "better safe than sorry" when it comes to my Lupus.
Let us know what you decide to do,
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums

Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 4/30/2009 6:08 AM (GMT -6)   
Hello ephiz,
I also want to welcome you to the forum,I don't have kidney problems, so I can't help but I'm sure other people will come along. Hope everything goes well what ever you decide. Take Care
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
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  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Forum Moderator

Date Joined Jun 2006
Total Posts : 1534
   Posted 4/30/2009 7:01 AM (GMT -6)   
Hi Ephiz. Welcome to our forum! I frequently have trace protein in my urine and my GFR is usually low. I saw a nephrologist (as u should too) who said based on these tests I'm in first stage chronic kidney disease. He changed my blood pressure meds, told me to eat less protein, keep salt intake normal, monitor my labs, see him twice a year and no biopsy right now. I think the key is what Joan said: the amount of protein in ur urine will help determine if a biopsy is needed. Regardless, if the nephrologist recommeds a biopsy I think u should get one. They know what's best. Love, Butterflake

Systemic Lupus ('05), depression, diabetes, fibro, gerd, hypertension, IBS, sleep apnea  Rx: Cellcept, plaquenil, prednisone, celebrex, lisinopril, actos, lipitor, nexeum, prozac, seroquel, wellbutrin, actonel, tylenol arthritis, neurontin, phenegren, flexeril, vit C, multi vit, flaxseed oil.  Acupuncture  "Welcome to lupus, where the strange is ordinary and nothing is normal." Donna 

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Date Joined Jun 2008
Total Posts : 1469
   Posted 4/30/2009 7:01 AM (GMT -6)   
Welcome :)!
I would definatly go to the nephrologist. If there is something there, it can usually be controlled very well if it is caught the beginning stages. I do have Kidney involvement and it is something you can't just brush off. I go to the nephrologist every 3-4 weeks and get blood work done every other week. As Ginny said, it is better safe than sorry!



21 years old...Systemic Lupus 11/07, lupus nephritis 01/09, raynoids 03/08, Carpal Tunnel 03/08

Ultram, Prednisone, Cell-Cept, Lisinopril,  Ambien, Flexeril, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

Veteran Member

Date Joined Apr 2006
Total Posts : 1296
   Posted 4/30/2009 9:38 AM (GMT -6)   
Protein in your urine is a potentially serious condition called proteinuria.  Your case of lupus is attacking your kidneys and it would be wise to see a nephrologist who will probably want to do a kidney biopsy to assess how much damage has been done to your kidneys.  Proteinuria is usually easily treatable with an ace inhibitor like lisinopril.
I had it and after treatment (which will continue forever) my kidneys were and still are functioning perfectly.
Do not ignore these symptoms.  Your cold or whatever has nothing to do with your kidney condition.  You can wait until you feel better but see a nephrologist and get the biopsy if he deems it necessary.
MCTD (lupus, scleroderma, polymyositis).  Diagnosed 2005.  Kidney, liver, GI tract, dysphagia, raynauds, Barretts esophagus, quadriplegic in 2005.  Recovered and now active in skiing, tai, chi, hiking, golf.  Meds: prednisone 2.5mg, imuran 50mg, amlodipine, benazapril, omeprazole, potassium, folic acid, vitamins, maxide and various supplements and vitamins.
Remain optimistic and you can overcome the odds.

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